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Living with Parkinson's

I was diagnosed with Parkinson's in March. Hate this. I've finally accepted it, but I still hate it. Balance is a big thing with me so big that Parkinson's and gravity decided I'd look good on the floor and down I went. Broken hip. Seven months after being diagnosed. My balance is still awful. Have to use a Rollator to get around. I never could face this without Jesus. All I asked Him for was to hold my hand good and tight through this scary Journey I'm on and He's doing it, too. I can actually honestly feel Him with me. Ordinarily I would have caved, but with Divine help I'm really ok. The side effects from this poison meds we have to take has really messed me up. Due to PD and the meds combined I have lost a lot of weight. I only weigh 94 lbs. Stayed that way since March. Dyskenisia has bothered me, too. Hasn't been real bad lately. My feet just start moving of their own accord. I call it my PD dance. People in Walmart look at you like you're from another planet. Family, for the most part, look at you the same way or just don't come around at all. Non supportive bunch. I can deal with it tho. My Faith and Church keep me going. Can't do without my Faith. Physical therapy after the broken hip 2 months ago has not helped my balance at all. I just wish I could walk unaided, but that's not to be. And we won't even discuss the non motor symptoms. My nursing career is over. You can't take care of patients if you can't stand up very long or walk with a Rollator. I sure do miss it. Guess that's all for now. Probably too much, huh? Signing out now. Carol.

  1. My dad had Parkinson’s and up until now I haven’t thought too deeply about it. I’m here now with him and I can see him struggling. Probably fighting a mental battle too. Thank you for your post and encouragement of faith. God is so good. Praying for you.

    1. Hello, I'm sorry to here that your father is experiencing struggles- is there anything we might help you with? My own father is 87 and has Parkinsons and dementia. I'd be more than happy to chat with you if you want to respond to this message or send me a private message.
      Here is an article that I wrote a few months back- may it give you a little sunshine today!
      https://parkinsonsdisease.net/living/positive-moments

      Blessings, Suzanne Troy, ParkinsonsDisease.net team member

  2. Hi Carol, Thanks so much for sharing your story! Other people on our site will benefit from your words of wisdom! I'm sorry that you are experiencing so much! You are so fortunate to have your faith to give you balance! May you keep on moving along! Here is an article that might give you some positive vibes:
    https://parkinsonsdisease.net/living/positive-with-pd
    All the best, Suzanne Troy, ParkinsonsDisease.net team member

    1. Thank you so much. It made my day to get this. With PD our highs are few and far between so this came at just the right time. Hope someone gets something good out of it. Especially the part about Faith. If Jesus didn't have such a strong grip on my hand and life I couldn't face all this, but He's got me and I'm happy. Love Parkinson's.net.Carol.

      1. Thank you for your comment, Carol. I am glad that your faith is at your side daily to help you face life's challenges. Blessings, Marc M., Moderator, parkinsonsdisease.net

      2. You are welcome Carol! Blessings on your day! Please keep in touch to let us know how you are doing or if we can share any resources with you.
        All the best, Suzanne T.

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