Stuck between a rock and a hard place/disability...My husband is only 50 years old. He is experiencing a lot of symptoms and is now on 3 types of meds. They are helping but a lot of his...reactions3repliesTreatmentInsurance & Disability
Morning low dopamine levels...My wife has had parkinson's for 5 years now and is taking one 25/100 Carbidopa Levodopa every 3 to 3 1/2 hours to take the edge off bad tremors and...reactions4repliesTreatmentSleepMotor Symptoms
One Minute Cure...Hello, I just finished reading “the one minute cure”. It sounds too good to be true. Does anyone have expectations or familiarity with this protocol? Is it a scam? I...reactions3repliesTreatment
How Does Your Parkinson's Support Group Grow?...I was not sure about participating in a support group after my Parkinson’s diagnosis. I had met only one person with Parkinson's disease (PD), and he did not go to...reactions4comments
Tremor dominant PD...Can anyone tell me how bad this can get? I know everyone varies, but I was only diagnosed yesterday and need as much information as I can get...reactions24repliesDiagnosisMotor Symptoms
Strengthening your vocal chords ...Has anyone used a karaoke app to provide vocal exercise? If so which one have you used? Thanks! Suzanne...reactions3repliesTreatmentExercise
A change in diagnosis ...I was just informed by a neurologist (Not a PD neurologist) that I do not have PD. I was floored how can this Dr who has never met me,read any...reactions2replies
It's a Thin Line...“There is nothing more painful in life than watching someone you love suffer, and not being able to do anything about it”. I love my mother, but I hate Parkinson's...reactions6comments
Protective eyeware or masks to use while sleeping...I occasionally act out my dreams while sleeping and sometimes this involves semi-agressive behavior like punching myself in the face. I'm especially worried about my eyes. Anyone have these symptoms...reactions10replies
What would you be looking for in an information leaflet?...Hi, I'm a physiotherapy student who is making a leaflet for people with Parkinsons about exercise. I was wondering what you as a person with Parkinsons, or a loved one...reactions4repliesExerciseAwarenessCoping
Getting Off The Couch Is Hard...Why should I get off the couch? It’s comfy. According to the Parkinson’s Outcomes Project, "people with Parkinson's disease who start exercising earlier in their disease course for a minimum...reactions8comments
Living with Parkinson's Disease Is No Walk in the Park...Let’s get real ... living with Parkinson’s disease (PD) is no walk in the park (pardon my pun.) Parkinson’s disease is a serious chronic, progressive, and debilitating disease. It is...reactions4comments
The Big Questions...Can anyone answer the questions we all ask? When 2 people with Parkinson’s disease (PD) meet, the conversation usually unfolds in a fairly predictable manner. The novice wants the veteran...reactions4comments
Tremor control ...60 yo make. Dad had Parkinson's. I seem to be "pill rolling" a lot lately, but not sure if it's just a nervous tic. ( I'm ADHD too). The finger...reactions2repliesMotor Symptoms
How to decide best dose of Clozapine when both options are bad....How to choose between happy and sedated or night terrors , hallucinations but more alertness during day, better mobility and strength? The hallucinations are horrific....reactions2repliesHallucinationsCognitive IssuesSleep
Medication daily or only when you think you will need it? So many questions....I was diagnosed with Parkinson's 2 years ago after having a DAT scan. I lost my left arm swing, suffer from rigidity, and have trouble with my left leg. My...reactions2repliesNewly Diagnosed
constipation...I went to the ER for no bowel movement for several days. Long story short sent me home with Senna and stool softener taking it for 3 days still nothing...reactions1reply
Feeling isolated...Does anyone else feel like people avoid you since you got your diagnosis? I was diagnosed in June of 2022, and calls and invites from friends have really decreased. I...reactions4replies
Tingling in fingers...Anyone else suffering from this can be quite painful at times...reactions3replies
Light headedness with PD...My mom is experiencing light headedness almost every day. The doc thinks its PD itself, not meds, and her blood pressure is fine. Anyone have experience with this and found...reactions6repliesNon-Motor SymptomsSymptoms
