Stories

This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I had been feeling very depressed at having reached...

Listen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started my journey 16 years ago. It has been...

My life is over thanks to Parkinson's. Everything ... my health, my looks, I don't even go out for meals anymore. It was my Birthday recently. My son came over...

Why me, is the usual question that arises in our minds more often than not when we face difficult situations. In the case of Parkinson's too this question applies. I...

Maybe it was there before Parkinson's disease hit me. But my doctor says PD is what lies at its base, restless legs syndrome. It comes creeping in, like a screw...

Hello All, my story, maybe not so short, is that my first symptom was tremor in my hands finally severe enough to make using them difficult in most tasks. The...

My journey began years ago with just a little weakness on my right. If I held my right hip I'd be fine. That went on for years until last year...

I am 67, Parkinson’s for at least 7 years. Preceding my fall, I was careless and sloppy as I went up some stairs and tumbled back down. I have vowed...

It began in 2010, a feeling of fatigue that felt inordinate to activity. A negative test for Lyme disease and an internist’s assurance that a mother of 4 would, of...

I am 68 years old and was diagnosed with Parkinson's last October. It took months to get into a neurologist, the first one diagnosed my with ataxia, which I was...

Hi my name is Joan, I am an 83 year old woman living in a lovely little market town called Thornbury, South Glos. I have been diagnosed with Parkinson's disease...

I was diagnosed with young-onset Parkinson's disease (YOPD) at 42 years old, but I think I had YOPD during my teenage years because at that time my voice become lower...

My name is Tony, and I've had this disease for over 20 years, in 2 months I'll be 59. I had to stop working as a heavy vehicle technician with...

My appointment came through for 1st August 2013 – only 2 months after my diagnosis. Well impressed! I asked a good friend J to accompany me to my first appointment...

On a December morning in 2019, I was pleased to see a new episode of Tim Harford’s podcast, "Cautionary Tales," in my playlist. The episode’s curious title, "Bowie, Jazz, and...

It is almost the end of April 2013 and I went to see my GP with my list of symptoms all affecting the left hand side of my body. I...

April 2013 and I manage to get through the ski holiday, not without a good degree of stress. On the last day Phil (husband) and Jordy (younger son) take Mark...

I'm 59 in a couple of months, I've not been able to work for three years. I live in the UK with the most amazing woman, I simply wouldn't have...

Roughly 5 years ago my hands started to shake. Soon there after I began spilling and dropping things, then breaking things. Interesting it never occurred to me that something was...

Lose my balance momentarily when getting out of bed. Feels like I would fall if I did not suddenly grab onto something to steady myself. Could be a table, or...