All I Want for Christmas...Two years after being diagnosed with Parkinson’s disease, my children were disappointed that I could not tell them what I wanted for Christmas. There truly was nothing I wanted or...Reactions0reactionsComments5 comments
Parkinson’s and the Evolution of Phil 2.0...I’ve just turned 80 and I’m not the person I used to be. I suppose that statement is an oxymoron. Not so many years ago, I was quite comfortable, retired with...Reactions0reactionsComments6 comments
Sleep meds and parkinsons ...My MIL is 84 years old and sleeping 2-3 hours at a time throughout the night. She doesn't act out her dreams, have RLS, or tremors, no typical parkinsons symptoms...Reactions0reactionsComments4 repliesCaregivers & Care PartnersHealthcare TeamSleep
Levodopa reaction...I’m a little jealous after reading so much about how Sinimet helps everybody. My neurologist has tried me on it & with increased carbodopa but I can’t tolerate it. She...Reactions0reactionsComments5 repliesSymptoms
Having a Urinary Tract Infection and Parkinson's...In my 72 years, I never had a urinary tract infection (UTI). So, for the past several weeks I just attributed my symptoms to Parkinson's disease (PD). I have a...Reactions0reactionsComments8 comments
Hi, I’m Jane, a bit about me...I’ve had Parkinson’s for about 4 years now. I take Madopar. But I’ve also got osteoarthritis in my lower back. I’ve had this problem longer and this causes me a...Reactions0reactionsComments8 comments
What Do Most Parkinson's Patients die from?...My mother had PD and died from pneumonia in 1994 caused by aspiration of food. That was before the various pneumonia vaccines we have now were available. Today, what do...Reactions0reactionsComments3 replies
PEG...My brother who has had pd in the mouth of for nearly 14 years and has 4 weeks ago had the peg procedure and is now using this new system...Reactions0reactionsComments2 replies
Navigating Parkinson's ...What exactly does a social worker do? I see people recommend getting in touch w one to "help w things" but I never hear what those "things" are. Some work...Reactions0reactionsComments1 repliesTreatmentHealthcare TeamCaregivers & Care Partners
Farnesol...According to an article, farnesol, a plant-based substance has been shown to reverse PD in mice & is being researched at John’s Hopkins. Something to do with stopping the destructive...Reactions0reactionsComments0 replies
Understanding tension vs rigidity, dystonia ...Recently diagnosed with pd. I’m 77 yrs old. My main symptoms are tremors in hands & involuntary tension in arms. I can relax when concentrating on it. When I relax...Reactions0reactionsComments4 repliesSymptoms
The Accidental Advocate...It was never my intention to be an advocate for women with Parkinson's disease (PD). I just started writing a blog, Twitchy Woman, to help people who were newly diagnosed...Reactions0reactionsComments2 comments
New Vibrating Glove Therapy from Stanford?...Has anyone else heard about the VCR therapy being developed by Dr. Peter Tass at Stanford? It is non-invasive and uses a vibrating glove to influence changes in the brain...Reactions0reactionsComments4 repliesTreatmentResearch & Clinical Trials
My Experience with Anticipatory Grief...I have experienced anticipatory grief 2 times in my lifetime. The first was in 1974 when my 17 year-old daughter was first diagnosed, and later died, of spinal muscular atrophy...Reactions0reactionsComments18 comments
Medication doesed work...Please let me now what i can doe...Reactions0reactionsComments1 repliesAcceptance
3 Nuts to Go Nuts Over for Parkinson's Disease Protection...Embrace your inner health nut! This under-appreciated plant-based food is abundant in wholesome goodness for better health and Parkinson's disease protection. Check out the dietitian-recommended nuts my clients enjoy that...Reactions0reactionsComments6 comments
CUE 1...I was at a Parkinson’s Christmas lunch on Tuesday & sat next next to somebody who was using one of these devices.She showed me how it worked & I felt...Reactions0reactionsComments0 repliesDeep Brain Stimulation
New PD Diagnosis and My Thoughts...I started tipping forward recently, lost my sense of smell a decade ago, and noticed one arm not swinging when I walked. My son did some research and Mr Google...Reactions0reactionsComments3 comments
My Parkinson's Disease...I read the other stories from people like me who have Parkinson's. I have a problem with my hands shaking. It's not easy to eat as my hand shakes as...Reactions0reactionsComments4 replies
Gas and acidity...My father has been diagnosed with Parkinson's disease .The neurologist prescribed him syndopa m dicine along with many medicins related to brain. But he is suffering too much gas and...Reactions0reactionsComments2 replies
