My Parkinson's experience...Hello there, well here I go. I'm 60 and started to experience parky symptoms around 2014. I was diagnosed "officially" in 2019...reactionscomments
Journey Is A Stupid Word...Who the hell came up with the word journey to describe living with a life long debilitating, progressive disease like Parkinson’s? What...reactions3comments
Rigid Fingers...The fingers of my left hand (predominant PD side) were getting stiffer and keeping them together, made them difficult to use. As...reactions1comment
Nighttime Stressors...I been having weird dreams especially when they put me on Carbidopa/Levodopa. I get sleep paralysis where I’m half awake and half...reactions1comment
Glad To Know What’s Wrong With Me...In 2021, I was diagnosed with essential tremors in both hands. After about 12 months, the shaking went from annoying to bad...reactions5comments
Parkinson's Diagnosis to Fundraising...Hello everyone! I am one of the few people that can say that they have had Parkinson's Disease over half my life...reactions4comments
Parkinson's, My Retirement and YOLO...We didn’t expect to retire so soon. Things changed at a football game at Lehigh University. I had not been back to...reactionscomments
Pushing a Rope...Another unpublishable testimony and treatise to my journey into the rabbit hole of Parkinson’s. In the interest of brevity I will use...reactionscomments
Who Am I?...I used to have a fairly clear idea of who I am. Always upbeat and involved in my community, my church, and...reactions10comments
Rasagiline and Fatigue: A Follow Up...In a previously published article, Posy tried to find out if anyone else thought that perhaps Rasagiline was making them tired. Posy...reactions16comments
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your...
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect...
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right...
Resources for Veterans, LGBTQ+ People, and Other Special Groups...Coping with a chronic health condition can be challenging for you, your family, and your caregivers. You rely on your healthcare team...
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing...
When Is It Time to Use a Walker?...The first time my mom suggested that my dad use a walker during his off periods, he rolled his eyes. He wasn't...reactions4comments
On Retirement and Parkinson’s Disease...I came from a nuclear family with Midwestern values and thick American determination. My mom stayed at home for most of my...reactions4comments
Parkinson’s Medication: My Frenemy?...When I was diagnosed with Parkinson’s disease on 28th July 2013, at 11 am (it’s hard to forget the exact details of...reactions14comments
Who Is the Future of Parkinson's Advocacy?...In 2018, I was given the opportunity to write for Health Union. Having previously blogged about my Parkinson’s experience for the previous...reactionscomments
Frustrating Fluctuations in (dis)Ability...If I had a nickel for every time I heard the words, "You have Parkinson’s disease? But you look fine/normal/human." (Choose your...reactions6comments
