Hi, I’m Jane, a bit about me

By Janeharry

1 min read

I’ve had Parkinson’s for about 4 years now. I take Madopar. But I’ve also got osteoarthritis in my lower back. I’ve had this problem longer and this causes me a lot of pain. Sciatica has been really getting me down lately, so the doctor sent me to hospital for an X-ray.

They said I had a condition called osteitis pubis, which is inflammation of the pelvis saying it would take up to three months to get better. I can hardly stand long for the pain in my right leg makes it difficult to do much of the routine housework.

I’m so grateful that my husband does most of the cooking and the other household jobs at the moment, but he is older than me. I have to keep sitting down when my leg is painful.

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norwegianbabe73 Member
I have Parkinson’s and osteoporosis! And it can be a pain! I get infusion once a year of reclast avd I believe that it has helped me not to get broken bones abd to heal faster when I have broken a bone because of falling! <inline-mention username="vinnyk" user-id="3076000"/>
Thea Destephano Member
Janeharry Im sorry you have to struggle with osteoarthritis as well as the challenges of Parkinson’s. I also Have severe osteoarthritis in my lower back and both knees and am seeing pain management for hopefully some relief. You are fortunate to have such a helpful and caring husband . When you need to rest your leg do so without feeling guilty. The housework will still be there. Sometimes we just have to adjust our standards.I am sure 3 months seems like a very long time . Thank you for sharing your story with us . Thea DeStephano Community Team Member
1. Janeharry Member
 <inline-mention username="Thea Destephano" user-id="3102381"/> I’m sorry if you didn’t get my message Thea but I’m still getting used to how to use this, I write a reply and then some how lose it before I can get it s ent? It very frustrating. Will try again sometime
Thea Destephano Member
I totally understand.I am not very adept at anything technical. I always seem to end up somewhere I didn’t intend to be. Have a Happy New Year! Thea
Lorraine Wilson Member
<inline-mention username="Janeharry" user-id="3078733"/> and <inline-mention username="Thea Destephano" user-id="3102381"/> , Thank you two for the honesty, compassion, and care that helps all of us whether we are talking about PD or trying to share information and encourage each other online. Woohoo! We are versatile 😀 !
Thea Destephano Member
Janeharrry. How are you doing? Have you been getting any relief from your condition at all? I am undergoing treatment for pain management in my knees and they can only do one at once so I am looking at a time frame of 6 months. I understand how frustrated you must be. The time is passing quickly for you now and hopefully you will get some relief soon. Please let me know how you are doing.Our community cares about you. Thea 
1. Janeharry Member
 <inline-mention username="Thea Destephano" user-id="3102381"/> Hi Thea, Thanks for your interest. I’ve been in.quite a bit of pain with my leg, it doesn’t seem to be getting any better at the moment. You sound has though you are really suffering with the pain in your knees also. It’s not much fun for us at the moment. We just do the best we can that’s all we can do. Wishing you all the best. Jane
Thea Destephano Member
Thanks Jane.The ablation on my right knee seems to be helping but very little. I am not sure what the next step will be. Need to have the left one done first down the line.
1. CommunityMemberbae6dd Member
 I also have multiple issues with my body ie spinal I have a broken humerus so my right arm is virtually useless now on top of all my problems I have been diagnosed with early parkinsons which is affecting my walking the main problem being freezing. I have had a good rant now so I will be off!!