Stories

I was in my mid-late 50's when the motor, smell, and severe R.L.S. sent me searching for answers I did not want to have. "Parkinson's. Oh don't worry. It's not...

I have noticed a tremor for about a year. More recently it has become noticeable to others. The Movement center at RI Hospital diagnosed Parkinson’s. I’m a little shocked, but...

I worked 28 years in a foundry while my wife was working in the medical devices facility and was diagnosed with Parkinson's in about 1991. She had a D.B.S. put...

I’ve been wanting to share my story for some time, but never actually sat down to give it a go. It’s 2:05 a,m. and my inability to rejoin the sleeping...

I was diagnosed at roughly 35. I am now 59. My PD has progressed slowly until about 5 yrs ago when my Mom was diagnosed with PD. I was her...

I am now 69 years old and still find going to work early a way of living with my disease. I was diagnosed by neurologist about 5 years ago, but...

My husband was diagnosed in 2009. Was on dopamine agonists. Within months developed compulsive behavior (sexual) left me for 3 months, had taken up with another woman. Specialist stopped them...

I’m in the elderly category, have Parkinson’s and CKD, and, due to coronavirus, have been in deep isolation for over nine months. In an attempt to inject a little humor...

I was diagnosed with Parkinson's 5 years ago, and boy how time flies. Then I tore my right quadriceps tendon and had surgery. "No more ladders", said my neurologist, ending...

His arms stopped swinging, then the vein in his right hand started to twitch, then the hand started to cramp while typing. It took a year of multiple visits to...

The Parkinson’s Foundation describes apathy as a “lack of interest, enthusiasm or motivation. It interferes with the effective management of Parkinson’s disease (PD) symptoms, since apathetic people are less inclined...

About five years ago I first took notice of the trembling in my left hand. Indications might have taken place earlier, but as my wife and friends will tell you...

Trauma trigger warning: This story discusses suicide, suicide ideation, and the aftermath of a suicide attempt resulting in carbon monoxide-induced Parkinsonism, and some people may find it disturbing. If you...

It all started about three years ago. I have Essential Tremors, so I assumed the tremor in my right hand was ET. No problem, I said to myself. Then my...

October 5th, my life changed tenfold as I sat in the office with the neurologist, hearing the words "You have Parkinson's". My head spinning, screaming inside, this cannot be what...

But, a few years later, it appeared my whole body was rebelling. I developed asthma. Then, I started getting weird headaches, that would make it difficult to even see the...

My story goes back decades. However only in 2017 did doctors figure out I had P.D. Third visit to MDS Neurologist looking fresh out of school. Early in visit 3...

16 years ago I was diagnosed with Parkinson’s. I was 65. At that time, my husband was in the mid stage of Lewy body dementia and it did not register...

Hello. I was diagnosed with PD about 7 years ago. I was 55 at the time. I saw a specialist and he could not find anything wrong with me so...

I am a wife and mother to two teenage sons, a full-time worker (and breadwinner) and now I am a caregiver. My husband was recently diagnosed with Parkinson’s disease and...