caret icon Back to all discussions

Tremor dominant PD

Can anyone tell me how bad this can get? I know everyone varies, but I was only diagnosed yesterday and need as much information as I can get

  1. As you said everyone is different and since we are not drs we cannot give medical advice. Hopefully you have a movement disorder specialist that you can discuss this with. In the meantime I would suggest you get in touch with the Davis Phinney Foundation and request their book Every Victory Counts which Is free and a excellent resource for information. Good luck in beginning your research. If we can be of any assistance please let us know. Thea DeStephano Community Team Member

    1. I had no idea there were so few Parkinson’s specialists. I am fortunate to live
      very close to the University of Virginia and go to their movement disorder clinic. I feel as if I get excellent care and am included as part of the team . I am sorry to hear that there are no local specialists.Is travel an option? I know they help with housing and I believe transportation. Please let us know how you are doing. Thea

    2. GIYF e.g. "parkinson mayo" or "parkinson hopkins" find lotsa info

  2. Sunspots Sorry for the misinterpretation of your message. As a retired MD I am sure you have much more knowledge than I do. I hope you can find the information you are seeking.

    1. 10 yrs ago before my PD was diagnosed, I could have tremors on one side of up to 1.5 cm in amplitude. Levodopa controls this relatively well. In time, unfortunately, balance issues can appear, and the solutions are not so good there.

      1. Diagnosed about three years ago with very slight tremor, one side only. After a couple of years, the tremor had become marked enough to be somewhat uncomfortable and created problems with handwriting. Started levodopa about a year ago and that has helped. Exercising 5x weekly (2 RockSteady Boxing, 3 general fitness classes) makes a huge difference. Progression continues to be slow; not the end of the world at this point! But we’re all different — good luck!

        Please read our rules before posting.