Sleeping ...Hi,Does anyone have the same problem. That is I lie in bed tossing & turning tying the bed clothes in knots thinking I must get some sleep when in fact...reactions7repliesSleep
Humor: Without It...Life Can Be Boring...First of all, EVERYONE is a comedian. The difference is most of us don't get paid being one. But in this community you get a chance to make people LAUGH...reactions12repliesCopingNewly DiagnosedApathy
Can We Bring an End to Parkinson’s Disease?...What is the fastest-growing neurological disease? No, it is not Alzheimer’s. It is Parkinson’s. Parkinson’s disease (PD) is growing at an alarming pace, putting it on a path to become...reactions1comment
Should I persist?...Hi there. New here. After about 6-8 months of worsening weird things happening, I decided to put them all in one space. Decided after Dr Google suggested it, to see...reactions21repliesAcceptanceCoping
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your job done. When this happens, you may find...
The Bittersweetness of Having a Family...Being married and being a mother, alongside having a chronic neurodegenerative illness is hard. I am eternally grateful for my family and for being surrounded by a little army of...reactions10comments
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect your finances and your family’s. However, there is...
I Was Invisible For A Few Hours...The Cherry Creek Art Festival is held in the Cherry Creek area of Denver during the first weekend in July. Our art-loving family usually attends the festival. Seeing all the booths...reactions3comments
no sleep...My husband, Bruce, has not had any sleep in the past month or so. At night he falls asleep for about 10 minutes then gets up and wanders around the...reactions9repliesSleep
How a Doctor's Appointment Can Change Your Life...For years my husband, singer, songwriter, and musician, Rob Barteletti, had been sitting in his recliner watching hours of sports each day. Didn’t matter the sport, he was watching it...reactions5comments
Retail Accommodations, or the lack thereof ...The other day, I visited the optometrist to order new eyeglasses. As my Vascular Parkinsonism limits me, I asked if they had a high chair, or one with arms, so...reactions5repliesAcceptance
FeaturedGastroparesis...Besides not sleeping, I am having trouble with gastroparesis whereby motility of the gut hinders it going through the digestive system. I was prescribed 10mg. (it is sent from Canada)...reactions21repliesNon-Motor Symptoms
No More Shame With Parkinson's...Since I was diagnosed with Parkinson's in 2017, I have been overwhelmed with feelings about my health and the future. Of all the emotions I have experienced with Parkinson's, shame...reactions8comments
FeaturedSome days...Hi I'm Dave, had a bad couple of weeks, legs feeling cold but not cold to the touch it's a new one on me, try my best to look after...reactions6replies
intimamet relaitonships...mu husbanc died in 2014 dand i met a man in 2017 who is preyyu cclsoe to perfect but i ahve no idea on how to tell him how i...reactions2repliesCaregivers & Care PartnersAcceptanceIntimacy & Relationships
Finding a New Doctor...This week I received notice from my doctor that he was leaving town to take another job. So, again, I have to find a new doctor to provide care for...reactions2comments
Rocky Balboa Versus A Formidable Opponent...I had a dream that I was Rocky Balboa at 71 years of age. When I was young, I was the heavyweight champion and at the top of my game. Now...reactionscomments
Fuel for the Berry Best Protection Against Parkinson's Disease...Berries have been getting great press for their memory benefits for years. Then after the MIND diet arrived around 2015, berries won the all-star title of superfoods! Blueberries, blackberries, raspberries...reactions3comments
6 Months Before Diagnosis...Something is wrong... November 2012 - my Mum is very poorly in hospital having had a fall at home and broken her hip, followed by a heart attack in hospital...reactions4comments