A Long Road...My journey began years ago with just a little weakness on my right. If I held my right hip I'd be fine. That went on for years until last year...Reactions0reactionsComments1 comments
Falling...I am 67, Parkinson’s for at least 7 years. Preceding my fall, I was careless and sloppy as I went up some stairs and tumbled back down. I have vowed...Reactions0reactionsComments5 comments
Advice for British people with Parkinson’s abroad...My British mother lives in France and she is suffering from the later stages of Parkinson’s. She lives with my dad and is under a Neurologist. GP and Physio. They...Reactions0reactionsComments1 repliesCopingCost
Physiotherapy for balance ...Newly diagnosed and prescribed physiotherapy for balance problem. Any recommendations?...Reactions0reactionsComments5 repliesTips & AdviceMotor Symptoms
moving across the country...Hi all. I was wondering if any of you or anyone you know with PD have traveled or moved a long distance? We are and we are wondering the best...Reactions0reactionsComments3 repliesTips & Advice
boxing...I am so exhausted afterwards and my freezing has increased in normal day to day activities that never occurred before....Reactions0reactionsComments1 repliesAwareness
Q & A: The Latest in PD Research 2023 (UCLA)...Hello, everyone, A great presentation about PD in general, and very useful for patients, I feel: Q & A: The Latest in PD Research 2023 https://www.youtube.com/watch?v=_MhcJ4Kkru8&t=1273s from UCLA 2 months...Reactions0reactionsComments0 repliesTreatmentResearch & Clinical TrialsTips & Advice
Involuntary leg movement, sweating, elevated heart and confusion at nighttime...Every night this happens to my mother; after the last Carbidopa Levodopa 50mg at 7:30pm and trazodone 50mg at 8:30pm. She gets very calm and sleepy at about 9:00pm but...Reactions0reactionsComments1 replies
FOCUSED ULTRASOUND...I would like to learn more about results of FOCUSED ULTRASOUND TREATMENT FOR PARKINSON´S DISEASE....Reactions0reactionsComments1 repliesDeep Brain Stimulation
Online radio stations and Parkinson´s...I would like to mention one activity that works quite well in my case to keep me away from negative moods: I often listen via internet to radio stations from...Reactions0reactionsComments1 replies
The Love and Limitations of Levodopa: From a Levodopa Junkie...What role does levodopa play in my Parkinson’s disease management? If I was a car, levodopa would be my gas. It fuels and powers my broken body in a way...Reactions0reactionsComments10 comments
Caregiver's challenges...My wife got diagnosed with Parkinson's at the age of 44, and we have manages last 8 years with good habbits that arrested the progress of the disease, however I...Reactions0reactionsComments1 repliesCaregivers & Care Partners
Parkinson’s Anxiety/Mood swings ...I was diagnosed with PD 9 years ago and recently have been experiencing more anxiety and mood swings. Has anyone had any luck with a particular medication for this and/or...Reactions0reactionsComments1 repliesCopingDepressionMental Health
Important Parkinson's tips that are often overlooked ...There are a million little details involved in managing your Parkinson's issues, but I have found four that are very important and often overlooked. Parkinson’s tips: Some little things your...Reactions0reactionsComments7 repliesTips & Advice
Looking for insight on DBS...I have been diagnosed with Young onset Parkinson’s March this year. I am having severe side effects from the Levodopa. It gives me severe Dyskinesia to the point where I...Reactions0reactionsComments2 replies
Outing Myself with YOPD...It began in 2010, a feeling of fatigue that felt inordinate to activity. A negative test for Lyme disease and an internist’s assurance that a mother of 4 would, of...Reactions0reactionsComments5 comments
Am I Losing my Mind?...I am 68 years old and was diagnosed with Parkinson's last October. It took months to get into a neurologist, the first one diagnosed my with ataxia, which I was...Reactions0reactionsComments1 comments
Diagnosed with Parkinson's in 2015...Hi my name is Joan, I am an 83 year old woman living in a lovely little market town called Thornbury, South Glos. I have been diagnosed with Parkinson's disease...Reactions0reactionsComments2 comments
