Clinging to Creature Comforts...The blue light flickers in the living room, projecting pictures of real-time news events one evening. I know that it’s my dad who’s sitting in the chair in the darkness...reactions8comments
Ms...I am 62years of age and was diagnosed with Progressive Supranuclear Palsy in March 2022. I fear I have what I think of as Galloping Parkinson's as my meds seem...reactions6replies
Brain/Body Connection and Parkinson's...I've had a long time to witness the worsening of the "normal" connection between what my brain wants to do and what my body actually does or how quickly it...reactions8comments
The Enlightened Mr. Parkinson, a biography....A while ago I found a second-hand copy of the biography of Mr Parkinson by Cherry Lewis. Mr Parkinson was an amazing character, trained as an apothecary, then a surgeon...reactions1replyTips & Advice
Stop Judging Me!...At last, after holding her breath with worry for half a year, Posy was on her way to Florida to visit her lovely, but very poorly daughter. Posy and her...reactions3comments
Busy mom with no time for PD...I am a single mom, and until this year, I worked full-time. I was diagnosed in 2015 (at age 48) with young-onset PD. I hid the disease at work until...reactions4comments
Icebergs Ahead: The Weight Beneath Our Surface...When I taught English, one of the greatest challenges was to explain irony. To be funny, I would say that it’s the opposite of every example Alanis Morrissette sang about...reactionscomments
What ever you do don't let it get you down always think there is someone worse than me down the road ...One thing is shore when you have Parkinson's is always make shore you get all what the doctors are doing and saying to you make shore you understand it if...reactions1replyAcceptance
Share the truth about Parkinson's disease...Currently, there are an estimated 1 million people in the United States living with PD. To better understand the patient/caregiver experience and realities of Parkinson's disease, we are fielding our...reactionsrepliesAwareness
How to manage hot flashes. Of late the intensity and duration has increased ...My sister has Hemiparkinsonism for last 5-6 years on Levodopa/ Carbidopa TDS. She is 75 years old. Of late my sister has started getting hot flashes on face and upper...reactions2replies
What are member's experiences with the drug Rasagiline...I have just started taking Rasagiline (.5 mg for 2 weeks, then 1 mg) to see if it will help with my brain fog/disconnect and maybe my tremors. I am...reactions8repliesMotor SymptomsNon-Motor SymptomsTreatment
Parkinson's is Snatching My Body Piece by Piece...I dreamt last night that I was losing my abilities - one piece of my body at a time. Like the old joke, "How do you eat a whole elephant?...reactions47comments
Building Medical Relationships...When I was a kid, the first dentist that I went to had a very harsh Germanic sounding name. Being a kid who quickly came to despise his rough tooth...reactions3comments
My Dad's Relationship to Parkinson’s Depression and Anxiety..."I don’t think I’m depressed," Dad tells me one afternoon over the phone: "I know that people with Parkinson’s often suffer from depression. But I don’t think I have that...reactions2comments
Recently diagnosed with PD...Stay positive. Register yourself with myagedcare if you are an Australian citizen. You can ask myagedcare to send an OT to visit you and assess your situation. OT should guide...reactions2comments
Perplexed at my sleeping patterns -- I have REM-SBD & Sleep apnea...I'm responding in a way that might seem strange at first - but I have a deep concern I can't make sense of. I got a health tracker (Fitbit) for...reactions6replies
I am not frightened...I work part time at CVS pharmacy. I am not ashamed of who I am, as a matter of fact my name tag states I have Parkinson's and had DBS...reactions1reply
Pierangelo...I am 71 got diagnosed with Parkinson's 4 months ago approx. It's very scary in the first month looking at the different stages one can go through. After a month...reactions5comments
Resolutions Versus Intentions...Years ago I would spend the months before New Year's Day trying to come up with a resolution or two that would help improve the quality of my life for...reactions5comments
On Attending a Wedding with Parkinson’s Disease...Most of my relatives scattered around the Boyne Mountain Clock Tower with a drink in hand on a foggy evening. We were swaying to the music, celebrating my brother’s new...reactions5comments
