Does anyone experience akathisia due Parkinsons?...I was diagnosed last year with akathisia (diagnosed with PD in 2015, but had it since 2012. Other than fatigue, this has been the worst and most prominent of my...reactions1reply
Dad Has No Balance...So my dad has parkinsons. He has slight tremors and a bit of demtia. He took a fall and all of sudden has no balance and is no longer able...reactions4replies
Intimacy...I do not have Parkinson's but my husband does and I cannot find any answers to his problem. He can get and maintain an erection but gets very frustrated that...reactions1replyCaregivers & Care Partners
Early management - MAO-B vs Levodopa/Carbidopa...I have been doing extensive reading and research since I was recently diagnosed (including articles like https://www.uptodate.com/contents/parkinson-disease-treatment-options-medications-beyond-the-basics#H28 and https://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-11-112) before starting on...reactions3replies
Retired Life in the Presence of Parkinson's Disease...After 3 years of phased retirement, getting mentally and emotionally prepared for the event, retirement happened. And, as Nina Simone sings, "It's a new dawn / It's a new day...reactions6comments
Hello and question about sense of smell...Hi, I was diagnosed with PD back in May. I have always had a super crazy sense of smell. Seems instead of losing my sense of smell it has only...reactions4repliesSymptoms
Bugger!...My name is Tony, and I've had this disease for over 20 years, in 2 months I'll be 59. I had to stop working as a heavy vehicle technician with...reactions1comment
Kings College Hospital Visit...My appointment came through for 1st August 2013 – only 2 months after my diagnosis. Well impressed! I asked a good friend J to accompany me to my first appointment...reactions1comment
Unplayable pianos...On a December morning in 2019, I was pleased to see a new episode of Tim Harford’s podcast, "Cautionary Tales," in my playlist. The episode’s curious title, "Bowie, Jazz, and...reactionscomments
Exploring Options...It is almost the end of April 2013 and I went to see my GP with my list of symptoms all affecting the left hand side of my body. I...reactionscomments
sleep where are you?...doc gave me new meds to help me sleep,does not work. any ideas on how to get sleep...reactions1reply
Parkinson’s Disease Convinced Me It Was Time to Retire...To many people reading this blog post, you may have been dreaming of retirement for much of your adult life. Not me. An old saying goes, "Some people work to...reactions2comments
The ski holiday prior to diagnosis...April 2013 and I manage to get through the ski holiday, not without a good degree of stress. On the last day Phil (husband) and Jordy (younger son) take Mark...reactionscomments
The way forward...I'm 59 in a couple of months, I've not been able to work for three years. I live in the UK with the most amazing woman, I simply wouldn't have...reactionscomments
apathy...When I read the vast majority of posts on this website I get confused. Everyone seems so upbeat and despite PD having a good life. Which is great and I...reactions3replies
what has helped with sleep...I tried Ambien 10 mg, CBD/THC, all the over-the-counter stuff, and my newest scrip Ramelteon 8 mg nothing helps me sleep at all .I am ready to go to the...reactions8replies
PS 128 probiotics and other supplements that help with PD side effects ...My husband has been talking PS 128 and it seems to help. Are there any drugs or supplements that help with restless legs or sexual disfunction?...reactions2repliesIntimacy & RelationshipsSleep
Addictions...Hi, my husband has PD. He is showing addictive behaviors and I'm concerned. Has anyone else had this issue? Let me know if you need more information....reactions11repliesMental Health
Onward and Forward After Diagnosis...Roughly 5 years ago my hands started to shake. Soon there after I began spilling and dropping things, then breaking things. Interesting it never occurred to me that something was...reactions5comments
