Strengthening your vocal chords ...Has anyone used a karaoke app to provide vocal exercise? If so which one have you used? Thanks! Suzanne...Reactions0reactionsComments3 repliesTreatmentExercise
A change in diagnosis ...I was just informed by a neurologist (Not a PD neurologist) that I do not have PD. I was floored how can this Dr who has never met me,read any...Reactions0reactionsComments2 replies
It's a Thin Line...“There is nothing more painful in life than watching someone you love suffer, and not being able to do anything about it”. I love my mother, but I hate Parkinson's...Reactions0reactionsComments6 comments
Protective eyeware or masks to use while sleeping...I occasionally act out my dreams while sleeping and sometimes this involves semi-agressive behavior like punching myself in the face. I'm especially worried about my eyes. Anyone have these symptoms...Reactions0reactionsComments10 replies
What would you be looking for in an information leaflet?...Hi, I'm a physiotherapy student who is making a leaflet for people with Parkinsons about exercise. I was wondering what you as a person with Parkinsons, or a loved one...Reactions0reactionsComments4 repliesExerciseAwarenessCoping
Getting Off The Couch Is Hard...Why should I get off the couch? It’s comfy. According to the Parkinson’s Outcomes Project, "people with Parkinson's disease who start exercising earlier in their disease course for a minimum...Reactions0reactionsComments8 comments
Living with Parkinson's Disease Is No Walk in the Park...Let’s get real ... living with Parkinson’s disease (PD) is no walk in the park (pardon my pun.) Parkinson’s disease is a serious chronic, progressive, and debilitating disease. It is...Reactions0reactionsComments4 comments
The Big Questions...Can anyone answer the questions we all ask? When 2 people with Parkinson’s disease (PD) meet, the conversation usually unfolds in a fairly predictable manner. The novice wants the veteran...Reactions0reactionsComments4 comments
Tremor control ...60 yo make. Dad had Parkinson's. I seem to be "pill rolling" a lot lately, but not sure if it's just a nervous tic. ( I'm ADHD too). The finger...Reactions0reactionsComments2 repliesMotor Symptoms
How to decide best dose of Clozapine when both options are bad....How to choose between happy and sedated or night terrors , hallucinations but more alertness during day, better mobility and strength? The hallucinations are horrific....Reactions0reactionsComments2 repliesHallucinationsCognitive IssuesSleep
Medication daily or only when you think you will need it? So many questions....I was diagnosed with Parkinson's 2 years ago after having a DAT scan. I lost my left arm swing, suffer from rigidity, and have trouble with my left leg. My...Reactions0reactionsComments2 repliesNewly Diagnosed
constipation...I went to the ER for no bowel movement for several days. Long story short sent me home with Senna and stool softener taking it for 3 days still nothing...Reactions0reactionsComments1 replies
Feeling isolated...Does anyone else feel like people avoid you since you got your diagnosis? I was diagnosed in June of 2022, and calls and invites from friends have really decreased. I...Reactions0reactionsComments4 replies
Tingling in fingers...Anyone else suffering from this can be quite painful at times...Reactions0reactionsComments3 replies
Light headedness with PD...My mom is experiencing light headedness almost every day. The doc thinks its PD itself, not meds, and her blood pressure is fine. Anyone have experience with this and found...Reactions0reactionsComments6 repliesNon-Motor SymptomsSymptoms
Clinging to Creature Comforts...The blue light flickers in the living room, projecting pictures of real-time news events one evening. I know that it’s my dad who’s sitting in the chair in the darkness...Reactions0reactionsComments8 comments
Ms...I am 62years of age and was diagnosed with Progressive Supranuclear Palsy in March 2022. I fear I have what I think of as Galloping Parkinson's as my meds seem...Reactions0reactionsComments6 replies
Brain/Body Connection and Parkinson's...I've had a long time to witness the worsening of the "normal" connection between what my brain wants to do and what my body actually does or how quickly it...Reactions0reactionsComments8 comments
The Enlightened Mr. Parkinson, a biography....A while ago I found a second-hand copy of the biography of Mr Parkinson by Cherry Lewis. Mr Parkinson was an amazing character, trained as an apothecary, then a surgeon...Reactions0reactionsComments1 repliesTips & Advice
Stop Judging Me!...At last, after holding her breath with worry for half a year, Posy was on her way to Florida to visit her lovely, but very poorly daughter. Posy and her...Reactions0reactionsComments3 comments
