Need Advice Dealing With PD...
I have several symptoms of PD with neurofatigue and severe bradykinesia being the hardest to deal with. I've been waiting 2 and a half years to see a neurologist with another year estimated wait time. I can barely walk and I spend most of my day bedridden. I have no family doctor and I live alone. I've been using supplements (L-Tyrosine and Mucuna Puriens) but they do not seem to have any effect. I went to a walk-in clinic begging for meds but was turned away.
I am asking for advice on how to deal with PD when I live alone and I have been unable to get the medical attention nor the meds that I need. I suspect that I'm not the only one in this situation. Any advice or suggestions would be most sincerely appreciated. Many thanks...
I am sorry to hear what you are going through. I truly hope you can get into a doctor sooner than later to get proper treatment. In the meantime, I shared an article on how PD is treated - https://parkinsonsdisease.net/treatment. I also shared information on finding a specialist in your area, just in case it may help you find another doctor while wait for the pending appointment - https://parkinsonsdisease.net/answers/find-a-movement-disorder-specialist. Kindly, Jessica (Team Member)
Thank you for the kind reply. It is most sincerely appreciated. I should specify that I am in Canada. Our healthcare system is on the brink of total collapse. There are over 6 million Canadians who can't get a family doctor. And many doctors and nurses who have retired or just quit their practices are not being replaced. I had to beg and plead with a neurologist not to decline my referral. I'm going to stick with the doctor who now has me on their waiting. The healthcare system is so bad here in Canada that non-Canadians would find it hard to believe. Do a YouTube search and watch the video ' Waiting to Die | Canada's Health Care Crisis'...I am truly sorry to hear what is going on with the Canadian healthcare system. Will continue to send some positive vibes in hopes you get into the doctor sooner than later. In the meantime, please reach out if we can help locate any PD related information. Kindly, Jessica (Team Member)
or this video 'Why the Ineffective Health Care System is DYING in Canada!'
https://www.youtube.com/watch?v=PMqbVfLSxYw
Hello,
"There are over 6 million Canadians who can't get a family doctor."
Being a Canadian myself, I know this is true and I am in that situation.
In which province are you? Anyway:
- go to a major centre, preferably university city
- find the best hospitals there that have "movement disorders center/clinic"
- find the best neurologist __specializing on PD_, or you may be diagnosed late or incorrectly, as I was for a year
Finally, I went to the EMERGENCY of one of the university hospitals here, and I told them I assume I have PD (I was shaking in my boots) and kindly asked to send someone with PD expertise to consult me. They sent a fellow resident, graduate student, who showed up after 4 hours (very busy) but put me through a battery of tests and said I most probably had PD.
Some of the neurologists with PD expertise may work in hospitals, but they may be in private practice. Find them and pay, if you can, more to get in private clinics with shorter waiting times. If you can afford, could also go to the US for a consultation - much shorter times.
Google with
best neurologist in [city name]
on RateMD
and contact to see who does PD and is reputed.
You should get to levocarb/levodopa and safinamide in Canada with prescription.
Perhaps see some of my postings.
Best.
