Stories

The Parkinson’s Outcomes Project shows that people with PD who start exercising earlier in their disease course, for a minimum of 2.5 hours per week, experience a slowed decline in...

People often ask me some version of “how are you doing?” I usually respond, with as much gusto as I can summon, “I’m doing fine!” But, I know that what...

We all use numbers to some extent from our early youth through old age. We are often bombarded with numbers. They’re used to convey information that we have to decide...

We didn’t expect to retire so soon. Things changed at a football game at Lehigh University. I had not been back to school for more than thirty years. Although I...

Another unpublishable testimony and treatise to my journey into the rabbit hole of Parkinson’s. In the interest of brevity I will use the nickname Parky’s throughout the remaining soliloquy. After...

Hello everyone! I am one of the few people that can say that they have had Parkinson's Disease over half my life. Diagnosed at 24 (now 48), I was devastated...

I been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half asleep. It started when the doctor increased my...

The fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As I was attempting to polish my nails, I...

Who the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What a ridiculously, stupid and demeaning term to use...

Hello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019. During those 5 years and on, I continued...

This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part 2 can be found here. The person or...

This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation: ENLIST HELP!! This is supposed to be fun...

This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I had been feeling very depressed at having reached...

Listen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started my journey 16 years ago. It has been...

My life is over thanks to Parkinson's. Everything ... my health, my looks, I don't even go out for meals anymore. It was my Birthday recently. My son came over...

Why me, is the usual question that arises in our minds more often than not when we face difficult situations. In the case of Parkinson's too this question applies. I...

Maybe it was there before Parkinson's disease hit me. But my doctor says PD is what lies at its base, restless legs syndrome. It comes creeping in, like a screw...

Hello All, my story, maybe not so short, is that my first symptom was tremor in my hands finally severe enough to make using them difficult in most tasks. The...

My journey began years ago with just a little weakness on my right. If I held my right hip I'd be fine. That went on for years until last year...

I am 67, Parkinson’s for at least 7 years. Preceding my fall, I was careless and sloppy as I went up some stairs and tumbled back down. I have vowed...