SlothsI have come to the conclusion that is with Parkinson’s are the sloths of the human race! I'm not saying that as a bad thing! I think sloths are cute!...Reactions0reactionsComments4 comments
Diagnosis and medsI have always been right side dominant...right handed, my bedside and kitchen set up with pens, books, can openers, flashlights and other necessary tools kept where I can see and...Reactions0reactionsComments1 comments
A Confusing And Unexpected JourneyI was diagnosed 4 1/2 years ago. As I look back, my PD started a long time ago. My many doctors could never put it all together. And they still...Reactions0reactionsComments6 comments
Hi, I’m Jane, a bit about meI’ve had Parkinson’s for about 4 years now. I take Madopar. But I’ve also got osteoarthritis in my lower back. I’ve had this problem longer and this causes me a...Reactions0reactionsComments9 comments
New PD Diagnosis and My ThoughtsI started tipping forward recently, lost my sense of smell a decade ago, and noticed one arm not swinging when I walked. My son did some research and Mr Google...Reactions0reactionsComments3 comments
Advice for new DBS-patientsI was diagnosed having Parkinson’s in 2010, and started taking medicines immediately. At first they worked well, but years went by and I needed more and more levodopa and carbidopa...Reactions0reactionsComments3 comments
The Worst Hour of Every Day!If I could just skip the first hour of every day - the "waking up/getting up hour," my life would be totally different and so much more positive and hopeful...Reactions0reactionsComments13 comments
I wish I could play my guitar betterMy name is Gary Michael Mazzola. I’m a Singer/songwriter and Actor/Director and I live in Tehachapi, CA. I was first diagnosed with Parkinson’s Disease in 2012, but I probably had...Reactions0reactionsComments4 comments
Recently Diagnosed with Parkinson's DiseaseIt's been approximately a year now that I started noticing tremors in my right hand and arm. Within the last 2 months went to a neurologist who set me up...Reactions0reactionsComments3 comments
Dr’s OrdersI found out in 2018 that I had Parkinson’s. I was recommended a Dr at Shane’s University of Florida Gainesville by my orthopedic Dr. After evaluation I was prescribed carbidopa/levodopa...Reactions0reactionsComments1 comments
My Worst EnemyI hate Parkinson’s disease. I don’t say those words lightly because I’m friendly and I try not to take life too seriously. That began to change back in 2008. I...Reactions0reactionsComments8 comments
The hunt for answers... it's a long one.It started as early as the 1990s. Eyes failing, fast heart rate, then loss of smell around 2006. My nerves went or so I thought around that time as well...Reactions0reactionsComments6 comments
So SadHow sad that people get Parkinson's. My husband is now in frail care facility 120 km from me after 45 years of marriage. He misses me terribly and I cry...Reactions0reactionsComments3 comments
Not a "Death Sentence"2014 was a horrible year for me. I was issued a rolling walker by the VA, a cane and some knee braces and told I would probably not be able...Reactions0reactionsComments3 comments
Side effects from MedicationsI've had Parkinson's for 5 yrs and since going to this Neuro and all the changes the side effects of meds has gotten worse. My "story" is not for the...Reactions0reactionsComments2 comments
Parkinson's SpellMe I’m a wild thing. Sinister lengthy bleak black hair; hip n quirky quiff Shakes, rattles and rolls, not records, nor old I am, I’m me! I’ll shake you’ll see...Reactions0reactionsComments4 comments
Intimacy with PDWhen I put his gait belt on Bright yellow plastic With a hard black plastic buckle I feed the end through the buckle Holding the buckle open Careful not to...Reactions0reactionsComments6 comments
Know when to change your neurologistAbout 4 years ago (which was 5 years after diagnosis) I was waiting to see my local neurologist. As I entered his consulting room he commented, "I’ve been watching you...Reactions0reactionsComments8 comments
Shakin' Shaz has the 'nods' again!In the late '70s, early '80s I developed involuntary nodding of my head and could do nothing to control it. I saw 2 or 3 doctors about this but, I...Reactions0reactionsComments3 comments
NO MATTER WHAT! The Adventure of a LifetimeBy Louis McCann All my life I have been in positions of leadership. Throughout those years I often struggled with what that meant. Was I destined to be a leader?...Reactions0reactionsComments2 comments