How Does Your Parkinson's Support Group Grow?...I was not sure about participating in a support group after my Parkinson’s diagnosis. I had met only one person with Parkinson's...reactions4comments
Tremor dominant PD...Can anyone tell me how bad this can get? I know everyone varies, but I was only diagnosed yesterday and need as...reactions24repliesDiagnosisMotor Symptoms
Strengthening your vocal chords ...Has anyone used a karaoke app to provide vocal exercise? If so which one have you used? Thanks! Suzanne...reactions3repliesTreatmentExercise
A change in diagnosis ...I was just informed by a neurologist (Not a PD neurologist) that I do not have PD. I was floored how can...reactions2replies
It's a Thin Line...“There is nothing more painful in life than watching someone you love suffer, and not being able to do anything about it”.I...reactions6comments
Protective eyeware or masks to use while sleeping...I occasionally act out my dreams while sleeping and sometimes this involves semi-agressive behavior like punching myself in the face. I'm especially...reactions10replies
What would you be looking for in an information leaflet?...Hi, I'm a physiotherapy student who is making a leaflet for people with Parkinsons about exercise. I was wondering what you as...reactions4repliesExerciseAwarenessCoping
Getting Off The Couch Is Hard...Why should I get off the couch? It’s comfy. According to the Parkinson’s Outcomes Project, "people with Parkinson's disease who start exercising...reactions8comments
Living with Parkinson's Disease Is No Walk in the Park...Let’s get real ... living with Parkinson’s disease (PD) is no walk in the park (pardon my pun.) Parkinson’s disease is a...reactions4comments
The Big Questions...Can anyone answer the questions we all ask? When 2 people with Parkinson’s disease (PD) meet, the conversation usually unfolds in a...reactions4comments
Tremor control ...60 yo make. Dad had Parkinson's. I seem to be "pill rolling" a lot lately, but not sure if it's just a...reactions2repliesMotor Symptoms
How to decide best dose of Clozapine when both options are bad....How to choose between happy and sedated or night terrors , hallucinations but more alertness during day, better mobility and strength? The...reactions2repliesHallucinationsCognitive IssuesSleep
Medication daily or only when you think you will need it? So many questions....I was diagnosed with Parkinson's 2 years ago after having a DAT scan. I lost my left arm swing, suffer from rigidity...reactions2repliesNewly Diagnosed
constipation...I went to the ER for no bowel movement for several days. Long story short sent me home with Senna and stool...reactions1reply
Feeling isolated...Does anyone else feel like people avoid you since you got your diagnosis? I was diagnosed in June of 2022, and calls...reactions4replies
Tingling in fingers...Anyone else suffering from this can be quite painful at times...reactions3replies
Light headedness with PD...My mom is experiencing light headedness almost every day. The doc thinks its PD itself, not meds, and her blood pressure is...reactions6repliesNon-Motor SymptomsSymptoms
Clinging to Creature Comforts...The blue light flickers in the living room, projecting pictures of real-time news events one evening. I know that it’s my dad...reactions8comments
Ms...I am 62years of age and was diagnosed with Progressive Supranuclear Palsy in March 2022. I fear I have what I think...reactions6replies
Brain/Body Connection and Parkinson's...I've had a long time to witness the worsening of the "normal" connection between what my brain wants to do and what...reactions8comments