Lewy Body Dementia C/L meds...My dad has been on carbidopa levodopa for 5 yrs. He's 84 with parkinson's plus lewy body dementia. He's on hospice at home. I've had to wean him down from...reactions4replies
sleepwalking...My husband (54) has Parkinson's and sleepwalks. We have a nursery for grandbaby visits, and multiple times I have found my husband sleeping in the crib. He's a small man...reactions1replySleep
Diagnosis Problem Is Not Uncommon...And just why do you believe that might be? Because diagnosing is so complex? Sometimes, but not all the time. But the word 'uncommon' seems to insinuate that there is...reactionsrepliesCognitive IssuesHumorMental Health
Painful legs...My upper legs, thighs to knees, ache like a toothache at times. To date my work up has been negative. Some days I can walk for miles. Other days they’re...reactions4replies
Nighttime Stressors...I been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half asleep. It started when the doctor increased my...reactions1comment
Rigid Fingers...The fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As I was attempting to polish my nails, I...reactions1comment
How do you know if levodopa is working...Hello, my dad was diagnosed with Parkinsons two years ago. He started on the medication shortly after. He is currently taking 1.5 pills four times a day but since the...reactions2replies
co.beneldopa dosage...My wife has had pd for 12 years normally on 1200 mg madopa per day, a mistake has been made with last prescription, given her 100 mg prolonged release madopa...reactions1reply
Dare to Care about Self-care...Managing my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)...reactions9comments
blood pressure fluctuations ...In the morning when I get up, my blood pressure is normal. After about an hour I can feel my blood pressure dropping as much as 20+ points. My neurologist...reactions3replies
Journey Is A Stupid Word...Who the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What a ridiculously, stupid and demeaning term to use...reactions3comments
My Parkinson's experience...Hello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019. During those 5 years and on, I continued...reactionscomments
Mouthrinses/washes...As someone who has worked in the dental industry for many years, please heed my advice. Do not use over the counter mouthrinses, they are very bad for your oral...reactionsrepliesAwareness
Diagnosed with PD 21 years ago. Discovered so many people you encounter while out in public are amazingly kind and understanding!...Even though I was very fortunate not to begin dealing with typical Parkinson’s issues until 3 to 4 years ago, including my ability to walk without assistance. Expecting some negative...reactions3replies
Levadopa every 2 hours?...Hi I was diagnosed with pd Feb 23. And I am taking lrvadopa 25/100 1 1/2 pills every 4 hours. I see my neurologist in a few weeks but I'm...reactions3replies
Parkinson's Disease. “Parkinson's Misdiagnosis? My Journey to the Correct Diagnosis...A must see 40 second video\ for you or anyone you know that might be worried about Parkinson's Disease. “Parkinson's Misdiagnosis? My Journey to the Correct Diagnosis”is https://youtu.be/xexTLW-9Fc4...reactionsrepliesCopingParkinsonism
What makes a clinical trial appealing? What if it is for a new device or totally new way to treat Parkinson's?...I am a resident physician with a passion for Parkinson’s disease research that stems from my mother’s diagnosis of young-onset PD about 15 years ago. As I move forward with...reactionsrepliesResearch & Clinical TrialsYoung Onset (YOPD)Treatment
Mucuna Pruriens Supplements......Has anybody had any luck using Mucuna Pruriens to cope with PD? As I understand it doctors do not recommend their use but what are suffers supposed to do when...reactions8repliesCoping
I can't stop feeling sorry for myself and guilty of the burden for my family...I was diagnosed with Early Onset PD at 45 (5 days after my birthday actually) I was OK at first, even when, 5 months later I was diagnosed with breast...reactions4repliesDepressionYoung Onset (YOPD)Tips & Advice
On carbo levadopa 14 months...Hello, I was diagnosed with parkinsons about 15 months ago..I am taking levadopa 25/100 every 4 hours, but it seems to wear off in about just under e hours..I have...reactions2replies
