Research Opportunity

My name is Sydney Richards, and I am a student in the Master’s in Genetic Counseling Training Program at the University of Maryland School of Medicine. I am conducting a new research study to better understand the experience of individuals with Parkinson’s disease with genetic testing. My passion in this research is personal, as one of my family members has Parkinson’s disease.

People who have and have not had genetic testing are encouraged to take part! Individuals over age 18 who have a diagnosis of Parkinson’s disease, are English-speaking, and live in the US can take part in the study. We kindly ask those who have a caregiver or family member presently acting as their healthcare representative at medical appointments do not take the survey.

Participation consists of an anonymous, online survey that should take about 15 minutes to complete. We will ask questions about your demographic information, your diagnosis of Parkinson’s disease, and your experience with and opinions about genetic testing.

Participation in the study is voluntary. Your decision to participate will not affect your medical care.

Thank you for your consideration. We hope the knowledge gained will help to provide better patient care and to further provider understanding of the experiences of those with Parkinson’s disease with genetic testing.

If you are interested in learning more about this study, please use the link below by November 16th, 2021:

https://umaryland.az1.qualtrics.com/jfe/form/SV_bpEhuQEvdjAcoyG

Sincerely,

Sydney Richards
Master’s in Genetic Counseling Candidate
University of Maryland School of Medicine
sydney.richards@som.umaryland.edu

Shannan Dixon, MS, CGC
Director, Master’s in Genetic Counseling Training Program
University of Maryland School of Medicine
sdelany@som.umaryland.edu