Parkinson's, My Retirement and YOLOWe didn’t expect to retire so soon. Things changed at a football game at Lehigh University. I had not been back to school for more than thirty years. Although I...Reactions0reactionsComments0 comments
Pushing a RopeAnother unpublishable testimony and treatise to my journey into the rabbit hole of Parkinson’s. In the interest of brevity I will use the nickname Parky’s throughout the remaining soliloquy. After...Reactions0reactionsComments0 comments
Parkinson's Diagnosis to FundraisingHello everyone! I am one of the few people that can say that they have had Parkinson's Disease over half my life. Diagnosed at 24 (now 48), I was devastated...Reactions0reactionsComments4 comments
Glad To Know What’s Wrong With MeIn 2021, I was diagnosed with essential tremors in both hands. After about 12 months, the shaking went from annoying to bad. I found my hand writing needed extra time...Reactions0reactionsComments4 comments
Nighttime StressorsI been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half asleep. It started when the doctor increased my...Reactions0reactionsComments1 comments
Rigid FingersThe fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As I was attempting to polish my nails, I...Reactions0reactionsComments1 comments
Journey Is A Stupid WordWho the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What a ridiculously, stupid and demeaning term to use...Reactions0reactionsComments3 comments
My Parkinson's experienceHello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019. During those 5 years and on, I continued...Reactions0reactionsComments0 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part 2 can be found here. The person or...Reactions0reactionsComments0 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation: ENLIST HELP!! This is supposed to be fun...Reactions0reactionsComments3 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 1)This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I had been feeling very depressed at having reached...Reactions0reactionsComments0 comments
No One is Actually Interested in Parkinson'sListen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started my journey 16 years ago. It has been...Reactions0reactionsComments3 comments
My Life Is Over Thanks to Parkinson'sMy life is over thanks to Parkinson's. Everything ... my health, my looks, I don't even go out for meals anymore. It was my Birthday recently. My son came over...Reactions0reactionsComments1 comments
How Me?Why me, is the usual question that arises in our minds more often than not when we face difficult situations. In the case of Parkinson's too this question applies. I...Reactions0reactionsComments3 comments
Restless Legs Need Some RestMaybe it was there before Parkinson's disease hit me. But my doctor says PD is what lies at its base, restless legs syndrome. It comes creeping in, like a screw...Reactions0reactionsComments1 comments
My Emotions and Physical Pain After DiagnosisHello All, my story, maybe not so short, is that my first symptom was tremor in my hands finally severe enough to make using them difficult in most tasks. The...Reactions0reactionsComments1 comments
A Long RoadMy journey began years ago with just a little weakness on my right. If I held my right hip I'd be fine. That went on for years until last year...Reactions0reactionsComments1 comments
FallingI am 67, Parkinson’s for at least 7 years. Preceding my fall, I was careless and sloppy as I went up some stairs and tumbled back down. I have vowed...Reactions0reactionsComments5 comments
Outing Myself with YOPDIt began in 2010, a feeling of fatigue that felt inordinate to activity. A negative test for Lyme disease and an internist’s assurance that a mother of 4 would, of...Reactions0reactionsComments5 comments
Am I Losing my Mind?I am 68 years old and was diagnosed with Parkinson's last October. It took months to get into a neurologist, the first one diagnosed my with ataxia, which I was...Reactions0reactionsComments1 comments