Parkinson's...I have it. I’ve had it for about 4 years. Not much to say about it. I’m the only one in my family to have it. I take carbo/levodopa for...reactionsreplies
6 months ago I was tested and diagnosed with Parkinson's ...I think on reflection I've had parkinsons 2 or 3 yrs I have shakes in both hands.i am getting headaches sometimes lasting for days any suggestions please...reactions1replyNewly Diagnosed
suppliments...i want to know if your on medication for parkinsons can i take supplements like vitamin pills...reactions1reply
Parkinson’s. Are You Doing What You Should?...I’m Doing What I Can! Isn’t That Enough? Parkinson’s often is getting worse even if you are correctly taking your medications. Sounds as if anyone with Parkinson’s should just curl...reactions7comments
Lessons I’m Applying to My Parkinson’s From the World Happiness Report...Recently I was taking an online trivia quiz based on cultural diversity. One question was: "Where are the happiest people in the world?" To my surprise, the answer was Finland...reactions2comments
Shortness of breath...Hi, my mom has Parkinson’s and has had it for about 8 years and I was hoping someone here can help me with the current symptom of shortness of breath...reactions7replies
Hearing things in your head. ...My husband has PD and says he hears music or a beat to music part of the time. Do others have this symptom? It seems very frustrating to him....reactions3repliesSymptomsMental Health
Does anyone identify with these symptoms ...I have no motor Parkinson's and was diagnosed in 2022. The symptom that I struggle so much with is when my dopermine is low or none there . Basically an...reactions2replies
Dbs...I got DBS back in October. It was turned on December 10. I’m feeling a little better every day but still not good all day. Has anybody else had any...reactions1reply
I take equine assisted riding lessons to manage symptoms....I have been taking therapeutic riding lessons for about 5 years. Once you mount a horse for your lesson all of the stress melts away and you are focused on...reactionsrepliesPositivitySymptoms
Tips to stop me walking with hands in my pockets...For long walks I use walking poles. For walking round town etc I walk with my hands in my pockets to support myself and walk at less than a snail's...reactions1reply
Getting off the Couch Is Hard...The Parkinson’s Outcomes Project shows that people with PD who start exercising earlier in their disease course, for a minimum of 2.5 hours per week, experience a slowed decline in...reactions6comments
Tremors...Can anyone help me please? I have had Parkinson’s for 2 years. I recently stopped about 5 weeks ago taking a new medication called ongentys. I did not have any...reactions3replies
I’m Not Fine...People often ask me some version of “how are you doing?” I usually respond, with as much gusto as I can summon, “I’m doing fine!” But, I know that what...reactionscomments
Dealing with Chronic Illness Is More than Medical Treatment...We all use numbers to some extent from our early youth through old age. We are often bombarded with numbers. They’re used to convey information that we have to decide...reactionscomments
Drooling...My mouth cannot be opened it is constantly filled with saliva. At times it is quite thick and sticky but most of the time it flows out like a waterfall...I...reactions1reply
PD-Vision Related...I have intermittent floaters in my left eye. I have hallucinations of people on the left side and through windows, also small animals. And for both eyes, glasses of water...reactions1reply
Helpful Hints for Long-Distance Caregiving...Being a caregiver can be rewarding but also draining. In many cases, caregivers and those they care for live nearby or even together. However, some people serve as long-distance caregivers...reactionscomments
