My Father Has Parkinson's: Living with Regret & Guilt...From a young age, my father had health issues. His first heart attack was the year I was born. Then there was the second and third and fourth - on...Reactions0reactionsComments0 comments
MaryBeth Skylis...Mary Beth Skylis is an outdoor enthusiast with a penchant for words. She spends her time traveling to remote spaces around the globe, using them as a medium to educate...
Community Views: How Does Being a Caregiver Impact Your Life?...Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until they are in that role. To start a...Reactions0reactionsComments0 comments
Beyond Exhaustion: How Life Changes with Fatigue...Fatigue: It’s not “just being tired”, and it’s an experience that individuals living with a chronic health condition know all too well. Fatigue can impact every aspect of daily life...Reactions0reactionsComments4 comments
I'd like to know how many others do NOT take medication for PD because of the side effects?...What other things have you tried ? Thanks...Reactions0reactionsComments2 replies
Living with Apathy: "Because I Just Don't Want To!"...I have heard a lot of children say, “I don’t want to,” when asked to eat their vegetables or pick up their toys. The follow-up question, “Why don’t you want...Reactions0reactionsComments3 comments
What parts of the brain are affected by PD?...My question is: In PD 4 striatial regions i.e., left caudate, left putamen, right Caudate and right putamen get affected..What are the other most and less affected sides that get...Reactions0reactionsComments1 replies
Making Palliative Care Standard Practice For People with Parkinson’s Disease...A new program launched by the Parkinson’s Foundation will help to make palliative care a standard practice across all Centers of Excellence in the United States. These are medical centers...Reactions0reactionsComments0 comments
Recently Diagnosed...October 5th, my life changed tenfold as I sat in the office with the neurologist, hearing the words "You have Parkinson's". My head spinning, screaming inside, this cannot be what...Reactions0reactionsComments2 comments
Does anyone suffer with hot head on the inside of their head?...Hi, my Dad has Parkinson’s and is suffering with a hot head on the inside of his head. He finds having gel packs over his forehead really helps. I was...Reactions0reactionsComments1 replies
Compromised Immunities & Pandemics: Best Enemies...When I was a kid and I would listen to stories of medieval pandemics, I would always envision the world under continuously gray skies. Beneath the obscuring skies, all life...Reactions0reactionsComments0 comments
I loved turning 50!...But, a few years later, it appeared my whole body was rebelling. I developed asthma. Then, I started getting weird headaches, that would make it difficult to even see the...Reactions0reactionsComments3 comments
Laughing Doctor...My story goes back decades. However only in 2017 did doctors figure out I had P.D. Third visit to MDS Neurologist looking fresh out of school. Early in visit 3...Reactions0reactionsComments0 comments
The 2020 Support Group Drought: To Meet or Not to Meet...Our local Parkinson's support group has been on my mind more than usual of late. We have not been meeting as a large group due to social distancing guidelines and...Reactions0reactionsComments5 comments
What Is It Really Like to Be a Caregiver? Results of the 2020 Caregiving In America Survey...When faced with a chronic health condition like Parkinson's disease, many people rely on the help and support of a caregiver. In many ways, the family members, partners, and friends...Reactions0reactionsComments0 comments
Others May Not “See” It. But I Feel It....During Invisible Illness Awareness Week, we want to recognize and shed light on all those affected by an illness that may go unnoticed despite the major impact your illness has...Reactions0reactionsComments0 comments
Positive...16 years ago I was diagnosed with Parkinson’s. I was 65. At that time, my husband was in the mid stage of Lewy body dementia and it did not register...Reactions0reactionsComments1 comments
COVID-19 Induced Apathy: Is That a Thing?...How many weeks has it been now? Months? I have totally lost track. It must be at least 6 months or more. At first, it was strangely energizing. We had...Reactions0reactionsComments0 comments
Does PD affect your heart?...I am not quite sure how this works but I was wondering if anyone could share any information they might have about how PD can affect your heart. I am...Reactions0reactionsComments1 replies
World Hospice & Palliative Care Day 2020: Voices from the Community...Each year, World Hospice and Palliative Care Day is observed in October. This year, October 10 will mark the day to celebrate and support hospice and palliative care around the...Reactions0reactionsComments0 comments