Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 3)...This story is the last installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here and Part 2 can be found here. The person or...Reactions0reactionsComments0 comments
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 2)...This story is the second installment of a member-submitted 3-part series. Part 1 of Jackie's story can be found here. First recommendation: ENLIST HELP!! This is supposed to be fun...Reactions0reactionsComments0 comments
Desulfovibrio bacteria as a cause of PD ...This is a breakthrough but how to you kill this bacteria? To me this is our assignment... https://www.helsinki.fi/en/news/brain/researchers-discover-potential-cause-parkinsons-disease#:~:text=The%20findings%20indicate%20that%20specific,strains%20that%20cause%20Parkinson's%20disease....Reactions0reactionsComments1 repliesResearch & Clinical TrialsTreatment
Wanna Give Parkinson’s the Middle Finger? Celebrate Your Life NOW with a “Selfabration!” (Part 1)...This story is the first installment in a 3-part series. Stay tuned for Parts 2 and 3. In early January 2022, I had been feeling very depressed at having reached...Reactions0reactionsComments0 comments
Parkinson’s Pause...When I was first diagnosed, I totally threw myself into all things Parkinson's related. A zoom support group, an online support group, reading Every Victory Counts (practically in one sitting)...Reactions0reactionsComments1 comments
Ughh...Posting on behalf of one of our members: I wrote a rather long story about being taken off my anti-anxíety medication at the worst possible time in my life. How...Reactions0reactionsComments0 replies
Getting the most out of an appointment with a Movement Disorder Specialist...Hi everyone. My PWP, my elderly father, lives in Ontario, Canada and we have finally secured an appointment with the Movement Disorder Clinic in Toronto. He is 92 years old...Reactions0reactionsComments4 repliesTreatmentHealthcare Team
Misdiagnosed????...So my dad has had parkinsons for 18 years. We have slight suspicion that he may have been misdiagnosed. His only real symptom for 16 of the 18 years was...Reactions0reactionsComments3 replies
Early symptomd...I have been referred to a neurologist Wuite a few symptoms. Yesterday I was kneeling down and had terrible trouble getting up I’m 68 . Is that usual?...Reactions0reactionsComments1 repliesAwareness
parkanisom...So my neurologist says that him saying that I have Paranisom and I have an abnormal Datscan that Parkanisom encompasses Parkinsons disease is that true...Reactions0reactionsComments5 replies
Parkanisom...Why has my Dr on put Parkanisom as my diagnosis but I am already taking the max medicine for parkinsons...Reactions0reactionsComments1 replies
Parkinson’s and Dementia...I’ve been reading many of your posts. I was shocked to realize that I was not sympathetic. I wanted to shout at everyone, "what’s your problem?" You are articulate and...Reactions0reactionsComments7 replies
My PD symptoms...Growing up I was physically and emotionally abused by my father. I've had problems with tremors all of my adult life. In 2011 I started having sudden falls with loss...Reactions0reactionsComments1 replies
No One is Actually Interested in Parkinson's...Listen. My story is about endings, not beginnings. Nor is it about suffering. It is about protest. So get real. I started my journey 16 years ago. It has been...Reactions0reactionsComments3 comments
sebum...any body hear of parkinson and sebum smell ? The more I learn the bigger the battle becomes...Reactions0reactionsComments1 replies
meds...haven't posted in a while . I am so frustrated with having Parkinson's.I have tried Gabapentin, Ramelton, and Pramipexole, and even bought Inbrija myself insurance didn't cover it.side effects on...Reactions0reactionsComments1 replies
The Parkinson Gym - Exercises...Hello, You may want to consider the exercises at this site: The Parkinson Gym https://www.youtube.com/@TheParkinsonsGym/videos I think they are quite useful. Best of health....Reactions0reactionsComments0 repliesExerciseMotor Symptoms
iPhone Accessible Feature Recommendations...Hello all! One of our fellow community members is searching any suggestions for those who struggle using their iPhone. Does any one have any tips/suggestions they would recommend or accessibility...Reactions0reactionsComments0 replies
Up and Down All the Parkinson's Days...Ever since I felt my first tremors, there have been a lot of different days of Parkinson’s. Obviously, some days are better than others. Nevertheless, each day is a statement...Reactions0reactionsComments3 comments