Busy mom with no time for PD...I am a single mom, and until this year, I worked full-time. I was diagnosed in 2015 (at age 48) with young-onset PD. I hid the disease at work until...Reactions0reactionsComments4 comments
Icebergs Ahead: The Weight Beneath Our Surface...When I taught English, one of the greatest challenges was to explain irony. To be funny, I would say that it’s the opposite of every example Alanis Morrissette sang about...Reactions0reactionsComments0 comments
What ever you do don't let it get you down always think there is someone worse than me down the road ...One thing is shore when you have Parkinson's is always make shore you get all what the doctors are doing and saying to you make shore you understand it if...Reactions0reactionsComments1 repliesAcceptance
Share the truth about Parkinson's disease...Currently, there are an estimated 1 million people in the United States living with PD. To better understand the patient/caregiver experience and realities of Parkinson's disease, we are fielding our...Reactions0reactionsComments0 repliesAwareness
How to manage hot flashes. Of late the intensity and duration has increased ...My sister has Hemiparkinsonism for last 5-6 years on Levodopa/ Carbidopa TDS. She is 75 years old. Of late my sister has started getting hot flashes on face and upper...Reactions0reactionsComments2 replies
What are member's experiences with the drug Rasagiline...I have just started taking Rasagiline (.5 mg for 2 weeks, then 1 mg) to see if it will help with my brain fog/disconnect and maybe my tremors. I am...Reactions0reactionsComments8 repliesMotor SymptomsNon-Motor SymptomsTreatment
Parkinson's is Snatching My Body Piece by Piece...I dreamt last night that I was losing my abilities - one piece of my body at a time. Like the old joke, "How do you eat a whole elephant?...Reactions0reactionsComments47 comments
Building Medical Relationships...When I was a kid, the first dentist that I went to had a very harsh Germanic sounding name. Being a kid who quickly came to despise his rough tooth...Reactions0reactionsComments3 comments
My Dad's Relationship to Parkinson’s Depression and Anxiety..."I don’t think I’m depressed," Dad tells me one afternoon over the phone: "I know that people with Parkinson’s often suffer from depression. But I don’t think I have that...Reactions0reactionsComments2 comments
Recently diagnosed with PD...Stay positive. Register yourself with myagedcare if you are an Australian citizen. You can ask myagedcare to send an OT to visit you and assess your situation. OT should guide...Reactions0reactionsComments2 comments
Perplexed at my sleeping patterns -- I have REM-SBD & Sleep apnea...I'm responding in a way that might seem strange at first - but I have a deep concern I can't make sense of. I got a health tracker (Fitbit) for...Reactions0reactionsComments6 replies
I am not frightened...I work part time at CVS pharmacy. I am not ashamed of who I am, as a matter of fact my name tag states I have Parkinson's and had DBS...Reactions0reactionsComments1 replies
Pierangelo...I am 71 got diagnosed with Parkinson's 4 months ago approx. It's very scary in the first month looking at the different stages one can go through. After a month...Reactions0reactionsComments5 comments
Resolutions Versus Intentions...Years ago I would spend the months before New Year's Day trying to come up with a resolution or two that would help improve the quality of my life for...Reactions0reactionsComments5 comments
On Attending a Wedding with Parkinson’s Disease...Most of my relatives scattered around the Boyne Mountain Clock Tower with a drink in hand on a foggy evening. We were swaying to the music, celebrating my brother’s new...Reactions0reactionsComments5 comments
Being on my own with parkinson ...I was diagnosed with parkinson and angina and heart disease and some other problems I find it hard since my wife died and being on my own because we never...Reactions0reactionsComments5 repliesAcceptance
PD with no meds...I was diagnosed 11 years ago. I have tried Carb/Levo multiple times but found the side effects worse than the PD symptoms. Anybody else?...Reactions0reactionsComments15 repliesSide Effects
Getting Ready For a Good Night's Sleep with an Adjustable Bed...Recently, preparing for bed has been getting more and more difficult. I have had Parkinson's disease (PD) for almost 2 years. At times, I use a cane or rollator. I...Reactions0reactionsComments8 comments
Sloths...I have come to the conclusion that is with Parkinson’s are the sloths of the human race! I'm not saying that as a bad thing! I think sloths are cute!...Reactions0reactionsComments4 comments
Diagnosis and meds...I have always been right side dominant...right handed, my bedside and kitchen set up with pens, books, can openers, flashlights and other necessary tools kept where I can see and...Reactions0reactionsComments1 comments
