Irregular blood pressure...My father (age 85) has parkinsons for last 10 years now. so far the medication has been helping to keep things in control, other than few side effects like constipation...Reactions0reactionsComments5 repliesSymptomsSide Effects
Do You Have a Mentor?...Are you a motivator? Sometimes, when Posy feels particularly low, she finds it difficult to be a cheerleader for others. Yet, many wonderful people with horrible diseases carry on inspiring...Reactions0reactionsComments2 comments
I Don’t Identify as Disabled...In 2021, I sat down with a psychiatrist who asked me a series of questions before giving me a diagnosis. She told me that I have post traumatic stress disorder...Reactions0reactionsComments4 comments
The Right to Grrr...Somewhere in the midst of colonoscopy prep, I realized I had enough. Like many people with Parkinson’s, when I don’t eat, I get HANGRY (i.e GRRR). Starting Monday at noon...Reactions0reactionsComments4 comments
Newly sufferig from Parkinsons'....This is in response to a question from Chris - Tips on coping with the effects of suffering from Parkinson's as a new sufferer. Hello Chris. I am also a...Reactions0reactionsComments3 replies
Dentist visit and strange reaction to pain blockers...I made a scheduled trip to the dentist to have an old filing replaced. They used a nerve pain blocker on my upper jaw and things were going well. I...Reactions0reactionsComments10 repliesSymptoms
I have trouble getting out of bed...I just bought an electric bed. However, I use to use a quarter side rail and I was able to get to a sitting position by myself However, now I...Reactions0reactionsComments5 repliesAssistive DevicesTips & Advice
Just starting Sinemet. How long for effect?...Hi, My wife's neurologist ordered several imaging tests to rule out tumors or other spine/brain issues. A different test showed dopamine was about 2 standard deviations below average for my...Reactions0reactionsComments2 replies
The Worst Hour of Every Day!...If I could just skip the first hour of every day - the "waking up/getting up hour," my life would be totally different and so much more positive and hopeful...Reactions0reactionsComments13 comments
I wish I could play my guitar better...My name is Gary Michael Mazzola. I’m a Singer/songwriter and Actor/Director and I live in Tehachapi, CA. I was first diagnosed with Parkinson’s Disease in 2012, but I probably had...Reactions0reactionsComments4 comments
Who Is Behind the Facial Mask, Kemosabe?...Behind that facial mask, Kemosabe may be the Lone Ranger of Parkinson’s disease (PD). I am a speech pathologist who has Parkinson's. I have treated many patients in my practice for...Reactions0reactionsComments8 comments
Recently Diagnosed with Parkinson's Disease...It's been approximately a year now that I started noticing tremors in my right hand and arm. Within the last 2 months went to a neurologist who set me up...Reactions0reactionsComments3 comments
Wellbeing: What a Difference a Dog Makes!..."All you need is Love"... well, plus food, shelter, and mountains of pills! Posy feels we should all own a dog. Not only does a dog motivate its owner to...Reactions0reactionsComments6 comments
Tremor ...Has anyone had any success in reducing tremor?...Reactions0reactionsComments4 repliesSymptoms
Acceptance...This quote from one of the ISCKON guru has changed my life. Do u have a problem -Yes-can i do something about it-Yes-why worry Do u have a problem -Yes-can...Reactions0reactionsComments3 replies
Problems with an MRI...I went for an MRI the other day and I know that I was not moving, but the technician kept telling me that I was moving. I realized that maybe...Reactions0reactionsComments1 replies
My wife has parky...Cut a long story short. She is on a duodopa pump for 1 year. She gets a burning sensation in her tummy. Any suggested remedies? We are available for info...Reactions0reactionsComments2 replies
PD Attacking my eyes...About 6 years ago (around same time I was diagnosed with PD), I had surgery on my eye lids to reduce droopy eyes. Well the surgery went well, but about...Reactions0reactionsComments2 replies
Dr’s Orders...I found out in 2018 that I had Parkinson’s. I was recommended a Dr at Shane’s University of Florida Gainesville by my orthopedic Dr. After evaluation I was prescribed carbidopa/levodopa...Reactions0reactionsComments1 comments
International Travel with PD...One of my passions is traveling, especially foreign travel. Every year for the past 16 years, I have taken a trip overseas. For 12 of those years, I’ve learned to...Reactions0reactionsComments6 comments
