Brain Disconnection/Brain Fog...I am a 76 yr. old female diagnosed with PD approximately 1-1/2 year ago. I deal with brain fog, feeling of being disconnected, brain fuzziness, out of sort feelings on...Reactions0reactionsComments82 repliesNon-Motor SymptomsTreatmentCognitive Issues
A Tale of Twins: Accepting a Diagnosis...Many years ago, I heard a story about 2 men who were identical twins. The storyteller recalled how these twin men had both been diagnosed with the same neurological disorder...Reactions0reactionsComments3 comments
“I Wish Others Could Understand” – Parkinson’s and Mental Health...Parkinson’s disease (PD) can be life-altering. Beyond the well-known symptoms, the progression of the condition, cognitive changes, and the strain it places on relationships can have a major effect on...Reactions0reactionsComments8 comments
The Shame of Having Parkinson's Disease...When Posy was told by the neurologist that he thought she had Parkinson’s disease (PD), she was not unduly concerned. She had spent 20 years having tests and treatment for...Reactions0reactionsComments8 comments
Fatigue...Helloand Happy New Year! I have terrible trouble with fatigue. I'm sleeping decently at night , around 6-9 hours. I wake up 1or 2x to use the bathroom but get...Reactions0reactionsComments3 repliesSleep
Self diagnosed Parkinsons - waiting forever to see a Neurologist...My symptoms closely follow those for Parkinsons. Next step is seeing a Neurologist, but appointment isn't until March! I'm on a waiting list for cancelations. Hopefully will get to see...Reactions0reactionsComments4 replies
Sleep...Hi I am still having problems with sleeping through the night & have been doing some research does anyone have experience of weighted blankets if so what is your opinion...Reactions0reactionsComments2 replies
I Gave Up Driving, Now What?...During the pandemic, I decided that I would give up my car. I considered all the events unfolding at the time. The COVID-19 virus news reports were not looking good...Reactions0reactionsComments2 comments
Running...I would like to know if anyone has similar experiences to me. I have had physical symptoms 8 years now. When I am unmedicated I run and exercise. In the...Reactions0reactionsComments10 repliesExercise
Parkinson’s Holiday Stress and How to Handle It...The holidays fill my life with a potent mixture of joy and tension. In a conversation with my therapist, I recently explained some of the obvious reasons for my joy:...Reactions0reactionsComments1 comments
Finding provider in US from abroad...Hello, I am living in eastern Europe and will be in the states this upcoming summer-fall. I was hoping for some advise on finding a motion disorder specialist that I...Reactions0reactionsComments3 repliesCaregivers & Care PartnersDiagnosisMotor Symptoms
does any1 know when ...ATD, Anti Tremor Device watch will be released...Reactions0reactionsComments0 replies
My husband is having difficulty getting a definitive dx. Is this common?...The neurologist seems in no hurry to give us answers, yet the onset was sudden and severe. My husband has been unable to walk for 6 months, it took 3...Reactions0reactionsComments1 repliesDiagnosisParkinsonism
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
A Confusing And Unexpected Journey...I was diagnosed 4 1/2 years ago. As I look back, my PD started a long time ago. My many doctors could never put it all together. And they still...Reactions0reactionsComments6 comments
Swaying while standing...I have been recently diagnosed, and I am noticing that I sway when I stand still. Is this a sign of Parkinsons?...Reactions0reactionsComments8 repliesSymptoms
The Parkinson's Dyskinesia and Tremors Groove...I love music. It defines my life, and frankly, I can’t have enough musical mixes to express who and where I am. Let’s not forget the jams. As the band...Reactions0reactionsComments6 comments
My Parkinson's Life at Its Best...Surely, we all know how the conversation goes when looking at a glass that is half-filled. I think there is a comparison between seeing the glass as half-full or half-empty...Reactions0reactionsComments3 comments
Massage Chair...My doctor has written me an order for a Therapeutic \ Massage Chair. Has anyone been able to find a vendor \ supplier that works with insurance ? Thanks in...Reactions0reactionsComments3 repliesAssistive DevicesExercise