I'm feeling really down at the moment

By shiftyj

1 min read

Hi everyone, this is my first time writing on here, so here goes. I'm Sharon I'm 52, and 2 years ago I was diagnosed with Parkinson's. I had symptoms for about 2 year previous but my Dr told me that there was nothing wrong with me, it was just depression and anxiety and it was also down to my weight. The more I went, the more I was told I had medical anxiety or I was a hypochondriac.

Seeing a different doctor

Eventually I managed to see a different Dr who said straight away, he suspected Parkinson's. I had all the tests, and surprise surprise it was Parkinson's. I was devastated to say the least, but I was also so angry at how the Dr had treated me. So back to today, I have had to move from a house to a bungalow. My husband as taken retirement to look after me. I can hardly walk and he has to shower and dress me. We have separate bedroom because of my dreams. I have to use the toilet about 6 times a night. I have facial problems and I have difficulty with speaking and swallowing. I can't sleep because I get fidgety legs, hallucinations, and I relive my dreams.

Trouble with food

I do also suffer with depression and anxiety and panic attacks. But the latest and so for the worse thing is I can no longer eat, everything makes me feel sick. Just the smell of food turns my stomach. I have lost 7 stones and only have breakfast which is porridge, then I have a build up drink at tea time.

I was wondering has this happened to anyone else. Plus how do you know what stage of Parkinson's you're at? Thanks everyone, any advice or support would be gratefully received.

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skpatterson Member
Dear Sharon. I am 55 and was finally diagnosed with PD in 2019. My symptoms started in 2016. I am just wondering how much medication you are taking. I am carbodopa-levadopa, amantadine, Ropinirole, carbodopa-levadopa ER, clonazepam at night for restless leg syndrome, plus sleeping medication and provigal for my fatigue. My entire right side was effective. I was falling, my right side of my face was drooping, I couldn't write or basically do anything because my right side was frozen. I have been praying for you. I guess everyone develops symptoms differently. I hope things get better for. Sonja 
1. Shazza Member
 <inline-mention username="skpatterson" user-id="4527843"/> sorry I've taken so long to reply, I didn't see this until today. Sorry to head of you're diagnosis, as I said I think mine started way before I was diagnosed. My medication is 2 co- beneldopa 100/25mg and 1 co beneldopa 50/25mg, I take these 4 times a day opicapon
Suzanne Troy Member
<inline-mention username="shiftyj" user-id="4528135"/> Hello Sharon, I'm so sorry that you are having to manage several symptoms right now. Here are two articles written by our staff and writers that I hope you find useful: -the first one talks about diet challenges: https://parkinsonsdisease.net/treatment/nutrition-challenges -the second articles talks about the various stages of PD: https://parkinsonsdisease.net/living/managing-symptoms Please let us know if we can help with anything else! Wishing you all the best- Suzanne Troy, <a href='https://parkinsonsdisease.net' target='_blank'>ParkinsonsDisease.net</a> team member
1. Shazza Member
 <inline-mention username="Suzanne Troy" user-id="4147628"/> thank you very much, I'll have a read of them tonight. I'll let you know what I think tomorrow. Thanks again 😊 X
2. Suzanne Troy Member
 <inline-mention username="Shazza" user-id="4552469"/> Hello, just checking in to see how you are doing? Have a great day, Suzanne Troy, team member
Shazza Member
I'm doing OK thank you, sorry I didn't get back to you, I've had a few bad days, but I'm feeling better now thank you 😊 . I did read the articled, which was very interesting, but I still don't know what to expect, or maybe I don't want to know, I feel sometimes I want to know what's going to happen and when, other time I don't. Hope you're doing OK. X
1. Suzanne Troy Member
 <inline-mention username="Shazza" user-id="4552469"/> Hello, it’s so wonderful to hear that you are trying to think positive! It’s sounds like you have a great husband to help you too! That’s great that you are renewing your hobby in photography! My father enjoyed this hobby for many years. He took some amazing pictures in my parent’s travels. Just the fact that you are trying as hard as you can, will help re-energize you to move forward! Prayers and blessings to you! Suzanne 
2. Dan Glass Member
 <inline-mention username="Shazza" user-id="4552469"/> I'm glad you and your husband are working through all of this. PD isn't easy, and there's no time line on where you should be when with accepting and coming to terms with things. All you can do is try to enjoy life and find people who support / care about you. While you're doing that, I hope you find inspiration to photograph and share with others. Take care.
CommunityMember683 Member
 @shazza
CommunityMember683 Member
I am somewhat surprised by your progression. You are a woman and as such you should advance more slowly than a man. The fact that progression is fast is because.you are anxious and depressed. For me. I was quite normal for the first nine years. I climbed Machu Picchu, did the zip.line in Costa Rica and gasped at the awesomeness of Foz de Iguassu; all the time I had PD. That was around 2014 - 2020 and I have this disease for 10yrs now. I did the dBs surgery last year and I have since regretted it. I wish I can t <img src="/content/images/2022/05/15/e8cab9c56f0210470f4f6e55a6132caf_medium.jpg" alt="" class="uploaded-image"/>
1. CommunityMember539 Member
 <inline-mention username="CommunityMember683" user-id="4524821"/> 
2. Shazza Member
 <inline-mention username="Suzanne Troy" user-id="4147628"/>
CommunityMember539 Member
CommunityMember683 MedicalNewsToday notes that, while males are 1.5 to 2X greater than females to develop Parkinsons, "the neurodegenerative disorder develops more quickly in females who are also more likely to die prematurely."
CommunityMember539 Member
Sue
Suzanne Troy Member
<inline-mention username="CommunityMember683" user-id="4524821"/> <inline-mention username="CommunityMember539" user-id="3099050"/> <inline-mention username="Shazza" user-id="4552469"/> Prayers and blessings to you all today! I hope you are all doing amazing and enjoying some wonderful summer weather this Memorial Day weekend! All the best, Suzanne Troy, <a href='https://parkinsonsdisease.net' target='_blank'>ParkinsonsDisease.net</a> team member