What Can We Do When Fatigue Strikes Suddenly?...Posy expects that we all have experienced "hitting a wall." At these times, we desperately crave going back to bed. It may be that we have worked productively all morning...Reactions0reactionsComments29 comments
Reduction of symptoms through nutritional supplementation ...Has anyone ever considered the health benefits of the laminaria genus of seaweeds for the temporary relief from the symptoms associated with Parkinson’s? For the disease may be related to...Reactions0reactionsComments1 repliesDiet & NutritionMotor SymptomsTips & Advice
Head feeling hot all the time, and worse at night in bed ...Does anyone else have hot flashes or have a hot face and head that makes it had to relax without having a fan or something to stay cool? The heat...Reactions0reactionsComments1 replies
There Is Not Enough Time To Do It All...Posy finds that having Parkinson’s disease (PD) narrows her range of skills. Do you have PD? If so, Posy would like to know how you manage your time and energy to...Reactions0reactionsComments11 comments
Restless Legs Need Some Rest...Maybe it was there before Parkinson's disease hit me. But my doctor says PD is what lies at its base, restless legs syndrome. It comes creeping in, like a screw...Reactions0reactionsComments1 comments
My Emotions and Physical Pain After Diagnosis...Hello All, my story, maybe not so short, is that my first symptom was tremor in my hands finally severe enough to make using them difficult in most tasks. The...Reactions0reactionsComments1 comments
A Long Road...My journey began years ago with just a little weakness on my right. If I held my right hip I'd be fine. That went on for years until last year...Reactions0reactionsComments1 comments
Falling...I am 67, Parkinson’s for at least 7 years. Preceding my fall, I was careless and sloppy as I went up some stairs and tumbled back down. I have vowed...Reactions0reactionsComments5 comments
Advice for British people with Parkinson’s abroad...My British mother lives in France and she is suffering from the later stages of Parkinson’s. She lives with my dad and is under a Neurologist. GP and Physio. They...Reactions0reactionsComments1 repliesCopingCost
Physiotherapy for balance ...Newly diagnosed and prescribed physiotherapy for balance problem. Any recommendations?...Reactions0reactionsComments5 repliesTips & AdviceMotor Symptoms
moving across the country...Hi all. I was wondering if any of you or anyone you know with PD have traveled or moved a long distance? We are and we are wondering the best...Reactions0reactionsComments3 repliesTips & Advice
boxing...I am so exhausted afterwards and my freezing has increased in normal day to day activities that never occurred before....Reactions0reactionsComments1 repliesAwareness
Q & A: The Latest in PD Research 2023 (UCLA)...Hello, everyone, A great presentation about PD in general, and very useful for patients, I feel: Q & A: The Latest in PD Research 2023 https://www.youtube.com/watch?v=_MhcJ4Kkru8&t=1273s from UCLA 2 months...Reactions0reactionsComments0 repliesTreatmentResearch & Clinical TrialsTips & Advice
Involuntary leg movement, sweating, elevated heart and confusion at nighttime...Every night this happens to my mother; after the last Carbidopa Levodopa 50mg at 7:30pm and trazodone 50mg at 8:30pm. She gets very calm and sleepy at about 9:00pm but...Reactions0reactionsComments1 replies
FOCUSED ULTRASOUND...I would like to learn more about results of FOCUSED ULTRASOUND TREATMENT FOR PARKINSON´S DISEASE....Reactions0reactionsComments1 repliesDeep Brain Stimulation
Online radio stations and Parkinson´s...I would like to mention one activity that works quite well in my case to keep me away from negative moods: I often listen via internet to radio stations from...Reactions0reactionsComments1 replies
The Love and Limitations of Levodopa: From a Levodopa Junkie...What role does levodopa play in my Parkinson’s disease management? If I was a car, levodopa would be my gas. It fuels and powers my broken body in a way...Reactions0reactionsComments10 comments
Caregiver's challenges...My wife got diagnosed with Parkinson's at the age of 44, and we have manages last 8 years with good habbits that arrested the progress of the disease, however I...Reactions0reactionsComments1 repliesCaregivers & Care Partners