I’m Not FinePeople often ask me some version of “how are you doing?” I usually respond, with as much gusto as I can summon...reactionscomments
Dealing with Chronic Illness Is More than Medical TreatmentWe all use numbers to some extent from our early youth through old age. We are often bombarded with numbers. They’re used...reactionscomments
My Parkinson's experienceHello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019...reactionscomments
Journey Is A Stupid WordWho the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What...reactions3comments
Rigid FingersThe fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As...reactions1comment
Nighttime StressorsI been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half...reactions1comment
Glad To Know What’s Wrong With MeIn 2021, I was diagnosed with essential tremors in both hands. After about 12 months, the shaking went from annoying to bad...reactions5comments
Parkinson's Diagnosis to FundraisingHello everyone! I am one of the few people that can say that they have had Parkinson's Disease over half my life...reactions4comments
Parkinson's, My Retirement and YOLOWe didn’t expect to retire so soon. Things changed at a football game at Lehigh University. I had not been back to...reactionscomments
Pushing a RopeAnother unpublishable testimony and treatise to my journey into the rabbit hole of Parkinson’s. In the interest of brevity I will use...reactionscomments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part...reactionscomments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation:...reactions5comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 1)This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I...reactionscomments
No One is Actually Interested in Parkinson'sListen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started...reactions3comments
My Life Is Over Thanks to Parkinson'sMy life is over thanks to Parkinson's. Everything ... my health, my looks, I don't even go out for meals anymore. It...reactions1comment
How Me?Why me, is the usual question that arises in our minds more often than not when we face difficult situations. In the...reactions3comments
Restless Legs Need Some RestMaybe it was there before Parkinson's disease hit me. But my doctor says PD is what lies at its base, restless legs...reactions1comment
My Emotions and Physical Pain After DiagnosisHello All, my story, maybe not so short, is that my first symptom was tremor in my hands finally severe enough to...reactions1comment
FallingI am 67, Parkinson’s for at least 7 years. Preceding my fall, I was careless and sloppy as I went up some...reactions5comments
A Long RoadMy journey began years ago with just a little weakness on my right. If I held my right hip I'd be fine...reactions1comment