Coming out of the Parkinson's Closet...How long did you stay in that closet? How long is it, Posy wonders, before most newly diagnosed PWP (People with Parkinson’s) decide to share their unhappy news? For Posy...Reactions0reactionsComments11 comments
Three Years and Satisfied...Hi Everybody, it's Ernie, some of you may remember me. I wrote the 134 page book, The Norwich Street Bridge Kids. I am sure glad I did and I encourage...Reactions0reactionsComments3 replies
Sad Outcome...My husband was diagnosed with Parkinson’s in 2011. September 2023 my husband went through deep brain stimulation (DBS). There were three steps: first was dropping the wires alongside the brain...Reactions0reactionsComments1 replies
Leg problems...Please can anyone help, the last few days my legs have decided to give up. We’ve only been into town and we use the car then walk around shops. My...Reactions0reactionsComments1 replies
PSP...I have PSP and Parkinson's started many years a go. At the time I wasn't diagnosed. Its only been two years that I have been diagnosed with PSP. If you...Reactions0reactionsComments1 replies
Understanding ...Struggling to understand special freind has pd kept it quiet for 6 years why!!!...Reactions0reactionsComments1 repliesFriends & FamilyCoping
Sleeping issue...Hello, I am a 64-year-old male with Parkinsons. Recently I have been experiencing very bad quality of sleep resulting in being extremely tired the next day. This is not getting...Reactions0reactionsComments1 replies
Severe muscle spasms ...I was diagnosed with Parkinson's about 12 years ago. I have always had a tendency to freeze when my foot hits something unexpectedly. My muscles will lock up and sometimes...Reactions0reactionsComments0 repliesDiagnosisSide EffectsMotor Symptoms
POTS: Dizziness & fainting due to Blood Pressure ...I have POTS? If someone is familiar with this I would like to share with you what you are doing?...Reactions0reactionsComments1 repliesSymptoms
Recently diagnosed ...Recently diagnosed with Parkinsons. I'm so scared and worried about life....Reactions0reactionsComments8 replies
Alcohol consumption ...I usually have a glass of red wine after my meals do I stop this ?...Reactions0reactionsComments2 replies
Using Dragon Speech to Text Software...On Netflix, there’s a show called Sweet Tooth. Like many comic books turned into movies, this features a dystopian theme. However, it is geared more towards young kids in that...Reactions0reactionsComments0 comments
Gait Freezing: I Need to Warm Up Properly Before a Walk Outside...Hello everyone, I have PD for 13 years now. Quite athletic (played tennis before, now 3x/week of gym for strength & flexibility). However, I've started in the last year to...Reactions0reactionsComments2 replies
But you know what?...It all started with our mobility scooter. I approached my doctor, at the time, for a prescription for one, in order to get some type of coverage, IE Medicare, etc...Reactions0reactionsComments3 replies
Parkinson's Medications Fear...I have a fear of taking parkinson's medications. I have heard about people who take the medication and have disturbing dreams and nightmares. How can I get over this fear?...Reactions0reactionsComments1 replies
Parkinson Person as Caregiver...My journey with PD started to 2009 with a loss of smell and strength. Started levadopa in 2012..seen by several doctors, was way over medicated now I'm doing OK once...Reactions0reactionsComments1 replies
Sleep Please...Going to bed is such a treat I'm so tired it's hard to beat I'm wide awake but fade so fast My eyes get so heavy, I know it won't...Reactions0reactionsComments2 replies
Staying positive...I was diagnosed 7 years ago but I managed to keep an active lifestyle. Gardening is therapeutic and some kind of physical activity. Low impact dancing is very much a...Reactions0reactionsComments1 replies
Pet Dog ...I was encouraged to give her up. She is two. I was managing and I feel so very lonely with out her....Reactions0reactionsComments2 replies
