I’ve had Produadopa fitted 4 weeks ago
It’s to keep me going till I get DBS next year . Im 64, I have been struggling with how heavy pump is as I’ve lost a lot of weight and feel I’m not walking like I did on Sinemet , they have changed my levels every
Week I don’t get dyskenisia but struggle with dystonia I feel if I don’t see some positive result In next 4 weeks that I should give up
HI
I can hear your frustration. When is your next doctor's appointment? Your medical team should be able to help. Did they give you a timeline as to when you might feel better with the pump? Jill (Team Member) I’m a complicated case and they did say it could take a few months they are very good it’s just knocked me back at how hard it is, but I’m lucky to get the chance only 1000 issued to nhs this year.
It would be good to chat to others with more experience .
I see the team weekly at present .
