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Read conversations, start a discussion, and connect with others about Parkinson's disease.

What would you be looking for in an information leaflet?

Hi, I'm a physiotherapy student who is making a leaflet for people with Parkinsons about exercise. I was wondering what you as a person with Parkinsons, or a loved one...

Ultrasound and Parkinson’s

I recently got some info from a friend concerning ultrasound and tremors. I researched a little and found articles touting its effect on essential tremors. Articles dating back to 2018...

Pooping with Parkinson’s

I never thought I would be starting a discussion on the role of pooping in a PD discussion. My PD dr has always stressed the importance of hydration and a...

Notifying Employer of PD

When do you suggest notifying my employer of my parkinson's diagnosis? I know my shaking is noticable, my voice quieter and I tend to be a little slower but can...

Fear Of falling / Post Fall Syndrome

I would like to hear from you if you are familiar with the Post Fall Syndrome diagnosis. Not many people are aware that their fear of fall is a common...

A complete list of symptoms?

Hey, I just flew into Boston and boy are my arms tired. Can this be a result of Parkinson’s? I never had this problem before. Like so many other issues...

Meds - timing/ regularity

When I met with a neurologist and she prescribed the C/L, I couldn’t get a sense of importance as to scheduling. I hate taking meds. If I take one aspirin...

Share the truth about Parkinson's disease

About 60,000 people in the United States are diagnosed each year with PD in the United States. To better understand the patient experience and realities of PD, we are fielding...

How to get the best out of DBS

DBS is gaining popularity. It is effective. There are a few PWPs who have got the surgery. What regime of exercise should be followed so that best results can be...

Early exposure to chemicals, how is one to know

With respect to a recently posted article, -As a young technician in the computer industry in the 70’s exposed to TCE, a cleaner. And, Paraquat. In late 80’s as a...

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