The Other Side Of Parkinson’s...The name of the other individual in this piece and the location of our meeting has been changed to protect his identity. As still a smoker (yes, I know), I...Reactions0reactionsComments5 comments
Dystonia in the feet and toes...My husband broke some toes on his left foot. With his dystonia, the foot cramps so hard that the toes are not healing. Is there anything that can keep his...Reactions0reactionsComments11 repliesTreatmentTips & AdviceHealthcare Team
Pitting oedema...I’ve had PD for 30+ years and received DBS 7 years ago. I’ve been bothered by marked pitting oedema in both ankles. Has anyone else noticed this? I’m also on...Reactions0reactionsComments0 replies
3 Important Things I’ve Learned from Parkinson’s Disease...One of the most important things my dad’s Parkinson’s disease diagnosis provided me with is perspective. It is easy for me to lose sight of the things that are most...Reactions0reactionsComments3 comments
Mr D...My ongoing story. Life with P.D. Some days I want to quit. Take today, please. I am sick and tired. Get on my home bike. I am uninterested. How long?...Reactions0reactionsComments3 replies
Madopar not working ...I'd be very grateful for comments on this. I was diagnosed with PD in June and prescribed Madopar. It simply isn't working for me. I've had a DaT scan (...Reactions0reactionsComments0 repliesDiagnosis
My Battle with Parkinson's Disease Fatigue...I have Parkinson's disease (PD) and suffer from fatigue. My battle with PD-related fatigue is described as the type of total exhaustion that makes you unable to move, as though...Reactions0reactionsComments7 comments
Tremors...Does anyone have any ideas of why tremors stop when we sleep?...Reactions0reactionsComments1 replies
What Is the Social Health Network Community?...Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health...Reactions0reactionsComments0 comments
Posterior Vitreous Detachment...Does anyone have any info and/or experience on the long-term prognosis for this disorder? Needless to say, it is a huge inconvenience and quite demoralizing considering all of the other...Reactions0reactionsComments2 replies
Bone Density Scans & Osteoporosis...Recently, we received an email from a community member wanting to bring up the topic of bone density and osteoporosis in people with Parkinson's. Here's what she said: "A friend...Reactions0reactionsComments6 replies
Caregiving...So recently becoming the full time caregiver to my wife who recently had some trauma (Broke Humorous in a fall) Escalated her pd & dementia To the point of now...Reactions0reactionsComments3 repliesCaregivers & Care PartnersCoping
Are siblings and family members not being able to deal...Sent from my iPad On Nov 23, 2022, at 1:42 PM, Michael Ryan...Reactions0reactionsComments1 replies
New Thanksgiving Traditions...When we were newlyweds, we would drive from Long Island to my childhood home in New Jersey. My older sister and family came up from Virginia. My 2 younger siblings...Reactions0reactionsComments1 comments
Reflecting on Aging with Parkinson's...Posy has had an incredibly joyful month full of playing in concerts, composing and directing songs for entertainments, and attending super parties. She has reveled in the compliments and the...Reactions0reactionsComments3 comments
Advice for new DBS-patients...I was diagnosed having Parkinson’s in 2010, and started taking medicines immediately. At first they worked well, but years went by and I needed more and more levodopa and carbidopa...Reactions0reactionsComments3 comments
Dreams, Nightmares, and Parkinson’s...What can be done about bad dreams and nightmares? I have had recurring nightmares from 2 events that happened in my mid-20s. My nightmares repeat on a frequent but erratic basis...Reactions0reactionsComments4 comments
Faking It...Posy wonders if she is a fraud. There is definitely something wrong with Posy. Well, there has been for a long while, actually. If you have been following her blogs...Reactions0reactionsComments7 comments
How I Manage Drooling, Saliva, and GERD in Parkinson’s...Some people with Parkinson's disease develop excessive drooling, the medical term is sialorrhea. I am a speech pathologist who has Parkinson's disease. I have also evaluated and treated many people...Reactions0reactionsComments6 comments
Women and Parkinson's ...Hi everyone, my names Cara. I'm a 4th year design student at NSCAD University in Halifax, Nova Scotia. For my final design project, I'm working on developing a digital product...Reactions0reactionsComments2 repliesResearch & Clinical TrialsYoung Onset (YOPD)Healthcare Team
