My Worst EnemyI hate Parkinson’s disease. I don’t say those words lightly because I’m friendly and I try not to take life too seriously. That began to change back in 2008. I...reactions8comments
The hunt for answers... it's a long one.It started as early as the 1990s. Eyes failing, fast heart rate, then loss of smell around 2006. My nerves went or so I thought around that time as well...reactions6comments
So SadHow sad that people get Parkinson's. My husband is now in frail care facility 120 km from me after 45 years of marriage. He misses me terribly and I cry...reactions3comments
Not a "Death Sentence"2014 was a horrible year for me. I was issued a rolling walker by the VA, a cane and some knee braces and told I would probably not be able...reactions3comments
Side effects from MedicationsI've had Parkinson's for 5 yrs and since going to this Neuro and all the changes the side effects of meds has gotten worse. My "story" is not for the...reactions2comments
Parkinson's SpellMe I’m a wild thing. Sinister lengthy bleak black hair; hip n quirky quiff Shakes, rattles and rolls, not records, nor old I am, I’m me! I’ll shake you’ll see...reactions4comments
Intimacy with PDWhen I put his gait belt on Bright yellow plastic With a hard black plastic buckle I feed the end through the buckle Holding the buckle open Careful not to...reactions6comments
Know when to change your neurologistAbout 4 years ago (which was 5 years after diagnosis) I was waiting to see my local neurologist. As I entered his consulting room he commented, "I’ve been watching you...reactions8comments
Shakin' Shaz has the 'nods' again!In the late '70s, early '80s I developed involuntary nodding of my head and could do nothing to control it. I saw 2 or 3 doctors about this but, I...reactions3comments
NO MATTER WHAT! The Adventure of a LifetimeBy Louis McCann All my life I have been in positions of leadership. Throughout those years I often struggled with what that meant. Was I destined to be a leader?...reactions2comments
My short term memory is shot!Hi Everybody, it's Ernie. Well, how is everyone doing? I wanted to tell you another story about memory. Do you remember I suggested we all try to put some humor...reactions6comments
Keeping Tabs On HumorI'm in my 80th year and was diagnosed with PD about 3 years ago. It all started when I was at the hospital trying to find out why I was...reactions2comments
Parkinsonism is a "Bear" to BearI was very active in my life until 2018, when I began having problems with my right side (leg, ankle, foot, and handwriting). I moved from Seattle, WA to Sugar...reactions6comments
ParkinisonISM?Yes, you read that right! I have been diagnosed with PARKINSIONISM. The first time the doctors said that "strange word" I thought they were kidding...and I did NOT like that!...reactions4comments
Living day by dayFirst got Parkinson’s years ago and every day’s a challenge but I get through. Don’t know but how do you get a good neurologist? I’m having trouble also getting good...reactions7comments
The Next StepI was diagnosed 2 years ago this September. My life is nothing short of a roller coaster. I am a retired nurse; but I have to tell you, I've learned...reactions4comments
I fear for my futureI’m going to turn 70 later this year and my retirement is not going as I planned. After a life of independence and good health, I now can’t walk and...reactions8comments
How to Get a Good Night’s SleepDoctors and many other types of smart people agree: The most effective remedy for insomnia is to get plenty of sleep. This is easier said than done, of course, especially...reactions2comments
My vehaal (truth)I'm 60 and not feeling a day over 20. I want to get on with so many new things and new adventures. I will as soon as I beat this...reactions2comments
Karl’s History Day by DayIn 2012 I was diagnosed with Parkinson’s. It came as a shock to me I said here it goes again. I had just survived a colon cancer operation successfully (by...reactions5comments
