My Father Has Parkinson's: Living with Regret & Guilt...From a young age, my father had health issues. His first heart attack was the year I was born. Then there was...reactionscomments
Building Connections & Parkinson's: Overcoming Isolation...After a decade in Parkinson's advocacy, the most common hurdle reported by people with young-onset Parkinson's disease (YOPD) is not what you...reactions2comments
Writing a Biography: These Last 4 Years...When you stop and think about it, 4 years is a long time. That’s 1,061 days since diagnosis to scribble in my...reactions3comments
The Link Between COVID-19 & Parkinson's Disease...One wonderful personality trait of my Indian father’s is that he typically does not do what he does not want to do...reactionscomments
Recently Diagnosed...October 5th, my life changed tenfold as I sat in the office with the neurologist, hearing the words "You have Parkinson's". My...reactions2comments
Constipation in Parkinson's: Triggers & Treatments...Those of us who live with a chronic illness, such as Parkinson’s disease (PD), know from experience that having a sluggish bowel...reactions6comments
What's the Connection Between Parkinson’s and Migraines?...I have been a migraineur since childhood. As expected, my migraines lessened as I entered adulthood. However, when I developed Parkinson's disease...reactions5comments
Take the Connected Health Survey!...In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to mobile apps, we...reactionscomments
Secrets, Fears, and Vulnerabilities with Parkinson's: Part 3...In this final section, I want to discuss my feelings on vulnerabilities as a strength. If secrets aren’t good and fear leads...reactions2comments
MaryBeth Skylis...Mary Beth Skylis is an outdoor enthusiast with a penchant for words. She spends her time traveling to remote spaces around the...
Community Views: How Does Being a Caregiver Impact Your Life?...Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until...reactions1comment
Living with Apathy: "Because I Just Don't Want To!"...I have heard a lot of children say, “I don’t want to,” when asked to eat their vegetables or pick up their...reactions3comments
Making Palliative Care Standard Practice For People with Parkinson’s Disease...A new program launched by the Parkinson’s Foundation will help to make palliative care a standard practice across all Centers of Excellence...reactionscomments
Sharing Your Experience with Parkinson's...Have you ever asked the question “Why me?” or more precisely, “Why do I have Parkinson's disease?”. It’s a legitimate question, to...reactions7comments
Health Insurance with Parkinson's...Health insurance and access to healthcare are important for everyone, especially people with chronic diseases like Parkinson’s disease (PD). It is important...
Compromised Immunities & Pandemics: Best Enemies...When I was a kid and I would listen to stories of medieval pandemics, I would always envision the world under continuously...reactionscomments
I loved turning 50!...But, a few years later, it appeared my whole body was rebelling. I developed asthma. Then, I started getting weird headaches, that...reactions3comments
The 2020 Support Group Drought: To Meet or Not to Meet...Our local Parkinson's support group has been on my mind more than usual of late. We have not been meeting as a...reactions5comments
Others May Not “See” It. But I Feel It....During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go...reactionscomments