Dare to Care about Self-CareManaging my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for later
Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for later
Random Musings on Accepting Parkinson’sI have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as... By Lorraine Wilson3 min readBookmark for later
Dare to Care about Self-CareManaging my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for later
Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for later
Random Musings on Accepting Parkinson’sI have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as... By Lorraine Wilson3 min readBookmark for later
Dare to Care about Self-CareManaging my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for later
Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for later
Random Musings on Accepting Parkinson’sI have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as... By Lorraine Wilson3 min readBookmark for later
On Retirement and Parkinson’s DiseaseI came from a nuclear family with Midwestern values and thick American determination. My mom stayed at home for most of my life, while my dad was the breadwinner. Mom... By MaryBeth Skylis3 min readBookmark for laterReactions0reactionsComments1 comments
Parkinson’s Medication: My Frenemy?When I was diagnosed with Parkinson’s disease on 28th July 2013, at 11am (it’s hard to forget the exact details of such a life-altering diagnosis), I had to wait 6... By Shamsa2 min readBookmark for laterReactions0reactionsComments9 comments
Parkinson's Diagnosis to FundraisingHello everyone! I am one of the few people that can say that they have had Parkinson's Disease over half my life. Diagnosed at 24 (now 48), I was devastated...Bookmark for laterReactions0reactionsComments4 comments
Is genetic testing for PD available?Can/ should family members have genetic testing for PD? I heard in a Michael J Fox interview that a gene has been found that may predispose for PD....Bookmark for laterReactions0reactionsComments9 replies
