Dare to Care about Self-CareManaging my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for later
Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for later
Random Musings on Accepting Parkinson’sI have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as... By Lorraine Wilson3 min readBookmark for later
Dare to Care about Self-CareManaging my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for later
Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for later
Random Musings on Accepting Parkinson’sI have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as... By Lorraine Wilson3 min readBookmark for later
Dare to Care about Self-CareManaging my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)... By Shamsa3 min readBookmark for later
Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for later
Random Musings on Accepting Parkinson’sI have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as... By Lorraine Wilson3 min readBookmark for later
Who is the Future of Parkinson's Advocacy?In 2018, I was given the opportunity to write for Health Union. Having previously blogged about my Parkinson’s experience for the previous (almost) 2 years, I felt honored to be... By Dan Glass3 min readBookmark for laterReactions0reactionsComments0 comments
When is it Time to Use a Walker?The first time my mom suggested that my dad use a walker during his off periods, he rolled his eyes. He wasn't ready to rely on the little 4-wheeled contraption... By MaryBeth Skylis2 min readBookmark for laterReactions0reactionsComments0 comments
Glad To Know What’s Wrong With MeIn 2021, I was diagnosed with essential tremors in both hands. After about 12 months, the shaking went from annoying to bad. I found my hand writing needed extra time...Bookmark for laterReactions0reactionsComments1 comments
Is genetic testing for PD available?Can/ should family members have genetic testing for PD? I heard in a Michael J Fox interview that a gene has been found that may predispose for PD....Bookmark for laterReactions0reactionsComments9 replies