Dealing with unknown ...I am 61 years old and was diagnosed 4 years ago after a number of years refusing exam. My symptoms are primarily...reactions4repliesAcceptanceCopingApathy
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)...This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part...reactionscomments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)...This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation:...reactions5comments
Desulfovibrio bacteria as a cause of PD ...This is a breakthrough but how to you kill this bacteria? To me this is our assignment... https://www.helsinki.fi/en/news/brain/researchers-discover-potential-cause-parkinsons-disease#:~:text=The%20findings%20indicate%20that%20specific,strains%20that%20cause%20Parkinson's%20disease....reactions1replyResearch & Clinical TrialsTreatment
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 1)...This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I...reactionscomments
Parkinson’s Pause...When I was first diagnosed, I totally threw myself into all things Parkinson's related. A zoom support group, an online support group...reactions1comment
Ughh...Posting on behalf of one of our members: I wrote a rather long story about being taken off my anti-anxíety medication at...reactionsreplies
Getting the most out of an appointment with a Movement Disorder Specialist...Hi everyone. My PWP, my elderly father, lives in Ontario, Canada and we have finally secured an appointment with the Movement Disorder...reactions4repliesTreatmentHealthcare Team
Misdiagnosed????...So my dad has had parkinsons for 18 years. We have slight suspicion that he may have been misdiagnosed. His only real...reactions3replies
Frustrating Fluctuations in (dis)Ability...If I had a nickel for every time I heard the words, "You have Parkinson’s disease? But you look fine/normal/human." (Choose your...reactions6comments
Early symptomd...I have been referred to a neurologist Wuite a few symptoms. Yesterday I was kneeling down and had terrible trouble getting up...reactions1replyAwareness
parkanisom...So my neurologist says that him saying that I have Paranisom and I have an abnormal Datscan that Parkanisom encompasses Parkinsons disease...reactions5replies
Parkanisom...Why has my Dr on put Parkanisom as my diagnosis but I am already taking the max medicine for parkinsons...reactions1reply
Parkinson’s and Dementia...I’ve been reading many of your posts. I was shocked to realize that I was not sympathetic. I wanted to shout at...reactions7replies
My PD symptoms...Growing up I was physically and emotionally abused by my father. I've had problems with tremors all of my adult life. In...reactions1reply
No One is Actually Interested in Parkinson's...Listen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started...reactions3comments
sebum...any body hear of parkinson and sebum smell ? The more I learn the bigger the battle becomes...reactions1reply
meds...haven't posted in a while . I am so frustrated with having Parkinson's.I have tried Gabapentin, Ramelton, and Pramipexole, and even bought...reactions1reply
The Parkinson Gym - Exercises...Hello, You may want to consider the exercises at this site: The Parkinson Gym https://www.youtube.com/@TheParkinsonsGym/videos I think they are quite useful. Best...reactionsrepliesExerciseMotor Symptoms
iPhone Accessible Feature Recommendations...Hello all! One of our fellow community members is searching any suggestions for those who struggle using their iPhone. Does any one...reactionsreplies