In order to stay up to date on latest treatments, drug discovery, clinical studies and how to manage Parkinson’s disease everyday ParkinsonsDisease.net brings you frequent articles, blogs, points of view and advice from leading patient advocates and professional medical experts.
Allison Smith was diagnosed with Young Onset Parkinson’s disease in 2010 at the age of 32. As a licensed Marriage and Family Therapist, she helps those challenged by chronic illness. In 2013, she launched her blog, The Perky Parkie, which details her Parkinson’s adventures with a touch of humor. When not battling Parkinson’s, she enjoys spending time with her dog, Crash. Read more.
Angela Robb is wife and care partner for her husband, Karl, who has young onset Parkinson’s disease (PD). Angela met Karl post-diagnosis and they have been married for over twenty years. Angela is an advocate who speaks and writes about caregiver/care partner issues. She has shared her experiences at various national and international Parkinson’s Disease conferences. She believes that all care partners/caregivers need to find their own self-care toolkit! Read more.
Angie Hott, while enjoying raising her young, large family, was busy being a mom, wife, and community church volunteer when Parkinson’s disease (PD) came knocking on her door. She suddenly found her young husband, Dan, at home on an unexpected and surprising “early retirement”. Now, as an advocate for PD research and working as a character values facilitator in the local schools, she shares her stories about faith, family, fun, and crazy days with PD on Hott Mountain, West Virginia. She is hoping her experiences will connect other young families and inspire the next generation to help and cure people with Parkinson’s. Read more.
Brooke Huminski, MSW LICSW is a contributor and moderator for Parkinson’s Disease.net as well as a psychotherapist in Providence, RI. Prior to starting her own practice, she worked intensively with patients and families, including those living with Parkinson’s Disease, in her role as a medical social worker on an acute inpatient medical/surgical unit. Collaboratively, she helped families navigate the complex medical system and offered support during times of crisis or end of life. She is familiar with many of the mental health and cognitive aspects that impact those with Parkinson’s over the course of the disease.Read more.
Dan Glass has had many life experiences since he was born in 1971. Growing up in suburban Pennsylvania, he developed interests in being a creative writer, hiker, science fiction fan, baseball follower, photographer, traveler, music connoisseur, and consumer of way too many cheesesteaks, chocolate iced donuts, and pizza slices. Oh, and he was diagnosed with Parkinson’s in 2016. Read more.
Gretchen Church was diagnosed with Young Onset Parkinson’s Disease at 32 years old. 17 years later she is still going strong. 15 years ago she met and ultimately married Michael Church another contributor to ParkinsonsDisease.net who also has YOPD. Gretchen also is a contributor for Migraine.com having dealt with Chronic Migraines for 30 years. Read more.
Judy was caregiver for her dear husband Marvin as he began his journey with Parkinson’s Disease in January 1991 when he received his official diagnosis. Other than “off days” the early years were considered good and he continued to work as a school bus driver and driver for a company that offered shuttle services for FedEx workers in Indianapolis. Read more.
Karl Robb has lived with Parkinson’s disease (PD) for over thirty years. Karl noticed some distinct changes when he was seventeen years old and received a diagnosis of young onset Parkinson’s disease at the age of twenty-three. Since his diagnosis, he has been a Parkinson advocate, entrepreneur, inventor, writer, photographer, Reiki Master, and speaker on PD issues. In 2008, Karl started his blog, A Soft Voice in a Noisy World. Read more.
Kelly was diagnosed with young onset Parkinson’s disease in 2002 at age 29. She has since started two young onset support groups and is active in the Parkinson’s community. She underwent bilateral DBS surgery in 2016 and is doing very well. She enjoys traveling and spending time with her husband, David, and their Golden Retriever, Cooper. Read more.
Kirk Hall, a Parkinson’s disease (PD) advocate, author, and speaker, lives in the Denver area with his wife, advocacy partner and caregiver, Linda. He began to experience neurological symptoms including essential tremor and swallowing problems in the early 90’s and was diagnosed with PD in 2008. Kirk had successful deep brain stimulation surgery in 2011. Read more.
Maria De León
Maria De León’s long love affair with Parkinson’s disease took a more intense and personal note after her grandmother was diagnosed with the disease only to discover that she too had developed symptoms at a young age of 38. Since then, she has taken her patient advocacy and knowledge of the disease to a new level in an attempt to change the science in regards to gender and cultural differences. In that regard, she authored the first Parkinson’s book addressing women’s issues in Parkinson’s titled “Parkinson’s Diva: A Woman’s Guide to Parkinson’s disease.” When she is not engaged in the Parkinson’s arena, you can find her enjoying her many other passions including traveling, movie watching, discovering new foods and mostly being a mom to her lovely daughter-Victoria. Read more.
Matt Zepelin is a mindfulness teacher, Certified Feldenkrais Practitioner®, and PhD candidate (University of Colorado) located in Boulder, Colorado. Matt has worked with people with Parkinson’s disease in workshops, classes, and private sessions since 2013, and he runs the Mindful Movement for Parkinson’s Audio Library. Read more.
Michael J Church was diagnosed with Parkinson’s Disease (PD) at the age of 32. He was surprised at the diagnosis at such a young age. Typically, PD is found in older adults but has been discovered among a younger population of people. This diagnosis would have life altering changes and lead to some tough decisions that has allowed him to overcome many of the challenges associated with this disease. Read more.
Peter Dunlap-Shohl was cartoonist for the Anchorage Daily News for over a quarter of a century. Diagnosed with Parkinson’s Disease at the age of 43, he has been a long-time patient advocate, using the skills he honed as a cartoonist to explain the disease and foster awareness and hope on his award-winning blog, “Off & On, The Alaska Parkinson’s Rag,” and in his book: My Degeneration, a Journey Through Parkinson’s Disease. He is the leader of the Anchorage Parkinson’s Disease Support Group. Read more.
Peter Whyte, is 66 years old, and is a semi-retired founder and investor in startup technology companies. He has been mostly sidelined with his Parkinson’s Disease for more than a decade. “Some executive function is not working like it used to due to this disease, and it’s hard (not to mention irresponsible) to take investor’s money knowing one is not going to be at their best,” says Peter. So, he is busy learning, writing and until recently speaking to Parkinson’s support groups about one of the most insidious symptoms of Parkinson’s, namely depression. Peter has now lost most of his voice to PD. Read more.
Sarah Hackley is the author of “Preparing to Fly: Financial Freedom from Domestic Abuse,” “Finding Happiness with Migraines: A Do-It-Yourself Guide,” and the poetry chapbook “The Things We Lose.” She’s also a regular writer on ParkinsonsDisease.net, Migraine.com, and AtopicDermatitis.net, and her personal blog, The Migraine Chronicles, has been called “one of the Top 50 Migraine Blogs on the planet.” Follow her on Facebook or Twitter, and learn more at www.sarahhackley.com. Read more.
Tonya began experiencing Parkinson’s symptoms in 2006 at the age of 32. Two years later she was diagnosed with Young Onset Parkinson’s disease. In 2013 she underwent Deep Brain Stimulation. Tonya is active in the Parkinson’s community. She has shared her Parkinson’s journey at the 2016 World Parkinson’s Congress, health-industry related corporate meetings, and various community Parkinson’s forums. She shares her love of fashion and shoes on her blog, The Shoe Maven, which also serves as a platform for Parkinson’s awareness. Tonya also works full-time as a Legal Research & Writing professor. Read more.
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