Scared I have PD...When I seem to have a drink which is rare my symptoms next day get worse. I’ve recently had an ECG and my bloods which all come back normal....Reactions 0 reactions Comments4 repliesAwarenessCoping
Invisible Symptoms of PD...Which invisible PD symptom do you wish people would see and understand? We want to hear more about your journey with the unseen difficulties with PD....Reactions 0 reactions Comments29 replies
How do you find some help?...I have seen my GP and after having blood tests texted me to take some vitamin D tablets....Reactions 0 reactions Comments5 replies
Irregular blood pressure...My father (age 85) has parkinsons for last 10 years now. so far the medication has been helping to keep things in control, other than few side effects...Reactions 0 reactions Comments5 repliesSymptomsSide Effects
Positivity and attitude ...When I ski, (55 years now) I keep it to half a day and easier trails. If someone notices that I’m shaking , I tell them “ I have...Reactions 0 reactions Comments9 repliesCopingPositivity
What's your motivational dialogue?...Sometimes a simple mental mantra of telling myself to "Keep moving and quit bitc*ing" 3 or 4 times...Reactions 0 reactions Comments1 repliesApathy
What would you be looking for in an information leaflet?...I was wondering what you as a person with Parkinsons, or a loved one of someone with Parkinsons would like to see in a leaflet? Thanks in advance!:)...Reactions 0 reactions Comments4 repliesExerciseAwarenessCoping
Navigating Parkinson's ...I see people recommend getting in touch w one to "help w things" but I never hear what those "things" are. Some work w doctors offices specifically?...Reactions 0 reactions Comments1 repliesTreatmentHealthcare TeamCaregivers & Care Partners
Should I Be Praying For A Normal or Abnormal DaTscan?...I admit I do seem to have some of the classic signs (stiff right wrist, slight lightheadedness, and a tremor that only shows itself when I exercise) but...Reactions 0 reactions Comments6 repliesDiagnosisSymptoms
DBS...I've seen at least 95% improvement on the left side, (I'm left handed) and about 85% to 90% on the right side....Reactions 0 reactions Comments7 repliesTreatment
FeaturedActive 8 days agoFill in the blank: "I overcome apathy by ___."...We posted this fill in the blank prompt on our Facebook page, so we wanted to see what answers we got here in our forums. Respond below!...Reactions 0 reactions Comments22 repliesApathy
Diet - ‘Off Times’ - Weight loss...Snack, dinner ideas that help meds keep working? Do eggs at breakfast trigger ‘Off Times’ or should be ok? Also - he takes meds every 4 hours....Reactions 0 reactions Comments3 replies
Question on hand shaking...I'm not scheduled to see my neurologist until October now...Reactions 0 reactions Comments7 repliesNewly Diagnosed
Remission?...I don't seem to have any PD symptoms at all - balance is great (no falls) - can turn without falling over - even the tremor has completely gone....Reactions 0 reactions Comments6 repliesDiagnosisTreatment
Medications and PD...I have a sought of PD being Progressive Super Nuclear Palsy or PSP.. there are very few that seem to suffer from this most debilitating disease... i would...Reactions 0 reactions Comments8 replies
overwhelmed...I keep thinking people hate me. I write bazar emails asking them and then feel foolish. very hard on myself....Reactions 0 reactions Comments1 repliesCognitive Issues
Vision...His overall vision seems ok, but he often doesn’t see objects that are visible and in front of him, on a shelf or table for example....Reactions 0 reactions Comments11 repliesCognitive IssuesNon-Motor Symptoms
Ever Hopeful For Recovery...My symptoms seem to come and go, and include mostly a mild to moderate tremor in my right arm, leg stiffness, some balance issues, and very occasionally...Reactions 0 reactions Comments5 replies
Just how bad is my situation?Really!!...I can do my photography, I can drive, and I can see all the beautiful things there are to see....Reactions 0 reactions Comments10 repliesAcceptanceCoping
Delussions and Sleeplessness...Well to cut a long story short I'll go directly to my question You see, my father has started experiencing falls....Reactions 0 reactions Comments3 repliesHallucinationsParkinsonismSleep