Pain...Hi, my name is Bill I was diagnosed with PD about 7 years ago. I had problems accepting the disease thinking ha I don’t have PD. But now I have...Reactions0reactionsComments4 replies
Parkinson's with tremors...What about Trump tremors I have one it started on my right hand and then it started on my right leg then it started on my left leg now I'm...Reactions0reactionsComments1 repliesAcceptanceCopingAwareness
Gas issues ...A lot of bloating and gas going through can't understand why is a Parkinson's...Reactions0reactionsComments2 repliesAwareness
Glad To Know What’s Wrong With Me...In 2021, I was diagnosed with essential tremors in both hands. After about 12 months, the shaking went from annoying to bad. I found my hand writing needed extra time...Reactions0reactionsComments5 comments
Urine retention ...Any stop being able to pee after surgery?...Reactions0reactionsComments1 repliesSurgery
Having doubts....Denver area. I'm almost 76. Around September of 2021, I noticed bumps in the sides of my neck - more on the left side than the right. Around November, my...Reactions0reactionsComments1 repliesDiagnosisSymptoms
What do you think about the potential for caapi vine?...What do you think about the potential for caapi vine (or the non-potentiated version of ayahuasca without the psychedelic additive) to impact Parkinson’s? These studies show that the isolate from...Reactions0reactionsComments0 repliesSide EffectsResearch & Clinical TrialsTreatment
When Is It Time to Use a Walker?...The first time my mom suggested that my dad use a walker during his off periods, he rolled his eyes. He wasn't ready to rely on the little 4-wheeled contraption...Reactions0reactionsComments3 comments
Newbie whining...Hi, I had a DaT Scan about 3 weeks ago, and it came back with: Abnormal examination indicating striatal dopaminergic deficiency. Differential diagnosis for a positive DaT scan includes Parkinson's...Reactions0reactionsComments1 repliesNewly Diagnosed
Lewy Body Dementia C/L meds...My dad has been on carbidopa levodopa for 5 yrs. He's 84 with parkinson's plus lewy body dementia. He's on hospice at home. I've had to wean him down from...Reactions0reactionsComments4 replies
sleepwalking...My husband (54) has Parkinson's and sleepwalks. We have a nursery for grandbaby visits, and multiple times I have found my husband sleeping in the crib. He's a small man...Reactions0reactionsComments1 repliesSleep
Diagnosis Problem Is Not Uncommon...And just why do you believe that might be? Because diagnosing is so complex? Sometimes, but not all the time. But the word 'uncommon' seems to insinuate that there is...Reactions0reactionsComments0 repliesMental HealthCognitive IssuesHumor
Painful legs...My upper legs, thighs to knees, ache like a toothache at times. To date my work up has been negative. Some days I can walk for miles. Other days they’re...Reactions0reactionsComments4 replies
Nighttime Stressors...I been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half asleep. It started when the doctor increased my...Reactions0reactionsComments1 comments
Rigid Fingers...The fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As I was attempting to polish my nails, I...Reactions0reactionsComments1 comments
How do you know if levodopa is working...Hello, my dad was diagnosed with Parkinsons two years ago. He started on the medication shortly after. He is currently taking 1.5 pills four times a day but since the...Reactions0reactionsComments2 replies
co.beneldopa dosage...My wife has had pd for 12 years normally on 1200 mg madopa per day, a mistake has been made with last prescription, given her 100 mg prolonged release madopa...Reactions0reactionsComments1 replies
Dare to Care about Self-care...Managing my Parkinson’s disease is a daily challenge. Often it feels like a burden and a chore. It can feel like having a full-time job (but frustratingly without the paycheck)...Reactions0reactionsComments9 comments
blood pressure fluctuations ...In the morning when I get up, my blood pressure is normal. After about an hour I can feel my blood pressure dropping as much as 20+ points. My neurologist...Reactions0reactionsComments3 replies
Journey Is A Stupid Word...Who the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What a ridiculously, stupid and demeaning term to use...Reactions0reactionsComments3 comments
