Early management - MAO-B vs Levodopa/Carbidopa...I have been doing extensive reading and research since I was recently diagnosed (including articles like https://www.uptodate.com/contents/parkinson-disease-treatment-options-medications-beyond-the-basics#H28 and https://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-11-112) before starting on...Reactions0reactionsComments3 replies
Retired Life in the Presence of Parkinson's Disease...After 3 years of phased retirement, getting mentally and emotionally prepared for the event, retirement happened. And, as Nina Simone sings, "It's a new dawn / It's a new day...Reactions0reactionsComments4 comments
Hello and question about sense of smell...Hi, I was diagnosed with PD back in May. I have always had a super crazy sense of smell. Seems instead of losing my sense of smell it has only...Reactions0reactionsComments4 repliesSymptoms
Bugger!...My name is Tony, and I've had this disease for over 20 years, in 2 months I'll be 59. I had to stop working as a heavy vehicle technician with...Reactions0reactionsComments1 comments
Kings College Hospital Visit...My appointment came through for 1st August 2013 – only 2 months after my diagnosis. Well impressed! I asked a good friend J to accompany me to my first appointment...Reactions0reactionsComments1 comments
Unplayable pianos...On a December morning in 2019, I was pleased to see a new episode of Tim Harford’s podcast, "Cautionary Tales," in my playlist. The episode’s curious title, "Bowie, Jazz, and...Reactions0reactionsComments0 comments
Exploring Options...It is almost the end of April 2013 and I went to see my GP with my list of symptoms all affecting the left hand side of my body. I...Reactions0reactionsComments0 comments
sleep where are you?...doc gave me new meds to help me sleep,does not work. any ideas on how to get sleep...Reactions0reactionsComments1 replies
Parkinson’s Disease Convinced Me It Was Time to Retire...To many people reading this blog post, you may have been dreaming of retirement for much of your adult life. Not me. An old saying goes, "Some people work to...Reactions0reactionsComments2 comments
The ski holiday prior to diagnosis...April 2013 and I manage to get through the ski holiday, not without a good degree of stress. On the last day Phil (husband) and Jordy (younger son) take Mark...Reactions0reactionsComments0 comments
The way forward...I'm 59 in a couple of months, I've not been able to work for three years. I live in the UK with the most amazing woman, I simply wouldn't have...Reactions0reactionsComments0 comments
apathy...When I read the vast majority of posts on this website I get confused. Everyone seems so upbeat and despite PD having a good life. Which is great and I...Reactions0reactionsComments3 replies
what has helped with sleep...I tried Ambien 10 mg, CBD/THC, all the over-the-counter stuff, and my newest scrip Ramelteon 8 mg nothing helps me sleep at all .I am ready to go to the...Reactions0reactionsComments8 replies
PS 128 probiotics and other supplements that help with PD side effects ...My husband has been talking PS 128 and it seems to help. Are there any drugs or supplements that help with restless legs or sexual disfunction?...Reactions0reactionsComments2 repliesIntimacy & RelationshipsSleep
Addictions...Hi, my husband has PD. He is showing addictive behaviors and I'm concerned. Has anyone else had this issue? Let me know if you need more information....Reactions0reactionsComments11 repliesMental Health
Onward and Forward After Diagnosis...Roughly 5 years ago my hands started to shake. Soon there after I began spilling and dropping things, then breaking things. Interesting it never occurred to me that something was...Reactions0reactionsComments5 comments
Loss of Balance...Lose my balance momentarily when getting out of bed. Feels like I would fall if I did not suddenly grab onto something to steady myself. Could be a table, or...Reactions0reactionsComments0 comments
Anti-depressant & libido...Little did I know or was told by my GP "take one a day and you will feel much better" Well thirty years later I am still taking one a...Reactions0reactionsComments0 comments
Sandy...After three years, 18 falls, two admittances to A&E, resulting many fractures. First it was his knee causing falls. His core became ridged. Finally in February 2023, Parkinson’s disease was...Reactions0reactionsComments0 comments
Waiting game: What were your early symptoms before diagnosis?...Hi to everyone, I'm in my late 50s and I have a Datscan appointment in a few weeks. I have or thought I had weakness in my left foot and...Reactions0reactionsComments15 replies
