What would you be looking for in an information leaflet?
Hi, I'm a physiotherapy student who is making a leaflet for people with Parkinsons about exercise. I was wondering what you as a person with Parkinsons, or a loved one of someone with Parkinsons would like to see in a leaflet?
Thanks in advance!😀
Personally beyond emphasizing how important any form of exercise is that
consistency is of utmost value. Sticking to a regular routine helps slow progression of the disease and gives one the feeling of accomplishment.Everyone has a different level of ability according to their symptoms and even 10 minutes is better than none. Finding what works for you so that you will do it is important and you may find that 10 minutes expanding
to 15 to 20 as you become stronger. Even doing laps around the house counts with a rollater if you cannot walk unassisted outdoors. Bed stretching and seated exercises also have their place.There is something for everyone, just keep moving. Thea DeStephano
Community Team MemberThank you so much Thea! I'll be sure to incorporate this into the leaflet, particularly about consistency and the feeling of accomplishment - really valuable insight! 😀
The leaflet should be positive and reinforce the growing immense studies (in animal models and now in human clinical trials) that exercise is medicine for treating Parkinson's. Keep doing whatever exercise you enjoy, just keep moving. The recommendations in the U.S. have been updated, and it is seriously a lot of exercises. I recently described the recommended exercises this way for another publication:
•Aerobic exercise– Plan three days per week for 20-30 minutes per session of continuous movement at a moderate (50-70% HR max) to vigorous intensity (70-85% HR max).
•Strength training– Plan two to three non-consecutive days per week at 20-30 minutes per session to strengthen the major muscle groups using resistance, speed, or power focus.
•Balance– Plan to practice maintaining one’s balance at least two to three days per week.
•Stretching– Plan to stretch daily, and if possible, several times per day..
Always have a medical disclaimer to discuss any new exercise program with their Neurologist before beginning any exercise program/routine.
Your idea to make this leaflet is admirable, good luck. Frank Church for the PD.net-Team
I am glad to read about ypur interest in Parkinson's and the task you wish to complete. ACSM has a great information piece on exercise and PD that is informative.
