Why I Use MyChart and TelemedicineWhen I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not... By Thea Destephano2 min readBookmark for laterReactions 0 reactions Comments0 comments
Retired Life in the Presence of Parkinson's DiseaseAfter 3 years of phased retirement, getting mentally and emotionally prepared for the event, retirement happened. And, as Nina Simone sings, "It's a new dawn / It's a new day... By Frank Church4 min readBookmark for laterReactions 0 reactions Comments1 comments
Parkinson’s Disease Convinced Me It Was Time to RetireTo many people reading this blog post, you may have been dreaming of retirement for much of your adult life. Not me. An old saying goes, "Some people work to... By Frank Church3 min readBookmark for laterReactions 0 reactions Comments0 comments
An Adjustment for Tremors: Deep Brain StimulationSitting, facing the team of neurological professionals in front of me, I found myself in a conundrum. In all my posts about Parkinson’s, I’ve always been open about the fear... By Dan Glass4 min readBookmark for laterReactions 0 reactions Comments11 comments
An Adjustment for Tremors: Focused UltrasoundThis all began when my wife turned me on to a procedure called focused ultrasound (FUS). This is similar to deep brain stimulation (DBS), though, in its most important aspect... By Dan Glass4 min readBookmark for laterReactions 0 reactions Comments4 comments
A Personal Perspective on Anxiety and Parkinson'sTo a person living with Parkinson's disease, anxiety is probably an all too familiar, hideous condition. Posy's story may ring a few bells. Following a serious case of streptococcal pneumonia... By Posy2 min readBookmark for laterReactions 0 reactions Comments4 comments
Random Musings on Accepting Parkinson’sI have said I do not, and will not, accept Parkinson’s disease (PD). I do not deny that I have it. I see doctors and take medications. But acceptance, as... By Lorraine Wilson3 min readBookmark for laterReactions 0 reactions Comments19 comments
My Problem with Parkinson's Disease and Spatial AwarenessWe recently visited Jacksonville Beach, Florida, the home of The Tournament Players Club Sawgrass golf course (TPC Sawgrass) and the host of the Players Golf Tournament on the Professional Golf... By Frank Church3 min readBookmark for laterReactions 0 reactions Comments8 comments
Positive Versus Negative Thinking with Parkinson's DiseaseI must admit that since being diagnosed with Parkinson’s disease (PD), I have had bouts of positive and negative thinking. Since everyone has a different experience dealing with PD, I know... By Marc Mitnick2 min readBookmark for laterReactions 0 reactions Comments4 comments
Parkinson's Disease Is a ThiefParkinson’s is a funny old disease to get your head around. I do not mean funny in the classical "LOL" sense ... but I mean funny in the sense that... By Shamsa Hussain3 min readBookmark for laterReactions 0 reactions Comments49 comments
Let It Be: My Outlook for Coping with Multiple ConditionsWhile doing stretching exercises I often listen to music to help keep rhythm and make it a little less boring. One day the Beatles iconic song "Let it Be" began... By Thea Destephano3 min readBookmark for laterReactions 0 reactions Comments5 comments
Facing the Future with Parkinson's, Stoically and RealisticallyIn life, there are 2 sides to every story. For instance, my whole dealing with Parkinson’s thing says that in order to be optimally functional, I need to avoid timelines... By Dan Glass3 min readBookmark for laterReactions 0 reactions Comments9 comments
On Adaptive Tools, Pride, and Parkinson’sLast year, I sent my dad a pair of adaptive shoes and an adaptive (magnetic) shirt, thinking that they might be able to take some of the frustration out of... By MaryBeth Skylis3 min readBookmark for laterReactions 0 reactions Comments1 comments
Increasing Exercise for Parkinson’s: The Benefits I ExperiencedRecently, I stayed at an inpatient rehabilitation facility due to an exacerbation of my Parkinson’s disease. During my 3-week stay, I decided to compare the amount of time that I... By Marc Mitnick2 min readBookmark for laterReactions 0 reactions Comments15 comments
May I Help You?In 2013 I received a diagnosis of a rare movement disorder known as primary orthostatic tremor which affects your legs only upon standing. The tremors stop as soon as you... By Thea Destephano2 min readBookmark for laterReactions 0 reactions Comments0 comments
Trying to Remain as Independent as Possible with Parkinson'sAsk not what others can do for you, ask what you can do independently for yourself. My apologies for borrowing inspiration from President John F. Kennedy, I feel that we... By Marc Mitnick3 min readBookmark for laterReactions 0 reactions Comments6 comments
Soft Texture Breakfast Foods for Parkinson’s DiseaseNavigating mealtime while managing Parkinson’s disease (PD) can feel like no small feat some days. Many people with Parkinson's struggle with dysphagia, or difficulty swallowing. This makes many foods hard... By Melissa Halas, MA, RDN, CDE3 min readBookmark for laterReactions 0 reactions Comments1 comments
Community Shares: My Shingles SurpriseRecently, members of our community discussed shingles. Shingles symptoms are uncomfortable, and they can be more severe when combined with autoimmune diseases. It is always an unwelcome surprise when shingles... By Editorial Team2 min readBookmark for laterReactions 0 reactions Comments0 comments
A Personal Perspective on What Depression Feels LikeContent Note: This article describes experiences with suicidal thoughts. If you or a loved one are struggling, consider reading our mental health resources page. Posy objects to those pseudo-heartfelt posts... By Posy6 min readBookmark for laterReactions 0 reactions Comments4 comments
Flow to HappinessFor many people with Parkinson’s, the idea of joyful living stands in complete opposition to where they are now forced to exist. This seems logical since the idea of jubilation... By Dan Glass4 min readBookmark for laterReactions 0 reactions Comments7 comments