Managing PD at 60...I began having tremors in the left hand in Nov 2020. Due to Covid, I preferred an online consultation with the neurologist. Based on his assessment on video, I was...Reactions0reactionsComments0 comments
Monster under my bed...I never shared my story before or made a formal announcement of having PD, so here it goes ... I was diagnosed in 2012 but I had my suspicion earlier...Reactions0reactionsComments10 comments
Back and Forth...My reaction to my Parkinson’s diagnosis was an answer to why I was falling and shaky. Having an answer was a relief but the Parkinson’s diagnosis was shattering. My condition...Reactions0reactionsComments0 comments
Nursing home?...I have been caring for my husband for several years. In addition to PD he has been recently diagnosed with Parkinson’s disease dementia. It’s getting too much for me. I...Reactions0reactionsComments24 repliesCoping
rivastigmine effectiveness ...Is rivastigmine effective with advanced stage of parkinson's ? My father takes rivastigmine 3mg at 12pm and 3mg at 7pm Is it OK to take it 7 hours after the...Reactions0reactionsComments1 replies
Refusing to make new medication...Husband has PD.Recently diagnosed with dementia. Rivastigmine prescribed but he is refusing to take it. Says it makes him feel dizzy and awful. He resists anything new and I dont...Reactions0reactionsComments2 repliesCoping
Michigan...Is anyone on these boards from Michigan? am not finding any support groups in my area...Reactions0reactionsComments1 replies
Sinemet: How long for improvement?...Hello. I am having a hard time finding an answer to this question. I know that Sinemet typically takes 30 minutes or so to kick in, but my question is...Reactions0reactionsComments3 repliesTreatment
support groups in michigan...are there any support groups in michigan...Reactions0reactionsComments1 replies
discourage...I have had PD now since 2012.I feel like a shell of who I once was Pd is very intimidating, depression is hard to shake most days.I feel as though...Reactions0reactionsComments12 repliesDepression
Writhing in pain/ hopelessness ...My wife is writhing in pain and hopelessness. She’s on Rytary 2-3 four to five times a day. Having extreme nausea in addition to extreme tremors and pain. We are...Reactions0reactionsComments1 replies
Good and bad days...Can someone please explain how can you have good or bad days with Parkinsons, if you are not currently on any medication? I find it difficult to understand how,for instance...Reactions0reactionsComments2 replies
Datscan reports ...Can someone please tell me if a datscan can show up lewy bodies? Or does it only show low dopamine?...Reactions0reactionsComments2 replies
DBS...To the tremor parkinsons people, that has had dbs did it make a big differance ?...Reactions0reactionsComments1 repliesDeep Brain Stimulation
A question about timing of meds while traveling....I'm hoping the PD community can answer a question that has me in a conundrum. I live on the US West coast and am thus in the Pacific Standard time...Reactions0reactionsComments2 repliesTravelTips & Advice
No medication ...Is there anyone who is in the early stages of parkinsons that isn't taking meds? Please can you tell me your symptoms, and if only yourself are aware of them?...Reactions0reactionsComments6 replies
An Adjustment for Tremors: Deep Brain Stimulation...Sitting, facing the team of neurological professionals in front of me, I found myself in a conundrum. In all my posts about Parkinson’s, I’ve always been open about the fear...Reactions0reactionsComments12 comments
An Adjustment for Tremors: Focused Ultrasound...This all began when my wife turned me on to a procedure called focused ultrasound (FUS). This is similar to deep brain stimulation (DBS), though, in its most important aspect...Reactions0reactionsComments7 comments
Question on hand shaking...Hello, I'm a male 64, diagnosed with parkinsons on 3/23. I have been using levadopa 25/100 3 times daily since..working pretty good but now my left hand constantly shakes...does a...Reactions0reactionsComments7 repliesNewly Diagnosed
26 years with pd...This bit is a little dated and not to all tastes, for sure. Nonetheless, here you go. Some random thoughts on living with PD for 26 years: 1 When first...Reactions0reactionsComments13 repliesHumor
