Does anyone here live in Arizona? How do you deal with the heat?...Hi everyone! I'm new here. My husband is 66 and has PD. We love AZ and used to live in Chandler. We would love to move back (in VT right...Reactions0reactionsComments6 repliesTips & AdviceWeather
PD and Colonoscopy preparation, something to be aware of....I wanted to pass along my experience this week regarding having PD and preparing for a Colonoscopy. This is obviously a case study of one, and may not apply across...Reactions0reactionsComments9 repliesNon-Motor Symptoms
My cure...I'm 81 and only serious medical problem is heart disease. About a year ago started developing left hand tremors. Six months ago developed full left arm and right hand tremors...Reactions0reactionsComments2 replies
Facing the Future with Parkinson's, Stoically and Realistically...In life, there are 2 sides to every story. For instance, my whole dealing with Parkinson’s thing says that in order to be optimally functional, I need to avoid timelines...Reactions0reactionsComments9 comments
On Adaptive Tools, Pride, and Parkinson’s...Last year, I sent my dad a pair of adaptive shoes and an adaptive (magnetic) shirt, thinking that they might be able to take some of the frustration out of...Reactions0reactionsComments1 comments
Is there any further developments on the Emma watch?...I was just reading about this Emma watch and I feel they (the developers) should go ahead and make it available to the public .Don’t tease us about it being...Reactions0reactionsComments1 replies
Increasing Exercise for Parkinson’s: The Benefits I Experienced...Recently, I stayed at an inpatient rehabilitation facility due to an exacerbation of my Parkinson’s disease. During my 3-week stay, I decided to compare the amount of time that I...Reactions0reactionsComments15 comments
May I Help You?...In 2013 I received a diagnosis of a rare movement disorder known as primary orthostatic tremor which affects your legs only upon standing. The tremors stop as soon as you...Reactions0reactionsComments0 comments
Is genetic testing for PD available?...Can/ should family members have genetic testing for PD? I heard in a Michael J Fox interview that a gene has been found that may predispose for PD....Reactions0reactionsComments7 replies
can sleep paralysis and out-of-body experience be part of the Parkinson's symptoms...I have been experiencing out-of-body exp. and lucid dreams throughout my entire life and it was fine with me, but now, as i am having all other symptoms of Parkinson's...Reactions0reactionsComments6 repliesDiagnosisHallucinationsSymptoms
Trying to Remain as Independent as Possible with Parkinson's...Ask not what others can do for you, ask what you can do independently for yourself. My apologies for borrowing inspiration from President John F. Kennedy, I feel that we...Reactions0reactionsComments6 comments
Loss of language with Parkinsons...My husband has moderate cognitive impairment as part of Parkinson’s and his loss of language is increasing— he can not find the words. He has a Rivastigmine patch daily, which...Reactions0reactionsComments9 repliesCognitive Issues
Soft Texture Breakfast Foods for Parkinson’s Disease...Navigating mealtime while managing Parkinson’s disease (PD) can feel like no small feat some days. Many people with Parkinson's struggle with dysphagia, or difficulty swallowing. This makes many foods hard...Reactions0reactionsComments1 comments
About the medication Amantadine...I am wondering what experiences anyone has with the drug Amantadine (as a stand alone or combined with Levo/Carbo) - side effects, effectiveness of the drug. TY....Reactions0reactionsComments3 replies
Community Shares: My Shingles Surprise...Recently, members of our community discussed shingles. Shingles symptoms are uncomfortable, and they can be more severe when combined with autoimmune diseases. It is always an unwelcome surprise when shingles...Reactions0reactionsComments0 comments
A Personal Perspective on What Depression Feels Like...Content Note: This article describes experiences with suicidal thoughts. If you or a loved one are struggling, consider reading our mental health resources page. Posy objects to those pseudo-heartfelt posts...Reactions0reactionsComments4 comments
Flow to Happiness...For many people with Parkinson’s, the idea of joyful living stands in complete opposition to where they are now forced to exist. This seems logical since the idea of jubilation...Reactions0reactionsComments7 comments
Losing Your Voice to Parkinson’s Disease...Dad’s voice is a whisper when I pick up the phone on one particularly chilly afternoon. "Hi, Mary Beth," the person on the other end is like a gust of...Reactions0reactionsComments5 comments
The 3 Fs of Parkinson’s...I actually began seeing a movement disorder specialist for another disorder about 7 years before I was diagnosed with Parkinson’s disease (PD). Primary orthostatic tremor is a neurological condition that...Reactions0reactionsComments18 comments
Unsure of Feelings...I was diagnosed with Parkinson's in February of this year. I don't know how I feel. Yes, I have tremors and restless legs, but the biggest change I have seen...Reactions0reactionsComments4 comments
