My Parkinson's experience...Hello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019. During those 5 years and on, I continued...Reactions0reactionsComments0 comments
Mouthrinses/washes...As someone who has worked in the dental industry for many years, please heed my advice. Do not use over the counter mouthrinses, they are very bad for your oral...Reactions0reactionsComments0 repliesAwareness
Diagnosed with PD 21 years ago. Discovered so many people you encounter while out in public are amazingly kind and understanding!...Even though I was very fortunate not to begin dealing with typical Parkinson’s issues until 3 to 4 years ago, including my ability to walk without assistance. Expecting some negative...Reactions0reactionsComments3 replies
Levadopa every 2 hours?...Hi I was diagnosed with pd Feb 23. And I am taking lrvadopa 25/100 1 1/2 pills every 4 hours. I see my neurologist in a few weeks but I'm...Reactions0reactionsComments3 replies
Parkinson's Disease. “Parkinson's Misdiagnosis? My Journey to the Correct Diagnosis...A must see 40 second video\ for you or anyone you know that might be worried about Parkinson's Disease. “Parkinson's Misdiagnosis? My Journey to the Correct Diagnosis”is https://youtu.be/xexTLW-9Fc4...Reactions0reactionsComments0 repliesParkinsonismCoping
What makes a clinical trial appealing? What if it is for a new device or totally new way to treat Parkinson's?...I am a resident physician with a passion for Parkinson’s disease research that stems from my mother’s diagnosis of young-onset PD about 15 years ago. As I move forward with...Reactions0reactionsComments0 repliesResearch & Clinical TrialsYoung Onset (YOPD)Treatment
Mucuna Pruriens Supplements......Has anybody had any luck using Mucuna Pruriens to cope with PD? As I understand it doctors do not recommend their use but what are suffers supposed to do when...Reactions0reactionsComments8 repliesCoping
I can't stop feeling sorry for myself and guilty of the burden for my family...I was diagnosed with Early Onset PD at 45 (5 days after my birthday actually) I was OK at first, even when, 5 months later I was diagnosed with breast...Reactions0reactionsComments4 repliesDepressionYoung Onset (YOPD)Tips & Advice
On carbo levadopa 14 months...Hello, I was diagnosed with parkinsons about 15 months ago..I am taking levadopa 25/100 every 4 hours, but it seems to wear off in about just under e hours..I have...Reactions0reactionsComments2 replies
Rasagiline and Fatigue: A Follow Up...In a previously published article, Posy tried to find out if anyone else thought that perhaps Rasagiline was making them tired. Posy was taking 1 tablet a day first thing...Reactions0reactionsComments16 comments
Parkinson's and Toxic Exposure (Burn Pits) - Military Veteran...I'm a 53 year old male who was diagnosed with Parkinson's at age 47. I noticed a tremor in my left hand one day and shrugged it off for a...Reactions0reactionsComments0 replies
Terrible fear of developing dementia ...I was finally diagnosed last year. There seem to be so many aspects of PD. I am very afraid of losing my cognitive abilities. I had some testing done a...Reactions0reactionsComments3 repliesCognitive Issues
Symptoms of PD...Hi, I'm new here. I am 67, diagnosed 2 years ago. Right now I have trembling in my hands and taking L/C which has been working. I'm mostly wondering about...Reactions0reactionsComments15 repliesApathyCopingAwareness
Dealing with unknown ...I am 61 years old and was diagnosed 4 years ago after a number of years refusing exam. My symptoms are primarily tremor related as of now. I’m really having...Reactions0reactionsComments2 repliesAcceptanceCopingApathy
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)...This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part 2 can be found here. The person or...Reactions0reactionsComments0 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)...This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation: ENLIST HELP!! This is supposed to be fun...Reactions0reactionsComments5 comments
Desulfovibrio bacteria as a cause of PD ...This is a breakthrough but how to you kill this bacteria? To me this is our assignment... https://www.helsinki.fi/en/news/brain/researchers-discover-potential-cause-parkinsons-disease#:~:text=The%20findings%20indicate%20that%20specific,strains%20that%20cause%20Parkinson's%20disease....Reactions0reactionsComments1 repliesResearch & Clinical TrialsTreatment
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 1)...This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I had been feeling very depressed at having reached...Reactions0reactionsComments0 comments
Parkinson’s Pause...When I was first diagnosed, I totally threw myself into all things Parkinson's related. A zoom support group, an online support group, reading Every Victory Counts (practically in one sitting)...Reactions0reactionsComments1 comments
Ughh...Posting on behalf of one of our members: I wrote a rather long story about being taken off my anti-anxíety medication at the worst possible time in my life. How...Reactions0reactionsComments0 replies
