YOPD diagnosis questions...In September of 2018, at age 32, I began taking Sinemet following a YOPD diagnosis and concurrent diagnoses of a torn labrum in my shoulder and cubital tunnel syndrome. I’m...Reactions0reactionsComments2 repliesYoung Onset (YOPD)Diagnosis
Life Hacks for People with Parkinson's...Since I was first diagnosed with Parkinson's disease in 2020, I have been interested in how to make my life easier in my activities of daily living. These tidbits of...Reactions0reactionsComments14 comments
2 months before diagnosis.......April 2013 and I manage to get through the ski holiday, not without a good degree of stress. On the last day P (husband) and J (younger son 17) take...Reactions0reactionsComments1 comments
The Decline and Fall of Posy...In the previous article, What's Wrong with Me?, I described how our erstwhile sparkling young lady was now suffering a myriad of minor health problems. Please read on ... OMG!...Reactions0reactionsComments1 comments
I just don't understand...I'm newly diagnosed with PD since February. I have tremors really bad and my feet go all the time. Sometimes I choke on my salvia and I never did this...Reactions0reactionsComments11 comments
Sleeping ...Hi,Does anyone have the same problem. That is I lie in bed tossing & turning tying the bed clothes in knots thinking I must get some sleep when in fact...Reactions0reactionsComments7 repliesSleep
Humor: Without It...Life Can Be Boring...First of all, EVERYONE is a comedian. The difference is most of us don't get paid being one. But in this community you get a chance to make people LAUGH...Reactions0reactionsComments12 repliesCopingApathyNewly Diagnosed
Can We Bring an End to Parkinson’s Disease?...What is the fastest-growing neurological disease? No, it is not Alzheimer’s. It is Parkinson’s. Parkinson’s disease (PD) is growing at an alarming pace, putting it on a path to become...Reactions0reactionsComments1 comments
Should I persist?...Hi there. New here. After about 6-8 months of worsening weird things happening, I decided to put them all in one space. Decided after Dr Google suggested it, to see...Reactions0reactionsComments21 repliesCopingAcceptance
Managing Healthcare Expenses...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing, copays, travel, and more. But help is available...
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your job done. When this happens, you may find...
The Bittersweetness of Having a Family...Being married and being a mother, alongside having a chronic neurodegenerative illness is hard. I am eternally grateful for my family and for being surrounded by a little army of...Reactions0reactionsComments10 comments
Disability Benefits...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect your finances and your family’s. However, there is...
I Was Invisible For A Few Hours...The Cherry Creek Art Festival is held in the Cherry Creek area of Denver during the first weekend in July. Our art-loving family usually attends the festival. Seeing all the booths...Reactions0reactionsComments3 comments
no sleep...My husband, Bruce, has not had any sleep in the past month or so. At night he falls asleep for about 10 minutes then gets up and wanders around the...Reactions0reactionsComments9 repliesSleep
How a Doctor's Appointment Can Change Your Life...For years my husband, singer, songwriter, and musician, Rob Barteletti, had been sitting in his recliner watching hours of sports each day. Didn’t matter the sport, he was watching it...Reactions0reactionsComments5 comments
Retail Accommodations, or the lack thereof ...The other day, I visited the optometrist to order new eyeglasses. As my Vascular Parkinsonism limits me, I asked if they had a high chair, or one with arms, so...Reactions0reactionsComments5 repliesAcceptance
FeaturedGastroparesis...Besides not sleeping, I am having trouble with gastroparesis whereby motility of the gut hinders it going through the digestive system. I was prescribed 10mg. (it is sent from Canada)...Reactions0reactionsComments20 repliesNon-Motor Symptoms
No More Shame With Parkinson's...Since I was diagnosed with Parkinson's in 2017, I have been overwhelmed with feelings about my health and the future. Of all the emotions I have experienced with Parkinson's, shame...Reactions0reactionsComments8 comments
FeaturedSome days...Hi I'm Dave, had a bad couple of weeks, legs feeling cold but not cold to the touch it's a new one on me, try my best to look after...Reactions0reactionsComments6 replies
