I Feel Anxious ... Is That a Parkinson’s Symptom?...I feel anxious almost all the time and occasionally have anxiety attacks. Does Parkinson’s have anything to do with anxiety? According to Johns Hopkins, "Research shows that up to 40 percent...Reactions0reactionsComments1 comments
How to Get a Good Night’s Sleep...Doctors and many other types of smart people agree: The most effective remedy for insomnia is to get plenty of sleep. This is easier said than done, of course, especially...Reactions0reactionsComments2 comments
Be Brave: Ask for Help!...In Posy's recent blogs about her Trans-Atlantic trips, she confirmed that having Parkinson's disease (PD) had complicated her long-haul travel. The triumvirate of lockdown, the fear of catching COVID and...Reactions0reactionsComments4 comments
Advice on how to handle my sister...Good evening. My sister is 56 and has been diagnosed with Parkinsons. I would like to know how do I handle this and how can I help her? What can...Reactions0reactionsComments4 repliesCopingAwarenessExercise
YOPD - Carer ...Good Afternoon Community Members, I am a young person, who is a carer for my partner who was diagnosed with PD at 25yrs, this was some years ago. I think...Reactions0reactionsComments4 repliesCaregivers & Care PartnersExerciseFriends & Family
Anybody Else Out There Like Me?...I'm struggling to connect with PD people who are more like me. I work full time, get plenty of sleep, take a medication once a day with no side effects...Reactions0reactionsComments28 repliesTips & Advice
Life Is Not a Race!..."Feeling bad is often not as bad as how bad we feel about feeling bad." (Posy, 2022) Do we expect too much of ourselves? Are we still viewing life as...Reactions0reactionsComments8 comments
The Fear of Forced Change...With Parkinson’s, one of the most important questions is how to balance needs and independence with fear and anxiety. This is not a simple equation in any way shape or...Reactions0reactionsComments6 comments
DBS...I had DBS in 2020. I am not convinced that it was successful. What has bee the experience of others...Reactions0reactionsComments2 repliesDeep Brain Stimulation
Sample Day Meal Plan for Soft-Consistency Diet...Getting told to downgrade to a soft-consistency diet with Parkinson's disease (PD) may seem challenging at first. But rather than glorified baby food, what if it can be a Michelin...Reactions0reactionsComments2 comments
My vehaal (truth)...I'm 60 and not feeling a day over 20. I want to get on with so many new things and new adventures. I will as soon as I beat this...Reactions0reactionsComments2 comments
Posy Shares Her Thoughts on Rasagiline...Posy has so many questions about the reasons for Parkinson's disease (PD) symptoms and the treatment for her condition. The answers she seeks are often found on the ParkinsonsDisease.net website...Reactions0reactionsComments7 comments
An Interview with Pickleball Instructor Deonna Shake..."Pickles! Pickles, bring back that ball right now!" I smile thinking of a dog named Pickles. It is not just his name that amuses me, but the fact that a...Reactions0reactionsComments0 comments
Share the truth about Parkinson's disease...About 60,000 people in the United States are diagnosed each year with PD in the United States. To better understand the patient experience and realities of PD, we are fielding...Reactions0reactionsComments0 repliesAwareness
"Off Time" and Parkinson's Disease: A Personal Experience...For those impacted by Parkinson's disease, we know that the symptoms may change over time. I recently experienced an episode that lasted for over 2 hours. As usual, I took...Reactions0reactionsComments16 comments
What I’ve Learned About Mannitol...My dad and I are always on the hunt for strategies that may help to alleviate his Parkinson's symptoms. Recently, we've both heard a lot about mannitol - a sweetener...Reactions0reactionsComments1 comments
back spasms...Does anyone else experience back spasms? Mine arrive without warning and leave the same way. They have called it a trigger point (mine are mid back and run along the...Reactions0reactionsComments9 repliesSymptoms
Living Without Regrets...If you knew you were facing the last months or years with a loved one, would you do anything differently? Would you change the words that spill from your mouth?...Reactions0reactionsComments5 comments
Is it Parkinson’s?...Hi all, My grandfather died with Parkinson's last year, after few years living with severe dementia. I noticed that my mom has significant tremors in both of her hands, to...Reactions0reactionsComments1 repliesDiagnosis
Just an Excuse?...Posy wonders if her brain created a proper disease as an excuse for her increasing physical and depressive ailments. Of course, Posy is apt to blame herself for everything. But...Reactions0reactionsComments0 comments
