I just don't understand

By Venetia

1 min read

I'm newly diagnosed with PD since February. I have tremors really bad and my feet go all the time. Sometimes I choke on my salvia and I never did this before all this started happening to me.

Some days are better than others and I am on medication 4 times a day for PD. But I am also running into the low blood pressure problem, which is probably coming from the disease itself, because we tried to decrease the med and it was still happening.

Understanding Parkinson's

I have other illness also besides this but this is hard. There's a caregiver that comes in 5 days a week to be with me, my daughter lives 2 hours away and my son just don't get it. My daughter helps out as much as she can. My sister steps in when she is needed my mom doesn't understand it but she is 81. Some of it I don't understand either. Thanks for hearing me.

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April.Sluder Member
<inline-mention username="Venetia" user-id="4169046"/> Thank you for sharing some of your story. It can be hard for others to truly understand what you are experiencing. It's great that you've got a caregiver to come in and help you. I encourage you to continue sharing and seeking out support here when needed. April - <a href='http://ParkinsonsDisease.net' target='_blank'>ParkinsonsDisease.net</a> Team
Marc Mitnick Member
Thank you for posting your article. You may have already seen a Speech Pathologist who can treat swallowing concerns for saliva, Venetia. I would also encourage you to speak to your doctors about any side effects of your medication in causing excess salivation. Sometimes, it is felt that Botox helps with this situation as well. Incidentally, ginger is known as one of the most effective natural treatments for hypersalivation. It reduces the amount of saliva produced, and it works as an anti-inflammatory in the mouth. You can make a ginger tea using hot water and ginger root. For a more direct treatment, place a slice of fresh ginger in your mouth and leave for several minutes.[1] Best wishes, Marc M., Moderator, Speech Pathologist, <a href='http://ParkinsonsDiseaseNet.net' target='_blank' rel='noopener noreferrer ugc'>ParkinsonsDiseaseNet.net</a> [1] Excessive Salivation (Hypersalivation): Causes and Home Remedies <a href='http://www.doctorshealthpress.com/general-health-articles/excessive-salivation-hypersalivation/' target='_blank' rel='noopener noreferrer ugc'>www.doctorshealthpress.com/general-health-articles/excessive-salivation-hypersalivation/</a>
Venetia Member
Thank you for your help
Suzanne Troy Member
Hi Venetia, How are you doing? Just checking in. Know we care about you here at <a href='http://ParkinsonsDisease.net' target='_blank'>ParkinsonsDisease.net</a>. We are in this together. Blessings on your day, Suzanne Troy, team member
Venetia Member
Hello! I'm doing so/so. Not doing so good, since I am not on any medication. My doctor doesn't want to work with me, but I am going to a movement doctor in January so I will not be on anything until the end of January. Just holding on. Between the Parkinson and my RA and I haven't been on nothing for that since September because my doctor has been out of the office. But she is supposed to be back in December. So I have been in alot of distress over medicine. Hopefully we can get this straightened out soon. Thank you for reaching out to me.
Marc Mitnick Member
I am glad that you are going to a movement disorder neurologist in January, Venetia. You probably tried already, but have you considered finding another doctor since your doctor has been unavailable for the last 4 months? I wish you the best, Please let me know how you are doing. I care, Marc M., Moderator, <a href='http://ParkinsonsDisease.Net' target='_blank'>ParkinsonsDisease.Net</a>
Suzanne Troy Member
Hi Venetia, Are you getting help from your family or caregivers lately? Wishing you all the best during the holiday while you are waiting to get medical advice. Blessings on your day. Best regards, Suzanne Troy, <a href='http://ParkinsonsDisease.net' target='_blank'>ParkinsonsDisease.net</a> team member
Thea Destephano Member
Hi Venetia, Do you occasionally go on the MPT site? I thought I recognized your beautiful and unique name! I hope you get the care you need soon. I have just been through a rollercoaster ride with meds all over the place..I had to go off everything for a week and start from square one.I share your frustration. Have a wonderful holiday and let us know how you are doing. We care, Thea DeStephano, Community Team Member
Suzanne Troy Member
Hi Venetia, Hopping on to say hello and to check in on you. How are you doing? I hope you were able to see your doctor and take care of medical advice and med issues. May you know we are thinking of you at this time. Let us know how you are doing. All best and hugs to you, Suzanne Troy, <a href='http://ParkinsonsDisease.net' target='_blank'>ParkinsonsDisease.net</a> Team Member
jellybean Member

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