quest research...I have been contacted by a research group to do a study There is a prescreening if all goes okay I would stay there for 10 days. has anyone done...Reactions0reactionsComments1 replies
Tech Related issues...Does anybody have any tech-related issues when it comes to dealing with Parkinson's and the associated tremors? Texting, typing, taking photos, etc. Thanks!...Reactions0reactionsComments3 repliesAssistive Devices
Portuguese company has a new drug to delay Parkinson...https://www.portugalresident.com/portuguese-company-hopes-to-licence-drug-that-prevents-parkinsons-progression/ A company based in Covilhã is in the process of finalising pre-clinical tests on an enzyme responsible for producing oxidative stress that can be shaped to levels that prevent...Reactions0reactionsComments1 repliesTreatment
The Battle of PD Is Difficult...I was diagnosed with young-onset Parkinson's disease (YOPD) at 42 years old, but I think I had YOPD during my teenage years because at that time my voice become lower...Reactions0reactionsComments3 comments
Why I Use MyChart and Telemedicine...When I was first diagnosed with Parkinson's disease in August of 2020, the pandemic had just started, and although MyChart was available through most doctors and hospitals, it was not...Reactions0reactionsComments2 comments
Need advice:...I have been dating a guy for only three months We are close and care for each other but he has been diagnosed with Parkinson’s I am very confused and...Reactions0reactionsComments1 repliesCoping
Recurrent thoughts...I’m curious if anything like this has come up for you? My background is eight years of Parkinson’s disease, which has been relatively mild. Most people are not even aware...Reactions0reactionsComments3 repliesCognitive IssuesCoping
Neck Pain...Hi all. My husband (PD) has a hospital bed. He sleeps slightly reclined. He wakes up in the morning and he has a stiff neck and needs Advil every morning...Reactions0reactionsComments4 replies
Sexual side effects from PD Medications...I am new to this forum and this is my first and very difficult post to write. My husband and I have been married for 31 years and he was...Reactions0reactionsComments1 repliesAwarenessSide EffectsCoping
Parkinsons...Hello I’m new here I have not been diagnosed and I do have appointment with neurologist. I get bad tremors in my left hand and very painful cramps in my...Reactions0reactionsComments3 repliesSymptoms
Calfs and feet...Does anybody suffer with their calves and feet ?...Reactions0reactionsComments3 replies
Does anyone experience akathisia due Parkinsons?...I was diagnosed last year with akathisia (diagnosed with PD in 2015, but had it since 2012. Other than fatigue, this has been the worst and most prominent of my...Reactions0reactionsComments1 replies
Dad Has No Balance...So my dad has parkinsons. He has slight tremors and a bit of demtia. He took a fall and all of sudden has no balance and is no longer able...Reactions0reactionsComments4 replies
Intimacy...I do not have Parkinson's but my husband does and I cannot find any answers to his problem. He can get and maintain an erection but gets very frustrated that...Reactions0reactionsComments1 repliesCaregivers & Care Partners
Early management - MAO-B vs Levodopa/Carbidopa...I have been doing extensive reading and research since I was recently diagnosed (including articles like https://www.uptodate.com/contents/parkinson-disease-treatment-options-medications-beyond-the-basics#H28 and https://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-11-112) before starting on...Reactions0reactionsComments3 replies
Retired Life in the Presence of Parkinson's Disease...After 3 years of phased retirement, getting mentally and emotionally prepared for the event, retirement happened. And, as Nina Simone sings, "It's a new dawn / It's a new day...Reactions0reactionsComments6 comments
Hello and question about sense of smell...Hi, I was diagnosed with PD back in May. I have always had a super crazy sense of smell. Seems instead of losing my sense of smell it has only...Reactions0reactionsComments4 repliesSymptoms
Bugger!...My name is Tony, and I've had this disease for over 20 years, in 2 months I'll be 59. I had to stop working as a heavy vehicle technician with...Reactions0reactionsComments1 comments
Kings College Hospital Visit...My appointment came through for 1st August 2013 – only 2 months after my diagnosis. Well impressed! I asked a good friend J to accompany me to my first appointment...Reactions0reactionsComments1 comments
Unplayable pianos...On a December morning in 2019, I was pleased to see a new episode of Tim Harford’s podcast, "Cautionary Tales," in my playlist. The episode’s curious title, "Bowie, Jazz, and...Reactions0reactionsComments0 comments
