Getting the most out of an appointment with a Movement Disorder Specialist...Hi everyone. My PWP, my elderly father, lives in Ontario, Canada and we have finally secured an appointment with the Movement Disorder Clinic in Toronto. He is 92 years old...Reactions0reactionsComments4 repliesTreatmentHealthcare Team
Misdiagnosed????...So my dad has had parkinsons for 18 years. We have slight suspicion that he may have been misdiagnosed. His only real symptom for 16 of the 18 years was...Reactions0reactionsComments3 replies
Frustrating Fluctuations in (dis)Ability...If I had a nickel for every time I heard the words, "You have Parkinson’s disease? But you look fine/normal/human." (Choose your preferred term.) Well then, I would be able...Reactions0reactionsComments6 comments
Early symptomd...I have been referred to a neurologist Wuite a few symptoms. Yesterday I was kneeling down and had terrible trouble getting up I’m 68 . Is that usual?...Reactions0reactionsComments1 repliesAwareness
parkanisom...So my neurologist says that him saying that I have Paranisom and I have an abnormal Datscan that Parkanisom encompasses Parkinsons disease is that true...Reactions0reactionsComments5 replies
Parkanisom...Why has my Dr on put Parkanisom as my diagnosis but I am already taking the max medicine for parkinsons...Reactions0reactionsComments1 replies
Parkinson’s and Dementia...I’ve been reading many of your posts. I was shocked to realize that I was not sympathetic. I wanted to shout at everyone, "what’s your problem?" You are articulate and...Reactions0reactionsComments7 replies
My PD symptoms...Growing up I was physically and emotionally abused by my father. I've had problems with tremors all of my adult life. In 2011 I started having sudden falls with loss...Reactions0reactionsComments1 replies
No One is Actually Interested in Parkinson's...Listen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started my journey 16 years ago. It has been...Reactions0reactionsComments3 comments
sebum...any body hear of parkinson and sebum smell ? The more I learn the bigger the battle becomes...Reactions0reactionsComments1 replies
meds...haven't posted in a while . I am so frustrated with having Parkinson's.I have tried Gabapentin, Ramelton, and Pramipexole, and even bought Inbrija myself insurance didn't cover it.side effects on...Reactions0reactionsComments1 replies
The Parkinson Gym - Exercises...Hello, You may want to consider the exercises at this site: The Parkinson Gym https://www.youtube.com/@TheParkinsonsGym/videos I think they are quite useful. Best of health....Reactions0reactionsComments0 repliesExerciseMotor Symptoms
iPhone Accessible Feature Recommendations...Hello all! One of our fellow community members is searching any suggestions for those who struggle using their iPhone. Does any one have any tips/suggestions they would recommend or accessibility...Reactions0reactionsComments0 replies
Up and Down All the Parkinson's Days...Ever since I felt my first tremors, there have been a lot of different days of Parkinson’s. Obviously, some days are better than others. Nevertheless, each day is a statement...Reactions0reactionsComments3 comments
What's working What's not...Diagnosed 18 months ago Mild tremors left arm and hand Controllable and not affecting lifestyle (yet) What have I noticed? a) Coffee amounts seem to have an affect on tremors...Reactions0reactionsComments4 repliesAwareness
Constipation and the role of stool softeners...I have a friend with Parkinson's who suffers from constipation and has told me for months how he is working to rid stool softeners from his system. I cannot find...Reactions0reactionsComments6 replies
Antibiotics causing delirium...My mom, who is 80 and has been living with Parkinson’s for 5 years now, recently got a UTI. We had the worse experience with the antibiotics causing her to...Reactions0reactionsComments1 replies
Duopa pump...I have had pd for 17 years. My current meds cause bad hallucinations. I have been approved for the pump. Does anyone know if I tell my doc that the...Reactions0reactionsComments1 repliesHallucinations
Caring for mom while she's in memory care facility ...My mom is currently in memory care at a assisted living facility. Her Parkinson's dementia has increased her falls and the facility now wants one on one care for her...Reactions0reactionsComments1 replies
