Pain is Common & Constant: The Impact on Quality of LifeIn September of 2019, Health Union (the parent company of parkinsonsdisease.net) partnered with the US Pain Foundation for our first ever Chronic Pain in America survey to ask members of...Reactions0reactionsComments0 comments
Communication While Wearing a MaskIn a conversation with Lauren Simmons of PD Buzz in Orange County, California, we discovered that we were both audiologists in our past lives. We have both gone on to...Reactions0reactionsComments1 comments
A Dose of LaughterLiving with a chronic health condition can take a toll on your mental health. Life often seems full of the things you cannot do anymore, the ways the disease compromises...Reactions0reactionsComments2 comments
My Father and My BrothersMy father always dreamed of having a barnyard amount of kids. Not sure if it’s because he only had one sister or because he wished he had brothers, but either...Reactions0reactionsComments2 comments
Protein Intake & PD Medication: Does Eating Protein Affect Levodopa Absorption?Many people with PD take a levodopa/carbidopa combination drug to help control their motor symptoms. Levodopa is a precursor to dopamine that can reduce motor-related issues like tremor, rigidity, or...Reactions0reactionsComments0 comments
Parkinson's Conversations With a KidFor many people, the greatest joy in life is kids. Unfortunately, my wife and I did not have our own children before Parkinson’s. We were too busy enjoying life and...Reactions0reactionsComments0 comments
Happy(?) 10th AnniversaryFebruary marks the 10th anniversary of my Parkinson's diagnosis. It is more like my 11th anniversary as, like many parkies, I started having symptoms months before I was diagnosed. When I...Reactions0reactionsComments2 comments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesThese days, you can find more and more people turning to telehealth. Telehealth is also sometimes called telemedicine or virtual care. Whether you have been using telehealth for a while...Reactions0reactionsComments1 comments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency...Reactions0reactionsComments1 comments
You Got This!If you live with or near a progressive disease you may find your changing capabilities to be discouraging, frustrating, even maddening. I just wanted to walk my dog. A friend...Reactions0reactionsComments2 comments
Community Views: The Hardest Part of Living with Parkinson’sRarely is there an easy day with Parkinson’s. Even on the good days, the person living with the diagnosis and their loved ones may still be facing the fear of...Reactions0reactionsComments2 comments
The Safety Concerns of Sleepwalking and RBD in Parkinson's DiseaseYour loved one with Parkinson’s disease (PD) sleeps at night, just not in their bed…they get up, walk around, perform small—or large!—tasks while clearly asleep. Does this sound familiar? This...Reactions0reactionsComments7 comments
COVID-19 Updates, May 7: Remdesivir, Antibody Testing, and Reinfection RiskOur world is still changing every day because of COVID-19. Keeping up with all of the news can be challenging. Here are some of the top COVID-19 updates for people...Reactions0reactionsComments0 comments
An Interview with Physical Therapist Jill JumperI recently interviewed Jill Jumper, PT, DPT to learn more about her job, especially in regards to working with persons with Parkinson’s (PwP). Besides being a licensed physical therapist, Jill...Reactions0reactionsComments1 comments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data...Reactions0reactionsComments0 comments
Nature's Impact on Our Physical & Mental HealthThere is growing evidence that spending time in nature can help people feel less depressed, anxious, or stressed. Maintaining our connection to nature can improve one’s quality of life and...Reactions0reactionsComments0 comments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower...Reactions0reactionsComments0 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with parkinsons disease. New here? We invite you to explore...Reactions0reactionsComments0 comments
Power of Attorney Time: My Family's JourneyWhen a parent is sick and unable to be reasoned with, there are a couple of things that are necessary to accomplish before the situation gets out of hand. Mainly...Reactions0reactionsComments2 comments
Parkinson's Fantasy Versus Reality TelevisionBack when I was a kid, a time known affectionately as “the 1970s,” there was a television show, which was entitled Fantasy Island. In the show, the premise was that...Reactions0reactionsComments2 comments