Hip operation and Parkinsons
Hi this is the first time I've written anything on this forum. I'm due to see a consultant as my hip on my left side which is also my Parkinsons side is bone on bone and very painful. I was wondering if anyone has had a hip replacement with PD? Did you get your medication on time and was there any set backs due to "off" periods also I suffer badly with Dystonia (my left leg gets pulled up until im standing in a stork position which puts pressure on both hips especially the left one) add to this that my left arm is twisted up my back and my head is also pulled back which is very uncomfortable but the pain in my hips/legs etc is unbearable...I am hoping that someone can advise me on how they got on after operation and how medication was distributed. Thank you for taking the time to read this
Kind Regards
Janny
Hi
sorry to see that others have not responded. Have you had your consultation yet? Wishing you well. -Jessica (Team Member) Hi Jessica thank you for enquiring, yes I have seen a consultant who has marked ‘urgent’ on my form but because of lockdown they have a back log to get through. I’ve been told that it will get done asap but it’s just a waiting game now. I have been told that I will be allowed to self administer my Parkinson’s meds while in hospital as “i know my own body and Parkinson’s best” so I’m a bit more settled. Thank you once again.
just wanted to check in and see how you have been doing? We're here anytime. Kindly, Jessica (Team Member)
Hi janny best of luck with HIP operation
I'm in pain with lower back and hips
Walk a lot
Hope it's only Osteoporosis
I will have to start pain relief
Hi Ann-Marie, thank you for taking the time to reply, and I'm sorry to hear you're in such pain. I truly hope that you are receiving pain relief and, therefore, getting a bit of respite from the pain. Unfortunately I have been awake with the pain since 1am and the pain relief that I gor fron my GP just isn't doing anything to relieve my symptoms it's continuous all day and in particular unbearable at night and first thing in the morning sometimes I struggle to put my foot/leg on the ground and I find that when I go "off" with my Parkinsons the hip pain which is unbearable is multiplied by fifty...however I'm a fighter and still give Mr Parkinson a good run for his money after nearly sixteen years. I let him win the small battles, but when it comes to all-out war well my attitude just won't let me give in so I treat the hip pain the same way as the Parkinsons, yes I've cried with the pain etc but I always bounce back and you will too. Please let me know how you are and take care of yourself.
Jannyfrom a cold winter day in Ireland 🇮🇪
Yeah I understand your pain
Like you I try to beat every day
So days bad I don't take a lot of painkillers
Upset my tummy
I walk every day
It helps losen muscles
And I dance twice
Night time is the worst
I'm a bad sleeper going to try get some from health shop
Hope you get some respite from pain
Annmarie
Morning Janny
