Becoming DependentFor most of my adult life I’ve valued being independent. Resiliency is a part of feeling independent. My slogan might have been...reactions3comments
Establishing Your Medical TeamThere are many ways to assemble the medical team recommended for Parkinson’s. The simplest way is to start with your current Parkinson’s...reactionscomments
My Parkinson's StoryMy Parkinson's story begins in the Mekong Delta in '69-'70. That was the year I served with the 162nd AHC (Assault Helicopter...reactions1comment
Parkinson’s and Doing as Much as You Can for Your SelfYes, I have Parkinson’s. I believe I should do as much as I possibly can for myself. My best friend, wife, and...reactions6comments
Parkinson’s. Are You Doing What You Should?I’m Doing What I Can! Isn’t That Enough? Parkinson’s often is getting worse even if you are correctly taking your medications. Sounds...reactions7comments
Getting off the Couch Is HardThe Parkinson’s Outcomes Project shows that people with PD who start exercising earlier in their disease course, for a minimum of 2.5...reactions6comments
I’m Not FinePeople often ask me some version of “how are you doing?” I usually respond, with as much gusto as I can summon...reactionscomments
Dealing with Chronic Illness Is More than Medical TreatmentWe all use numbers to some extent from our early youth through old age. We are often bombarded with numbers. They’re used...reactionscomments
My Parkinson's experienceHello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019...reactionscomments
Journey Is A Stupid WordWho the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What...reactions3comments
Rigid FingersThe fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As...reactions1comment
Nighttime StressorsI been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half...reactions1comment
Glad To Know What’s Wrong With MeIn 2021, I was diagnosed with essential tremors in both hands. After about 12 months, the shaking went from annoying to bad...reactions5comments
Parkinson's Diagnosis to FundraisingHello everyone! I am one of the few people that can say that they have had Parkinson's Disease over half my life...reactions4comments
Parkinson's, My Retirement and YOLOWe didn’t expect to retire so soon. Things changed at a football game at Lehigh University. I had not been back to...reactionscomments
Pushing a RopeAnother unpublishable testimony and treatise to my journey into the rabbit hole of Parkinson’s. In the interest of brevity I will use...reactionscomments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part...reactionscomments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation:...reactions5comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 1)This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I...reactionscomments
No One is Actually Interested in Parkinson'sListen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started...reactions3comments
