Dbs...I got DBS back in October. It was turned on December 10. I’m feeling a little better every day but still not good all day. Has anybody else had any...Reactions0reactionsComments1 replies
I take equine assisted riding lessons to manage symptoms....I have been taking therapeutic riding lessons for about 5 years. Once you mount a horse for your lesson all of the stress melts away and you are focused on...Reactions0reactionsComments0 repliesPositivitySymptoms
Tips to stop me walking with hands in my pockets...For long walks I use walking poles. For walking round town etc I walk with my hands in my pockets to support myself and walk at less than a snail's...Reactions0reactionsComments1 replies
Getting off the Couch Is Hard...The Parkinson’s Outcomes Project shows that people with PD who start exercising earlier in their disease course, for a minimum of 2.5 hours per week, experience a slowed decline in...Reactions0reactionsComments6 comments
Tremors...Can anyone help me please? I have had Parkinson’s for 2 years. I recently stopped about 5 weeks ago taking a new medication called ongentys. I did not have any...Reactions0reactionsComments3 replies
I’m Not Fine...People often ask me some version of “how are you doing?” I usually respond, with as much gusto as I can summon, “I’m doing fine!” But, I know that what...Reactions0reactionsComments0 comments
Dealing with Chronic Illness Is More than Medical Treatment...We all use numbers to some extent from our early youth through old age. We are often bombarded with numbers. They’re used to convey information that we have to decide...Reactions0reactionsComments0 comments
Drooling...My mouth cannot be opened it is constantly filled with saliva. At times it is quite thick and sticky but most of the time it flows out like a waterfall...I...Reactions0reactionsComments1 replies
PD-Vision Related...I have intermittent floaters in my left eye. I have hallucinations of people on the left side and through windows, also small animals. And for both eyes, glasses of water...Reactions0reactionsComments1 replies
Helpful Hints for Long-Distance Caregiving...Being a caregiver can be rewarding but also draining. In many cases, caregivers and those they care for live nearby or even together. However, some people serve as long-distance caregivers...Reactions0reactionsComments0 comments
Managing Parkinson's Symptoms in Daily Life...Hello Living with Parkinson's disease can present many challenges, particularly when it comes to managing the symptoms on a day-to-day basis. Whether it's dealing with tremors, rigidity / difficulty with...Reactions0reactionsComments3 replies
Length until test results...Hi. I'm 69 and newly diagnosed. God bless all of you who were diagnosed so much younger. I had my daT scan and have to wait 4 weeks for the...Reactions0reactionsComments3 repliesDiagnosis
Eyesight...My eyes have definitely deteriorated rapidly, often blurred vision. As I spend most of my time outside in Queensland Australia, I had my reading glasses tinted as ANY light hurts...Reactions0reactionsComments2 replies
Can't Sleep...Because of my Parkinson's medications, I have trouble sleeping during the day....Reactions0reactionsComments1 replies
Dementia Related to PD?...My ex-husband (and dearest friend) was diagnosed with PD in November, 2019 although he experienced tremors long before we went to the neurologist to be diagnosed. I’ve noticed more and...Reactions0reactionsComments1 repliesCognitive Issues
Others have similar problems?...I have plastic-like pieces stuck on the back of my top, front teeth which no dentist, or anyone else can see, but I feel with my tongue. I can also...Reactions0reactionsComments5 replies
Living with the Parkinson's demon...I know my title may seem like there is no hope, but it's a demon I personally want to beat. I'm a person who if you say I can't do...Reactions0reactionsComments1 replies
