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Read conversations, start a discussion, and connect with others about Parkinson's disease.

Brain Disconnection/Brain Fog

I am a 76 yr. old female diagnosed with PD approximately 1-1/2 year ago. I deal with brain fog, feeling of being disconnected, brain fuzziness, out of sort feelings on...

Diagnosis Problem Is Not Uncommon

And just why do you believe that might be? Because diagnosing is so complex? Sometimes, but not all the time. But the word 'uncommon' seems to insinuate that there is...

Terrible fear of developing dementia

I was finally diagnosed last year. There seem to be so many aspects of PD. I am very afraid of losing my cognitive abilities. I had some testing done a...

Recurrent thoughts

I’m curious if anything like this has come up for you? My background is eight years of Parkinson’s disease, which has been relatively mild. Most people are not even aware...

Loss of language with Parkinsons

My husband has moderate cognitive impairment as part of Parkinson’s and his loss of language is increasing— he can not find the words. He has a Rivastigmine patch daily, which...

Deep Brain Stimulation Surgery

My neurologist has asked me to research deep brain stimulation surgery. I would really appreciate hearing from those of you that have had the procedure. I’m open to anything that...

Do my eyes deceive me?

What's real and what's not? If could only remember which of these darn pills cause this feeling then I could make a few quid in the pub. Seriously, questioning one's...

DBS: actual experiences

I am official caregiver along with VA Homebased team of my beloved husband of 53 years. My husband was diagnosed 5 years ago and is now 77 years young. We...

How to decide best dose of Clozapine when both options are bad.

How to choose between happy and sedated or night terrors , hallucinations but more alertness during day, better mobility and strength? The hallucinations are horrific....

overwhelmed

I am so invested in understanding all of the terms and medications, symptoms, that my head is spinning. I want to catch up at a difficult time cognitively. Lately I...

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