So Sad...How sad that people get Parkinson's. My husband is now in frail care facility 120 km from me after 45 years of marriage. He misses me terribly and I cry...reactions3comments
Board Games and Parkinsons...Hi I am a design student who is currently investigating board games in relation to Parkinson's Disease. I was wondering if there is any specific challenges you face playing board...reactions5replies
Giving up Sinemet - are there practical alternatives ?...From time to time I get so fed up with the side effects of taking Sinemet (I take generic version) that I just decide not to take any of my...reactions2replies
How Dad’s Favorite TV Show Turned into a Nightmare...Most of us have seen Alone before. But if you haven’t, it’s an adventure, survivalist show that takes 10 people and drops them into the wilderness where they attempt to...reactions9comments
Deep depression and severe anxiety....In the early '80s I began having involuntary tremors in, head and hands most often and it was very embarrassing as I could not control my body. I saw 2...reactions4replies
MRI with gliosis on DBS leads...Wondering if anyone with a DBS implant had an MRI that showed gliosis (white matter) on their DBS leads?...reactionsreplies
When You Are Doing Well, What Could Possibly Go Wrong?...I’ve been doing well the last 9 months. My balance has been better (lots of physical therapy), my symptoms progression has slowed down, and I’ve been working hard physically and mentally. I’ve...reactions13comments
Vascular Parkinsonism Support Group...As I needn't tell my other fellow sufferers, we are a minority within a minority. I have found very little knowledge of how to diagnose and treat our illness and...reactions3replies
Kind, Gentle, Whispers: A Message to My Newly Diagnosed Self...When I was first diagnosed with Parkinson’s disease, at the age of 28, I did the typical and oh so common thing ... and yup, I Googled it. The millions...reactions7comments
I Want My Independence...As with most of us with Parkinson's disease, I want to be able to do as much as I possibly can for myself. It has taken me some time and...reactions8comments
Cannabis as an aid to controlling Parkinsons...Good day. I am an 87 year old man. I have had Parkinson’s for about 20 years. Fortunately my condition is not severe. I would describe it as around 6...reactions20repliesMedical Marijuana
Protein and Parkinsons...How does protein effect Parkinsons and is it only relevant around pill taking time?...reactions5repliesDiet & Nutrition
Unstable ...Does anyone feel like this?. It's like your standard in a room completely covered with marles. You walk on top them....reactions1reply
How to Decrease Your Risk of Hemorrhoids...Does going number 2 have you seeing red? You may have hemorrhoids – swelling of the veins within the anus and lower rectum. While this may sound like TMI (too...reactions4comments
I've had it with the medical community. ...I've gone from active and self sufficient to walking with great difficulty, shuffling and unstable in a matter of less than three months. I went back to my neurosurgeon, I've...reactions10repliesCopingHealthcare Team
Dad’s Levodopa Timing and Side Effects...Levodopa was seen as a miracle drug when it first became available to Parkinson’s patients. Since its emergence, it’s become the main treatment for the disease, allowing patients to replace...reactions2comments
Not a "Death Sentence"...2014 was a horrible year for me. I was issued a rolling walker by the VA, a cane and some knee braces and told I would probably not be able...reactions3comments
When Parkinson’s Causes Mayhem...It was one of those days where almost nothing went right and there is no one to blame except for Mr. Parkinson’s. The morning started out well. We had our...reactions1comment
Side effects from Medications...I've had Parkinson's for 5 yrs and since going to this Neuro and all the changes the side effects of meds has gotten worse. My "story" is not for the...reactions2comments
