Mr Parky Comes to Play...Something is wrong... November 2012, my mum is very poorly in hospital having had a fall at home and broken her hip, followed by a heart attack in hospital. It...reactionscomments
Becoming DependentFor most of my adult life I’ve valued being independent. Resiliency is a part of feeling independent. My slogan might have been "Whatever life throws at me, I can handle...reactions3comments
Establishing Your Medical TeamThere are many ways to assemble the medical team recommended for Parkinson’s. The simplest way is to start with your current Parkinson’s medical providers. I’ve heard many complaints especially concerning...reactionscomments
My Parkinson's StoryMy Parkinson's story begins in the Mekong Delta in '69-'70. That was the year I served with the 162nd AHC (Assault Helicopter Co). While in Vietnam, I flew as a...reactionscomments
Parkinson’s and Doing as Much as You Can for Your SelfYes, I have Parkinson’s. I believe I should do as much as I possibly can for myself. My best friend, wife, and caregiver, also believes I should do as much...reactionscomments
Parkinson’s. Are You Doing What You Should?I’m Doing What I Can! Isn’t That Enough? Parkinson’s often is getting worse even if you are correctly taking your medications. Sounds as if anyone with Parkinson’s should just curl...reactions6comments
Getting off the Couch Is HardThe Parkinson’s Outcomes Project shows that people with PD who start exercising earlier in their disease course, for a minimum of 2.5 hours per week, experience a slowed decline in...reactions6comments
I’m Not FinePeople often ask me some version of “how are you doing?” I usually respond, with as much gusto as I can summon, “I’m doing fine!” But, I know that what...reactionscomments
Dealing with Chronic Illness Is More than Medical TreatmentWe all use numbers to some extent from our early youth through old age. We are often bombarded with numbers. They’re used to convey information that we have to decide...reactionscomments
Parkinson's, My Retirement and YOLOWe didn’t expect to retire so soon. Things changed at a football game at Lehigh University. I had not been back to school for more than thirty years. Although I...reactionscomments
Pushing a RopeAnother unpublishable testimony and treatise to my journey into the rabbit hole of Parkinson’s. In the interest of brevity I will use the nickname Parky’s throughout the remaining soliloquy. After...reactionscomments
Parkinson's Diagnosis to FundraisingHello everyone! I am one of the few people that can say that they have had Parkinson's Disease over half my life. Diagnosed at 24 (now 48), I was devastated...reactions4comments
Glad To Know What’s Wrong With MeIn 2021, I was diagnosed with essential tremors in both hands. After about 12 months, the shaking went from annoying to bad. I found my hand writing needed extra time...reactions5comments
Nighttime StressorsI been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half asleep. It started when the doctor increased my...reactions1comment
Rigid FingersThe fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As I was attempting to polish my nails, I...reactions1comment
Journey Is A Stupid WordWho the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What a ridiculously, stupid and demeaning term to use...reactions3comments
My Parkinson's experienceHello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019. During those 5 years and on, I continued...reactionscomments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part 2 can be found here. The person or...reactionscomments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation: ENLIST HELP!! This is supposed to be fun...reactions5comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 1)This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I had been feeling very depressed at having reached...reactionscomments
