Stories

There are lots of movies and self help books with a mid-life crisis theme. You know, when you suddenly find a clock ticking away in your brain. The clock is...

Hi, my name is Derek. I was diagnosed when I was 49. But for years I have been struggling with walking if it had a slight incline. I was having...

Hi I’m John. In 2007 while working as a police officer I noticed a shake in my outstretched arm/hand when my arm is to set something down. The second thing...

I’ve written about irritating numbers before but a different time and event have me focused on new numbers once again. Those annoying insurance people predict I have six years left...

I am depressed and I have been working with a therapist to better understand my depression. Why am I working on depression? Well, Depression is found in about 30%–40% of...

Freezing of gait and general movement has been getting worse and of course my speech had also become a worry because now I live on my own. I lost my...

I looked for the definition of Quality of Life in about ten sources and they all were different and complicated. They were as varied as are you happy with a...

I checked into the clinic and waited for my appointment. Shortly after that time I was called by a doctor, he introduced himself and was a pleasant young man. We...

Something is wrong... November 2012, my mum is very poorly in hospital having had a fall at home and broken her hip, followed by a heart attack in hospital. It...

For most of my adult life I’ve valued being independent. Resiliency is a part of feeling independent. My slogan might have been "Whatever life throws at me, I can handle...

There are many ways to assemble the medical team recommended for Parkinson’s. The simplest way is to start with your current Parkinson’s medical providers. I’ve heard many complaints especially concerning...

My Parkinson's story begins in the Mekong Delta in '69-'70. That was the year I served with the 162nd AHC (Assault Helicopter Co). While in Vietnam, I flew as a...

Yes, I have Parkinson’s. I believe I should do as much as I possibly can for myself. My best friend, wife, and caregiver, also believes I should do as much...

I’m Doing What I Can! Isn’t That Enough? Parkinson’s often is getting worse even if you are correctly taking your medications. Sounds as if anyone with Parkinson’s should just curl...

The Parkinson’s Outcomes Project shows that people with PD who start exercising earlier in their disease course, for a minimum of 2.5 hours per week, experience a slowed decline in...

People often ask me some version of “how are you doing?” I usually respond, with as much gusto as I can summon, “I’m doing fine!” But, I know that what...

We all use numbers to some extent from our early youth through old age. We are often bombarded with numbers. They’re used to convey information that we have to decide...

We didn’t expect to retire so soon. Things changed at a football game at Lehigh University. I had not been back to school for more than thirty years. Although I...

Another unpublishable testimony and treatise to my journey into the rabbit hole of Parkinson’s. In the interest of brevity I will use the nickname Parky’s throughout the remaining soliloquy. After...

Hello everyone! I am one of the few people that can say that they have had Parkinson's Disease over half my life. Diagnosed at 24 (now 48), I was devastated...