An Adjustment for Tremors: Deep Brain Stimulation...Sitting, facing the team of neurological professionals in front of me, I found myself in a conundrum. In all my posts about Parkinson’s, I’ve always been open about the fear...reactions12comments
An Adjustment for Tremors: Focused Ultrasound...This all began when my wife turned me on to a procedure called focused ultrasound (FUS). This is similar to deep brain stimulation (DBS), though, in its most important aspect...reactions7comments
Question on hand shaking...Hello, I'm a male 64, diagnosed with parkinsons on 3/23. I have been using levadopa 25/100 3 times daily since..working pretty good but now my left hand constantly shakes...does a...reactions7repliesNewly Diagnosed
26 years with pd...This bit is a little dated and not to all tastes, for sure. Nonetheless, here you go. Some random thoughts on living with PD for 26 years: 1 When first...reactions13repliesHumor
I have YOPD (Young Onset Parkinson Disease) and picked up a stutter......As my disease has evolved and progressed I have picked up a stutter which is tough to control. Is there anyone out there who has experienced this?...reactions2repliesSymptoms
Mucuna /dopa mucuna 15pv L/dopa...After 6 months of roller coaster on different meds, I have been taking mucuna for a week. Seem to be helping without bad side effects. Has any pwp been taking...reactionsrepliesNewly Diagnosed
Mucuna tablets...Has anyone taken these. I have just started a week So far so good...reactions1replyNewly DiagnosedSleep
Parkinson treatment for Violent Tremors...I was diagnosed with Parkinson March of this year. My situation is very unusual, the only symptom I have is violent tremor in my right leg. None of the other...reactions4repliesMotor SymptomsParkinsonism
Nuplazid ...Anyone having problems with balance or walking while taking the drug Nuplazid?...reactions1reply
Doctor diagnosis...I’ve had ET for 20 years but recently concerned that heading towards to Parkinsons. I raised this with my doctor this week who did some tests. He advised I had...reactions1reply
Tight ankles...Keeping ankles loose? Stretching, massaging and Doterra deep blue but tendons tighten and create friction and inflammation. A constant struggle!...reactions1replyExercise
Does ET become Parkinson s...Diagnosed with Essential Tremor in 1988. Grandfather, cousins and siblings also have ET. Rechecked in 2018, ET confirmed. Now told it might be Parkinson. Is this commom?...reactions4repliesNewly Diagnosed
DBS...Seems like a great deal of you want information on DBS. Five years ago I was ready to give up, made three half arsed attempts but my stimulator implant surgery...reactionsrepliesDeep Brain Stimulation
Goosebumps...For the past couple of months I have been getting goosebumps on both forearms they are quite distracting and go on for some hours, does this ring bells with anyone?...reactions3repliesNon-Motor Symptoms
What's your motivational dialogue?...As individuals, we each have different ways of dealing with the multiple facets of PD. Good days, bad days and So-So days each present their own challenges and elicit different...reactions1replyApathy
Do my eyes deceive me?...What's real and what's not? If could only remember which of these darn pills cause this feeling then I could make a few quid in the pub. Seriously, questioning one's...reactionsrepliesHallucinationsCognitive Issues
Deep Brai Stitmulation...Experiences people have had with this procedure....reactions2repliesDeep Brain StimulationFriends & FamilyAcceptance
rytary...Who has taken this and what is your outcome?...reactions1replyAwarenessAssistive DevicesCaregivers & Care Partners
Feeling like you have been robbed. ...Sadly I have a wealth of experience in this wretched bloody disease! So to cut a very long story short, please just get over the feeling of being robbed it's...reactions1replyAcceptance
