Making Palliative Care Standard Practice For People with Parkinson’s Disease...A new program launched by the Parkinson’s Foundation will help to make palliative care a standard practice across all Centers of Excellence in the United States. These are medical centers...reactionscomments
Recently Diagnosed...October 5th, my life changed tenfold as I sat in the office with the neurologist, hearing the words "You have Parkinson's". My head spinning, screaming inside, this cannot be what...reactions2comments
Does anyone suffer with hot head on the inside of their head?...Hi, my Dad has Parkinson’s and is suffering with a hot head on the inside of his head. He finds having gel packs over his forehead really helps. I was...reactions1reply
Compromised Immunities & Pandemics: Best Enemies...When I was a kid and I would listen to stories of medieval pandemics, I would always envision the world under continuously gray skies. Beneath the obscuring skies, all life...reactionscomments
I loved turning 50!...But, a few years later, it appeared my whole body was rebelling. I developed asthma. Then, I started getting weird headaches, that would make it difficult to even see the...reactions3comments
Laughing Doctor...My story goes back decades. However only in 2017 did doctors figure out I had P.D. Third visit to MDS Neurologist looking fresh out of school. Early in visit 3...reactionscomments
The 2020 Support Group Drought: To Meet or Not to Meet...Our local Parkinson's support group has been on my mind more than usual of late. We have not been meeting as a large group due to social distancing guidelines and...reactions5comments
What Is It Really Like to Be a Caregiver? Results of the 2020 Caregiving In America Survey...When faced with a chronic health condition like Parkinson's disease, many people rely on the help and support of a caregiver. In many ways, the family members, partners, and friends...reactionscomments
Others May Not “See” It. But I Feel It....During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...reactionscomments
Positive...16 years ago I was diagnosed with Parkinson’s. I was 65. At that time, my husband was in the mid stage of Lewy body dementia and it did not register...reactions1comment
COVID-19 Induced Apathy: Is That a Thing?...How many weeks has it been now? Months? I have totally lost track. It must be at least 6 months or more. At first, it was strangely energizing. We had...reactionscomments
Does PD affect your heart?...I am not quite sure how this works but I was wondering if anyone could share any information they might have about how PD can affect your heart. I am...reactions1reply
World Hospice & Palliative Care Day 2020: Voices from the Community...Each year, World Hospice and Palliative Care Day is observed in October. This year, October 10 will mark the day to celebrate and support hospice and palliative care around the...reactionscomments
COVID-19 and Flu: Similarities, Differences, and How to Protect Yourself...As the coronavirus and flu season collide, this upcoming fall and winter will be like none the world has ever seen. Here in the United States, it is important to...reactionscomments
Handling Intimacy...My 86 year old husband with PD has been declining for a number of years (I am 20 years younger and have MS). We moved him into an assisted living...reactions5repliesCaregivers & Care Partners
Dealing with Apathy From My Loved One With Parkinson's...When my father first started feeling the symptoms of Parkinson’s disease (PD), we, as his family, had no choice but to feel for him. There was no cheering him up...reactions1comment
How Parkinson's Helps Me Cope During These Challenging Times...Does having Parkinson's disease (PD) make it easier to deal with the current COVID-19 pandemic? I have found that it does. At least for me. What I have learned about...reactionscomments
An Overlooked Parkinson's Symptom: Hiccups...The most common, noticeable signs of Parkinson’s disease (PD) are motor symptoms, especially tremors. They affect about 70 percent of people with PD. However, there are also many non-motor symptoms...reactions4comments
Can You Achieve Financial Growth & Stability with Parkinson's?...My father being an immigrant meant he came to this country with very little. Truly. He came with what I think was the equivalent of $500 USD. He and my...reactions2comments
