My husband is having difficulty getting a definitive dx. Is this common?...The neurologist seems in no hurry to give us answers, yet the onset was sudden and severe. My husband has been unable to walk for 6 months, it took 3...reactions1replyDiagnosisParkinsonism
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team to manage your condition. However, there are other...
A Confusing And Unexpected Journey...I was diagnosed 4 1/2 years ago. As I look back, my PD started a long time ago. My many doctors could never put it all together. And they still...reactions6comments
Swaying while standing...I have been recently diagnosed, and I am noticing that I sway when I stand still. Is this a sign of Parkinsons?...reactions8repliesSymptoms
The Parkinson's Dyskinesia and Tremors Groove...I love music. It defines my life, and frankly, I can’t have enough musical mixes to express who and where I am. Let’s not forget the jams. As the band...reactions6comments
My Parkinson's Life at Its Best...Surely, we all know how the conversation goes when looking at a glass that is half-filled. I think there is a comparison between seeing the glass as half-full or half-empty...reactions3comments
Massage Chair...My doctor has written me an order for a Therapeutic \ Massage Chair. Has anyone been able to find a vendor \ supplier that works with insurance ? Thanks in...reactions4repliesAssistive DevicesExercise
Why Can't We Solve the Puzzle?..."Parkies’ Progress" Posy likes her little play on words, but she is also trying to draw a parallel between the Christian allegory "Pilgrim’s Progress" (by John Bunyan, 1678) and the...reactions6comments
Stretches to help relieve tension 🌷...https://youtu.be/rQFCUvhSBUg...reactionsrepliesExercisePositivityNewly Diagnosed
All I Want for Christmas...Two years after being diagnosed with Parkinson’s disease, my children were disappointed that I could not tell them what I wanted for Christmas. There truly was nothing I wanted or...reactions5comments
Parkinson’s and the Evolution of Phil 2.0...I’ve just turned 80 and I’m not the person I used to be. I suppose that statement is an oxymoron. Not so many years ago, I was quite comfortable, retired with...reactions6comments
Sleep meds and parkinsons ...My MIL is 84 years old and sleeping 2-3 hours at a time throughout the night. She doesn't act out her dreams, have RLS, or tremors, no typical parkinsons symptoms...reactions4repliesCaregivers & Care PartnersHealthcare TeamSleep
Levodopa reaction...I’m a little jealous after reading so much about how Sinimet helps everybody. My neurologist has tried me on it & with increased carbodopa but I can’t tolerate it. She...reactions5repliesSymptoms
Having a Urinary Tract Infection and Parkinson's...In my 72 years, I never had a urinary tract infection (UTI). So, for the past several weeks I just attributed my symptoms to Parkinson's disease (PD). I have a...reactions8comments
Hi, I’m Jane, a bit about me...I’ve had Parkinson’s for about 4 years now. I take Madopar. But I’ve also got osteoarthritis in my lower back. I’ve had this problem longer and this causes me a...reactions9comments
What Do Most Parkinson's Patients die from?...My mother had PD and died from pneumonia in 1994 caused by aspiration of food. That was before the various pneumonia vaccines we have now were available. Today, what do...reactions3replies
PEG...My brother who has had pd in the mouth of for nearly 14 years and has 4 weeks ago had the peg procedure and is now using this new system...reactions2replies
Navigating Parkinson's ...What exactly does a social worker do? I see people recommend getting in touch w one to "help w things" but I never hear what those "things" are. Some work...reactions1replyTreatmentHealthcare TeamCaregivers & Care Partners
Farnesol...According to an article, farnesol, a plant-based substance has been shown to reverse PD in mice & is being researched at John’s Hopkins. Something to do with stopping the destructive...reactionsreplies
